Category: Orphan Care

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The Heart of Deinstitutionalization

From Jed:

“You can take the girl out of the trailer park, but you can’t take the trailer park out of the girl.”

Whenever Kim does something silly I like to remind her of her roots.

It’s all light-hearted but the adage makes me think of what it means to work toward the deinstitutionalization of people with disabilities in Ukraine… or anywhere for that matter.

Our dream is to help our friends find the love of a family and the support of their community as they work toward becoming fully human.

We have worked for many years, creating a beautiful space for them to flourish. They now have gardens, classes, coffee with friends, house parents, therapy, church community, fun time, work time, horses, yoga, their own bedrooms, holidays, birthdays, and countless other experiences. What full lives our dear friends now live, together with us in community.

As idyllic as this all sounds, to make this dream a reality we have a team of assistants, house parents, office staff, builders, teachers, cleaners, volunteers, managers, accountants… The organization of all this requires HR manuals, team meetings, performance evaluations, process improvement plans, goal setting, shift scheduling, training, retraining… you get the idea.

The most effective way to manage all of these details is to make institutional decisions so everyone is on the same page, they know what is expected of them, and they can perform their job functions effectively, timely, and measurably. Ok, this is sounding a bit too institutional for an organization focused on deinstitutionalization.

So, how do we keep from falling into the trap of systematizing the lives of our friends with disabilities, because it is more stable, easier to manage, and makes life all-around predictable? How do we not just create mini-institutions?

The truth: sometimes we do start making our friends’ lives more institutional. We catch ourselves bringing our hands to work, but leaving our hearts at home.

Boris is constantly teaching me to slow down and be present with him. Yes, he wants his needs met. But he also wants relationship and I can get so busy solving problems that I forget Boris is a person, longing for relationship, reaching out with whatever communication tools he has, “Know me, help me… give me a #$%^ cookie!”

When I treat Boris like a problem to be solved, my decisions and my relationship with him become institutional. I’ve done all this work to get him out of an institution and then I re-institutionalize him with my heart.

I use an analogy with my team that I learned from a dear friend years ago. He would talk about sending our stunt double to work, so we wouldn’t have to bring our real selves in that day. The stunt double takes all the hits, and never gets hurt, so we can keep on acting like everything is ok.

But with our kind of work, we don’t have the luxury of sending in the stunt double. This a work of the heart, from the heart, and each moment with our friends must be processed through our hearts. Now, we use a lot of thinking and strategizing, but that is only so we can be full-hearted and completely available when we are with our friends.

Another way we work towards keeping our organization leaning forward, open, and leading with the heart is to analyze what we are doing, with our vision in mind. “Why are we here?” When we build our job descriptions and work policies, we try to have a “skeleton of rules” that supports the body (our vision). No extra bones (rules) in the skeleton.

This year we are working on a community covenant that will represent the heart of what we are trying to accomplish and the ways we all agree to work together to further our vision of deinstitutionalization.

For analyzing our work, we use a team-wide process called Appreciative Inquiry. I’ve used this approach for more than 15 years now in my professional work. Instead of going with the old classic, problem-solving model, we sit back and ask ourselves, “What is working well here?” “How do we do more of what we do well and spend less time on the areas where we struggle?” “How do we apply the ways we do things well to all areas of our work?”

I like this approach because it uses everyone’s experience and perspective as we look ahead. Our work is cross-cultural and ultimately effective if our local staff is leading the analysis, development, and implementation processes.

Another way we seek to avoid recreating mini-institutions is by remaining small. Small is beautiful. There are more than 100,000 people with disabilities institutionalized throughout Ukraine. It would be foolish to think we can solve this enormous social issue.

But, we can be a sign of hope, a candle in the darkness, a piece of the puzzle as Ukrainians change the future reality for people with disabilities in their country. By remaining small we can stay close to the heart of what we are trying to accomplish- the deinstitutionalization of people with disabilities. Not just removing them from a physical institution, but fighting to keep our hearts at the forefront of this work, remaining open to the cry of each of our boys to know and be known, to love and be loved.

