Deinstitutionalization is no Joke.
kimnjed
October 30, 2018
It’s been about a month since I last wrote here. We’ve been a family of 11 for about 6 weeks now and finding time to come up for air these days is quite the challenge. π The past 6 weeks have contained some of the highest highs and the lowest lows I have ever experienced. Alllllllll the feels. All of ’em. Deinstitutionalization is no joke.
The more we know our guys, the more we grieve over the many wasted years, the many abuses and the neglect. And the more we know them the deeper we grieve for the ones left behind.
Ruslan, Anton, Boris- they are not children. They are men, each with more than 20 years spent wasting away, locked away, hidden away. The tragedy of it makes my heart ache. They have spent their whole lives living in fear, treated like animals, when all along they were worth so much more.
Sometimes I look at them and I see them at face value: men who spent their lives in a mental institution. They have B.O. They don’t close the door when they use the bathroom. They don’t wash their hands without a reminder EVERY TIME. Anton spits when he is angry and has been aggressive at times. Boris still hits himself waaaaaaay too much. They don’t sleep well (which means we don’t sleep well). They have major anxiety about just about everything. They are food-obsessed. Ruslan asks the same questions approximately 258 times per day. They wipe their noses on their pillows. Anton will wander off and has no awareness of cars or strangers. Boris will wet himself as a way of manipulating us or the situation. Ruslan has a tennis ball that he obsessively searches for in the night- just to make sure it’s still there.
And on and on. So much brokenness. So many tears (cried by me, because they never cry, they only laugh when they should cry).
Last week, at an especially hard moment, I looked at Jed and asked “How can we ever expect anyone to want to do this work with us? It’s just.so.hard.” And then Jed calmly reminded me that God loves our guys more than we ever could and this is HIS work. Any time we try to pick up the weight of this and carry it by ourselves we collapse under the weight of it. We have to daily, sometimes hourly, hand the weight of this work back over to Jesus.
Yes, the more we know them the more we grieve.
But, also, the more we know them the more we love them.
Ruslan sings himself to sleep every night. He sings about whatever is on his mind and it’s hilarious. He sings about the friends who will come over the next day, or about a girl he thinks is pretty π or about Jesus. And Anton! Guys, Anton is talking. Like a lot! When he was in the institution I only ever really heard him say one word. If you asked him who loved him he would answer “God”. Now he talks so much. He talks in bed, on the toilet, in the bath, at the table. Mostly he talks to himself, but when you ask him a question he will often answer, and a lot times we can understand him! It’s absolutely incredible to watch him explode with language. We hoped for that, but I’m not sure we really expected it to happen! Boris is growing and changing all the time. He understands English and I pretty much only speak to him in English now. He is so smart! Watching the three of them during worship at church is good for the soul. They all love music and each dance in their own way. It’s so funny and cute and soul-filling.
When we lay ourselves down and choose to view our guys through Jesus’ eyes, with eyes of compassion, we can look past the effects of a life of trauma and see the little boy inside who just wants to know he is safe.
Our sweet Anton can get quite stressed in his new life. He spent the last 20+ years sitting on a bench, so it makes sense that he would get overwhelmed. Now we can see the signs: red cheeks and neck and lots of talking. He can get a bit aggressive when he is overwhelmed and that really scared me. My mind started racing “What have we done???” Then one day we realized that Anton is a 30 year old sized two year old. He really is! He is developmentally stuck at about age 2 or 3- he’s just a big dude, so looks can be deceiving. Now we know when he has a tantrum we just need to treat him at his developmental age and all will be well, eventually. Our sweet buddy, we love him so much. Now if he’d just sleep a little more…
The kids are still doing well. Vlad has been reverting into some old behaviors, so that’s tricky, but I guess was to be expected. Yesterday we went to lunch and the three older guys stayed at home with Kenny and one of our interns. We asked the kids each how they are doing, what are some of the joys and struggles of having our new additions home. By and large, table manners were the biggest complaint (ha!) and hearing Anton talk was the biggest joy. I was happy with those answers. We can work on table manners!
The days are full, and often hard, but we also have a lot of moments of laughter. Most of all, we have love. So, we’ll just keep putting one foot in front of the other. π
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God bless you for being the hands and feet of Jesus to these precious men. Praying for strength and patience for you. And more sleep! π
Yes, thank you so much! Keep the prayers comin’ π
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I am so thankful for you all.
Always thinking of you and your guys. I do pray for safety. And sleep! Thank you for being honest.
Thank you so much for praying! π
Praying for you and your family. I am friend’s with the Johnstons and looking forward to meeting their two new family members from Ukraine!
Oooooh lucky you to have such wonderful friends! We love that family. Thank you for your prayers.
Thank you for sharing your world with us. My heart expands as yours does through these writings. I really see Jesus and his love in your lives.
Thank you so much for that encouragement!
Father,I pray for Kim, Jed, their family and their team that works to minister in Your Name. Help them when they are weary to find refreshment. Help them to not doubt Your ability to do all that you want to do through them. I pray for the three newest additions to the family to feel peace from the Prince of Peace, and to know Your love.
AMEN!!