Over the next three years, we plan to take four more people into our care and complete the final building on the homestead. After that, all our growth will be through partnerships and supporting the replication of this model of deinstitutionalization and family-centered care.

By remaining small, we can put our energy into helping other organizations and people to deinstitutionalize in their communities.

We strive to keep a simple approach that has the support of essential rules needed to function, with our focus on the heart of each person. We are creating a place where our values are not just applied to the work with our boys, but also to our coworkers and community members. Everyone is worthy of Dignity, Love, and Hope.

Staying close to this vision and not getting too big for a britches is how we plan to not only take more of our friends out of institutions but also to keep from re-institutionalizing them with our model of care.

Now, while I can’t get Kim to stop making tater-tot casseroles and listening to Joe Diffie, we haven’t been driving by that double-wide for sale down the road for a few weeks… so there’s hope. (I’m joking!)

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Back to Romaniv- Finally!

Yesterday I finally returned to Romaniv. It had been at least 7 months since I was there last and it felt like a bit of a homecoming, to be honest. Grant and I were talking about it on the way home. He said it felt strange that he felt so comfortable there. I mean, we all know that Romaniv isn’t a “comfy” place to be, but I know what he meant. It’s a comfortable place for us because it’s exactly the right place for us to be in this time and space. Romaniv, the boys there, and other people like them, stuck in institutions out in the middle of nowhere are the reason we are here. God plucked us out of our cozy American lives and plopped us down here in Ukraine, at this time, for those boys and others like them. Knowing you are in the exact place where you are meant to be is a wonderful feeling, even if that place is terrible and smelly and unjust and sad. There’s just a comfort in knowing “This is my place. These are my people.”

When Jed and I first moved to Ukraine almost 9 years ago, we knew nothing. We had no language, only a couple of acquaintances, and everything was completely foreign. Banking, shopping, transportation, communication, school, church…we knew nothing about any of it. I felt like our apartment was a little American island. Every time I exited the building I was entering another universe, and I was destined to fail in that new universe. I made mistakes all.the.time. I still do, but they’re less of a big deal these days, or maybe I’m just used to it by now 😂. I would get heart palpitations just thinking about having to approach a stranger. My perfectionistic tendency to only speak when I was confident I was saying something correctly made me a silent bystander instead of an active member of society. The only places I felt like myself was at home and then with our boys at Romaniv. Sigh, “These are my people.”

Our boys don’t have impossible expectations of us that we’ll never be able to meet. I imagine their thoughts, “Just be with me. Sit with me and hold my hand.”

Our boys don’t care if we make mistakes with the language. “Call me by my name and tell me you love me.”

Our boys don’t hold a grudge if we’ve been gone from them for seven months. “You came back! I was waiting for you!”

Our boys love us just because we are. Our relationships have been built over years and years of just being together. Not accomplishing anything that the world values, but just sitting together, singing together, being present with each other. The friendship our boys offer us is a massive gift and one I am truly thankful for today.

The Dim Hidnosti team is returning to our rhythm of spending Thursdays with our boys and I’m so glad. They need us and we need them. They ground us. They remind us of our purpose here and of what’s truly important. Lucky us, to have friends like them.

Vitya, Sasha, and Kolya (photo by Grant ☺️)

If you are new to this community you might now know much about our boys at Romaniv. Romaniv is the institution where all of the boys in our family used to live. I have written about it a lot over the years here on the blog. I’m planning to do a podcast episode about Romaniv, so if you have questions about the place, the boys there, or our work there go ahead and ask! I’ll do my best to answer.

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In Loving Memory

Two weeks ago we heard the news, but it’s taken me a while to write about it. I’m not sure if I’ll find the right words tonight, but I’ll try, because their lives deserve to be honored. They should be known and celebrated by as many people as possible, because they were valuable and wonderful and their lives mattered.

I’m so sad to share that we have lost two of our friends. Vitya and Vova, two of our dear friends from Romaniv, have died and are now with Jesus. We are just so sad. On one hand, we are thankful that they suffer no longer. We know they are now free and they have no pain, no tears, no fear. But on the other hand we mourn so deeply for what they had to endure here on earth. We mourn that they never knew the love of a family and we weep that we didn’t get them out in time. Lots of emotions- a different one each moment. I guess we all remember anew just how important this work really is.

I’d love to share about our boys, if you’d like to know them better. I want to honor their memories by sharing with as many people as I can, just how wonderful they were.


Let’s start with Vitya. 🙂 I didn’t know Vitya quite as well as I knew Vova. We spent less time together over the years because Vitya didn’t move to the Isolation Hall until the last couple years of his life, and the Isolation Hall is where our team spends the majority of our time.

Before he was moved to the Isolation Hall, Vitya was in the same group as our Anton. He was nonverbal, but he could most definitely communicate! He was really very smart. I think anyone who visited Romaniv with us will remember Vitya. He was always ready with a handshake or a hug. When he smiled his eyes would close soooooo tightly! Vitya loved to dance and when we did our weekly dance class, back in the day, he was in absolute heaven. He had big emotions and was either very happy, or very sad, but his face showed it all. Vitya loved to pray. Any time we were going to have snack, or anytime a class ended, Vitya made certain that we stopped to pray. I will always remember that about him.

A couple of years ago Vitya was diagnosed with an inoperable brain tumor, and as his symptoms progressed he was moved to the Isolation Hall. He would fall often and just didn’t understand how to keep himself safe. We really saw him decline before quarantine. It is good and right that he is suffering no longer. But oh, we loved our Vitya and will miss his smiling face and tight hugs. I really can’t imagine Romaniv without him. He was a star and our team will never, ever forget him.

And now on to our precious Vova. Deep sigh.

I can’t help but cry as I write this. It’s heartbreaking to know that our Vova is gone. He is with Jesus, and I’m so so happy that he is free and safe and loved. We all feel that joy. But Vova’s death is a tremendous loss to our team. We planned that he would be the first to move into the second side of the duplex. We dreamed of his future as a part of our big Wide Awake Family. We imagined how he would grow and change and thrive. We wondered how he would transition and if he would maybe ever speak. We fully intended to set him free here on earth, but it will never be. He left us before we could show him that love and our heart break because of it.

I remember the first time Jed and I ever saw Vova. It was when we visited Romaniv in the spring of 2012. We were in Ukraine for the first time, scouting it out and listening for how God would have us respond to this great need, this great injustice. We visited Romaniv with Mission to Ukraine and knew at once that those boys were our people. That first visit was a bit overwhelming, but Jed and I both remembered Vova. He stood out to us because he was in such terrible condition. I’ll be honest that my first emotion upon seeing him, was fear. He was self-harming and blood was running down the side of his face. He was groaning and rocking, fiercely avoiding all human contact. He was just existing, cast away by society. His days consisted of rocking, and searching for string to swirl between his fingers.

I remember his sounds and I remember my fear. But that was not the Vova we eventually came to know. That was just a shell of a man. Our Vova had a deep laugh and an infectious smile. If you could get Vova to smile, then your day was made. Our Vova was curious. He didn’t always love to be touched and he didn’t always love to interact, but I think I can safely say that by the end of his life he had learned that some humans could be loving and good and safe. I pray that he knew he was loved by us. I know that I know that Vova knew he was loved by God. I just have to trust God’s faithfulness on that one. He promised to be a father to the fatherless, so I trust that Vova felt and knew that love. To be honest, that’s a leap of faith because Vova died from something preventable and treatable. He lived a life of abuse and neglect and in a way, he never even got to begin living. I find myself asking God a lot of questions, but in the end I choose to trust that he was near to Vova in ways we couldn’t see.

Our team visited and loved Vova for 6 years, and during 4 of those years the interns were also working closely with him on developing functional skills. It seems to us that out of all the boys in the Isolation he is one of the ones who benefited the most from that time of relationship. He really did change over time. It’s beautiful to look back through pictures and see the change in him.

The loss of Vova was a big shock to our team and we mourn him because he was loved. We will miss our friend. We are honored and thankful that we were able to know him and be witnesses to his life. As we start to bring more boys into the duplex we will remember our friend and our great love for him. His life mattered. You were loved, our Vova. You mattered to us. I’m sorry we couldn’t get to you fast enough. We will never forget you.

I’ll leave you with Vova’s laugh. This is how we want to remember our friend. Happy, curious, and gentle. Precious, and of immense value.

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My Joy

I remember the first time Jed and I ever visited Romaniv. It was in the spring of 2012 and we were in Ukraine just checking out what God had for us here. We thought we wanted to work with institutionalized people here, but we had never even been here! We knew zero language, pretty much zero about the culture and had never stepped foot in an institution. We were clueless, but we just wanted to follow Jesus and we knew He had something for us in Ukraine.

I remember we walked into Romaniv and were instantly surrounded by men. They were grabbing my hair, stroking our arms, taking our hands. The smells and sounds were completely overwhelming. But I distinctly remember catching Jed’s eye though the mob and both of us having this sense like “Yep, this is it. This is where we’re supposed to be.” We didn’t necessarily know that Romaniv was the place for us to be, but we definitely knew that we were supposed to be in close proximity and close relationship with the vulnerable and the broken.

Fast-forward 7 years and here we are, livin’ the dream in our Ukrainian village. 🙂

For the past couple of years my focus has had to be less and less on Romaniv, and the boys in the institution, and more and more here, at the Homestead with the boys in our home. I went to Romaniv at least once a week from the time we moved here until the fall of 2017 when I was more advanced in my (surprise!) pregnancy with Evie and it just didn’t feel safe to be there with a big belly. Plus, the terrible roads made my uterus very unhappy. 😉 I have visited some, over the past two years, but it has been infrequent and the visits have been too short for my liking.

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Then after Evie was born I still really couldn’t be at Romaniv because she was nursing and I couldn’t leave her for long enough periods of time to get there and back and to be able to have any time with the boys. We had Boris with us too, and I was simply needed at home. Then enter Ruslan and Anton and our lives were turned completely on their heads. Suffice to say, We’ve been rather busy. Oy.

During that time while I’ve been absent our awesome interns and our wonderful Vika have been serving as faithfully as ever, loving and serving the boys. Of course Jed has gone too, as time has allowed.

We always knew that the more boys we brought here, to the Homestead, the more our attention would need to shift toward home. There is just no way to be in both places at once. But man, we have missed our boys. We knew they were being well-loved by our team, but we have missed our friends.

That’s why I’m so so happy to say that I’ve recently been freed up to go regularly with our interns Romaniv! Vika has been overseeing the interns for the past three years and has been a wonderful leader and mentor for them. But over the past several months she has taken more and more of the lead on caring for Preston and at this point it is better for her and for him if she is able to focus solely on caring for him until his adoptive parents arrive. We want her to be able to give her best to Preston and not feel pulled in too many directions. So, for the time being, I get the privilege of working with our interns!

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Every other week I will go with them and spend the whole day with them as they work with the boys in the Isolation Hall. My role is basically to support them in any way I can. I’ll make sure they have everything they need, help liaison between them and administration, and mostly just be a supportive presence so that they know they are not alone in this difficult work. I’ve already gone twice with them and I’m JUST SO HAPPY!!!!

I’m so THANKFUL to get to spend time with the boys I love.

I’m so THANKFUL that Jed is behind this and is supporting me in this time away.

I’m so THANKFUL that Evie is a trooper and loves her brothers and sisters and daddy so much that she is okay without Mommy for a day.

A part of me that has had to lie dormant for a while is being brought back to life and it feels good and right to be there. Of course Romaniv is never going to be a comfy place or a ” nice” place to be, but it is one of the few places here in Ukraine where I feel completely myself. If you really think about it, the friendships we have there with our boys, some of the nannies, and administration are some of our oldest relationships here in Ukraine! We knew our boys before we knew our team! Sitting with them and just being with them, without distraction, without laundry to tend to or phone calls to make or meals to cook is a gift and I am not taking it for granted.

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Another gift that comes with going regularly to Romaniv is that the visits renew my empathy and compassion for the guys living in our home. When I am reminded, face to face, of where our guys came from I can see with fresh eyes just how far they’ve come. When I come home from a day at Romaniv I’m so full of gratitude that Vladik, Boris, Ruslan and Anton are safe at home and not back in that place. It also renews my purpose and passion to get the others out as soon as possible.

So, expect to see more of our Romaniv boys in this space in the coming months. I bet you’ve missed them too!

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FAMILY FOUND! + An Encouragement

Yes, it’s true. A family has committed to adopting Preston!

WAHOOOOOOOOOOOOOOOOOOOOO! So many tears and cheers around here!

Thank you to every single one of you who donated to his adoption grant and shared his face with the world. His mommy and daddy found him via social media, so sharing does work! They are a family who have been around the special needs adoption world for a while now, advocating and supporting other families. Now their time has come, and I’m super glad about it.

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So many of you have asked how best to support Preston, and now his family and I can tell you that there are two BIG ways you can help.

  1.  Pray. If you are a person who prays, please pray for Preston’s family to be able to move through the adoption paperwork with lightning speed. Pray that no roadblocks get in their way so they can get to their boy before he is moved.
  2. Donate. The biggest obstacle to this adoption happening in a timely manner is MONEY. Adoption is sooooo expensive and this family needs our financial support to help them move along quickly. They have decided to commit their lives to Preston. In that commitment, they have agreed to all the costs that come with adding a new member to the family: emotional, physical, and financial. Let’s be real, it’s expensive to care for a child with significant special needs. Their adoption journey with Preston will continue on for the rest of his life, and so will the financial aspects of it. I would just love to bless them in this part of their journey. I would love money to not be an obstacle at all in bringing him home. Follow this link to give a tax-deductible donation to the family’s adoption fund: https://reecesrainbow.org/129794/sponsorrichardson2

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I know many of you were touched deeply by Preston and his story. He is a very special boy who is destined for great things. Many of you expressed to me your desire and willingness to be his family, and for that I thank you. Thank you for opening your hearts.

I know there are some happy, yet broken hearts out there, mommies and daddies who hoped Preston would be theirs. I want to tell you that I know exactly how you feel. Our journey to our life here in Ukraine started out in that exact way. We committed to adopting a boy in Ukraine, and gave our whole hearts to him in the process, but another family adopted him before we could get there. We were happy for him, that he wouldn’t have to wait for us to have the mommy and daddy that he so needed, but at the same time we were absolutely crushed. How could we have such love for a child and then have it turn out that he was not meant for our family? It was a difficult and confusing time. I wrote about it here. 

Long story short, God used that little boy in southern Ukraine who was never meant to be our son, to turn our hearts in the direction of Ukraine, in the direction of our future. God spoke to Jed so clearly in that time,

“Jed, I am so much more interested in the process than in the end result.  You have one end result in mind, but I’m taking you on a journey.  I needed you to love that boy like a father.  I needed you to love him with abandon.  I needed you to have that father’s heart for him because I need you to love lots of little boys and girls like him.”

I believe that is the current storyline for some of you. Preston as your son was not the end result God had in mind when He grabbed your heart, but instead He is using Preston’s story to start you on a journey. If that is the case, please don’t stop. Keep moving forward. Stay in a posture of YES. Do not be discouraged. Do not harden your heart. Do not simply move on. Quiet your heart and ask the Lord what He would have you to do next because I guarantee there is a reason your heart was so touched. Our end result is us in Ukraine with a houseful of broken and beautiful men so in need of love and healing. Your end result may not be the same (If it is, come on over! We could use some help over here! Haha), but it may be the adoption of a different child, or foster care, or advocacy. This gut-wrenching, pit of your stomach, can’t eat, too many tears, broken and open heart are unto something. So don’t miss it. These times of prompting from the Lord can be game-changers.

If you need some encouragement (and you have a few spare hours…hehe) go back and read the beginnings of this blog. You’ll see how we had no idea what we were in for, but we just wanted to say YES to Jesus. It has been a wild ride, but I don’t regret one second of it. Not that we’ve got it all figured out by any means! But we have walked the road of disappointment that led to great great joy.

I promise to keep you all updated on Preston and his family’s adoption journey! So stay tuned!

BeLOVE[d]

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PRESTON: An Update + Video

Update 4/15: An adoptive family has stepped forward for Preston! They are currently compiling their adoption dossier as quickly as possible. If you would like to donate to their adoption fund follow this link: https://reecesrainbow.org/129794/sponsorrichardson2

THANK YOU to every one of you who has shared Preston’s story with the world. As of today more than 40,000 people have viewed the blog post about his urgent need for a family.

Please keep sharing! So far no one has stepped up for Preston. There have been many, many inquiries by email, Facebook and Instagram, but no one has taken the leap.

I can not emphasize enough that this is a race against time. A family must step up NOW. If you are one of those interested families, I’m sorry to rush you…but hurry up! 🙂

Certain questions about Preston have been asked several times, so I will answer them here.

Why can’t Preston’s current family adopt him? There is no doubt that Preston’s current caregivers love him immensely. They adore him and he is a genuine member of the family. They also went into this committing to care for him for one year, and now have passed the two year mark. They never took Preston in with the plans to keep him forever. His current family saved his life. They nursed him back to life and have sacrificed SO MUCH because of their great love for him. Their hearts will break to see him go. But they are not, and have never been, his permanent plan.

  1. Much like in the US, after a certain length of time in transition, a child’s case must move to a permanency plan. Preston’s time in transition has run out. His permanency plan is adoption- either domestic or international. He can not legally stay in his current situation.
  2. Ukraine does not allow single parent adoptions. He currently lives with a single woman and her adult daughter. Neither of them are legally allowed to adopt him.
  3. Both members of his current family have expressed more than once that they believe Preston would do best with a father in the family. He lights up around men and you can see he longs for that relationship that a father can provide. His current home can not provide that for him.

How can it be best for Preston to leave his country, culture and language and be adopted internationally? This is a question that is not easily answered in one paragraph of a blog post. So, so much in that question.

For sure, bringing Preston out of Ukraine into a family culture and language that is completely foreign to him will be very difficult for him. FOR SURE. There is no denying it. I am a huge advocate of keeping kids in their home culture whenever possible. The USA and other Western countries are wonderful and have many amazing resources that we do not have access to further east, but I definitely do not believe that the USA and other Western countries are the best place for every child.

So why do I advocate for Preston to be adopted out of Ukraine?

  1. I advocate for that because no one in Ukraine has stepped forward for him.
  2. Preston would greatly benefit from medical resources (therapy, medications) that are simply not available yet in Ukraine. He has so much potential, but lack of consistent therapy and doctors up-to-date on the latest in helping children with CP hold him back significantly. His CP is basically untreated at this point.
  3. He is a very smart boy, but Ukraine does not have special education, so he is unable to attend school. This breaks my heart because I KNOW he is so capable. There are no resources here for home education- least of all education of a child with any special needs.

We love Ukraine. Heck, we moved our entire family here, permanently. I am not some random person who is not personally invested into this country and her people. We have given our lives to being sparks of change here. So let’s get that straight: I love Ukrainian people. I am committed to Ukraine. I also am raising children and adults with significant special needs here in Ukraine and I face every day what it means to live with people in a culture that does not accept them. Change is coming slowly, but it is extremely difficult to  live in Ukraine with people with special needs. I’m not just talking about lack of accessibility, which is a big problem, I’m talking about the attitude of the society as a whole. Life here is an uphill battle for our guys every day and I’m not going to pretend that life would necessarily be better for Preston here.

If a child with special needs is born into a Ukrainian family that love him and is ready to fight for him then OF COURSE it is better for that child to stay in Ukraine with his family. That’s not even a question. On the other hand, if a child with special needs is born into a Ukrainian family that does not want him (like Preston) or feels they can not care for him and they give that child to the State, then it is in the child’s best interest for us to look as far and wide as we can until we find someone who will love and care for him.

Those are hard words to write, but it’s my love for Preston and thousands of others just like him that compels me to point at the elephant in the room and not ignore it. If Preston is not adopted he will return to the institution where he nearly died, so no, when it comes down to him losing his language or losing his life, I will not say it is best for him to stay in  Ukraine.

If you have more questions about Preston or adoption please don’t hesitate to ask! I am happy to talk with interested families.

I wrote extensively about his needs here.  You can give a tax-deductible donation to Preston’s adoption grant here.

Thank you for your continued advocacy! Please keep it up! Let’s find our boy a family.

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I know I wrote some strong words about Ukraine. Of course there are many exceptions to this and a few of them come and work at our house every day. They fight alongside us for our guys and they, and others like them, will be the ones to change their country. 

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The Lonely

Yesterday we got Anton and Ruslan’s medical histories from the institution. Oh my heart. Twenty plus years of their life, summed up in doctor’s chicken scratches on paper yellowed from time. We know the basics of how they spent the last 20 years. They sat on benches inside in the winter, and sat on benches outside in the summer. End of story. The medical files are the only hints we have of any significant life events outside bench- sitting.  They are our glimpse of our boys’ past- those, and a photo of each boy from time gone by.

My heart leapt and sank when I saw the photos. My babies! Oh my dear ones, I’m so sorry you had to wait so long. I’m so sorry you had no mama to comfort you, no papa to guide you. I’m so sorry you endured such abuse and neglect when you could not defend yourselves. You were so young, so small. My heart is broken for the little boy left at Romaniv alone and afraid.

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Ruslan, age 10

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Anton, age 16

Our life here is a full one; full of responsibilities and full of people. But our life here is also a lonely one. Our lives are completely absorbed with the care of people whom the society has thrown away. Our time, energy and love is wrapped up in people who are not accepted in this country. Our work is isolating. Couple that with language barriers and cultural difference, and then add the distance from loved ones…sometimes the loneliness of this life threatens to overwhelm.

The other night I was rocking Evie to sleep in a quiet, dark room. My thoughts were wandering and all of a sudden I was completely overwhelmed by loneliness. It washed over me like a giant ocean wave. I’d never felt anything like it. Evie wasn’t asleep, but I had to leave the room, lest my mind wander to a verrrrrrry dark place. I wept as I longed for family and friends far away. I lamented my lonely and often isolated existence in my Ukrainian village. I wished for the peer relationships with other moms that are non-existent at this time of my life when I need them so badly. If there ever was a “woe is me” moment- that was it. Not.pretty. Yikes.

I share that story not to bring pity on myself or to fill my inbox with messages from concerned friends, but to share what I am learning from it.

The feelings of loneliness I have are only the tip-tip-top of the iceberg of the loneliness our guys lived with their whole lives. In Anton, Ruslan and Boris we are seeing the effects of how 30 years of utter aloneness and helplessness shape a person. The effects are devastating. In my own loneliness, which greatly pales in comparison to the life they have known, God is granting me greater empathy and compassion for the boys I love so dearly.

I may feel alone, but-

I am surrounded by my family who love and care for me. They were abandoned by their family.

I chose this life that I’m living, and the sacrifices that come with it. They had absolutely no choice or agency in their situation. They were completely helpless. 

I have always been taught, and have always known that I was loved by God first, and also by many people. They had no one to teach them or comfort them. 

I have hope. I know that this work, this life is exactly what God has asked me to do and I trust that He will give me the grace to do it. They had no reason to hope. They lived in hell and were prisoners, innocent of any crime.

I do believe and trust that God comforted them while they were in the institution. I believe that He fathered them in ways we could not see. His word says that He is a Father to the fatherless, so I know it has to be true. At the same time, there is the reality that they were abused and neglected in every way- for decades. I can’t explain that paradox. I know both sides to be true and I guess I just won’t be able to make sense of it this side of eternity.

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Boris, age unknown

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Baby Vladik

Jean Vanier, a great man who has spent his life living with and loving people with intellectual disabilities, said “To be lonely is to feel unwanted and unloved, and therefore unloveable. Loneliness is a taste of death. No wonder some people who are desperately lonely lose themselves in mental illness or violence to forget the inner pain.”

Ruslan, Anton, Boris, Vladik. I weep over the many years they had to taste that loneliness. I look at the pictures of them as little ones and wonder at what could have been, had they not waited so long.

In Ukraine alone, there are thousands of children and adults who are helpless and alone in institutions. But it doesn’t have to be that way!

Do you have room at your table for one more? Do you have love in your heart to give? Could you reach out and give of yourself so that one more soul could know the love of a family? No child, no adult should be alone and if you have the ability to help, then by all means- do it. It really doesn’t need to be more complicated than that. If all that is standing in your way is your desire for your own comfort, then it’s time for something to change.

Adoption is messy and uncomfortable and hard. Let’s be honest, it’s so much easier to not adopt. Like 500% easier. But this life isn’t about doing what’s easier. It’s about chasing hard after Jesus and running the race full-on till the race is complete. If you are alive, then your race is not complete. If running hard after Jesus means laying down your life so that another may truly live, then just go ahead and do it. If adoption is meant to be your YES and you are still saying NO, please reconsider. Someone is waiting for your yes, and the sooner you can get to that someone the better. If adoption isn’t supposed to be a part of your race, that’s perfectly okay! Just figure out what your YES is and get busy doing it.

In this month of November, this National Adoption Month, please consider again if adoption should be your YES. Consider again how you can make space in your heart and home for the lonely. Consider laying down your life so that others may live. Say YES!

BeLOVE[d]

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In Loving Memory

I was sitting at the doctor with Vladik yesterday when I got the text.

Our sweet Dima had left this earth, gone to be with Jesus. He was twenty-seven years old and he was my love.

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Dima had been ill and away in a special hospital for the past several months.  We missed him desperately and couldn’t wait for him to get well and return to us.  He did return last month, but to our dismay he looked terrible.  He was so much worse, not at all healthy.  He was thin and yellow and just so sick.  After only a few days he was taken back to the hospital, several hours away.  He died there a couple of days ago and was buried yesterday at the cemetery in the town of Romaniv. We went to see where his body was laid, surrounded by the graves of other boys gone before him.

We are shocked and just heartbroken. It wasn’t supposed to go like this.  He was supposed to be with us. We were so excited for the day when Dima would come live with us at the homestead.  We pictured him in our family forever. He was my special boy and I just knew that someday I would get to mother him the way my heart longed to mother him.  I so desperately wanted to watch him blossom and grow and come to know the love of a family here on earth.  But, God had another plan.

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Can I tell you about my Dima?  I want as many people as possible to know him and to see him for the precious, beautiful treasure that he was.  He was amazing.

When we first started going to Romaniv we hardly noticed Dima.  He was always tied to his bed because he wasn’t able to walk and was a fall risk.  He usually looked drugged and out of it, and just wasn’t able to connect with other humans on pretty much any level.  He was like a dead person. I’ve seen an old video of him from years ago and know that he wasn’t always like that, but somewhere along the way he was lost.

In the summer of 2014 we started taking a few boys at a time to the Sensory Room to get them into a quiet environment where we could try to connect with them one-on-one.  I remember our team debating if we should even try to take Dima there.  He couldn’t walk but was long, awkward, and heavy.  One of the guys would have to carry him. Whenever we did take him there he would just sleep or zone out and it felt almost like a waste of time.  There were so few hands available, shouldn’t we be focusing on the boys who seem to enjoy our company, or at least seemed to benefit from it?

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No, no, no.  Dima had been passed over for his entire life.  Drugged and left to sit in his own excrement for hours on end, his whole life he had been cast aside.  Would we be the next in a long line of people who had passed over him and thought of him as unworthy?  NO.

So, we kept taking him to the Sensory Room. And one day that summer, a miracle happened. Nina, one of our team members, was sitting on a bean bag with Dima in the Sensory Room.  She was just sitting near him, being with him, when she picked up a little toy xylophone.  She tapped tapped it next to his ear and he sat up! He looked at Nina with wide eyes, made some sounds, and gave her the hugest smile.  Our Dima was awake! Nina was crying and laughing. In amazement, we all jumped up and ran over to see. I will never ever forget that beautiful moment.

How is it possible that after a lifetime of suffering, when Dima finally awoke, his first response was a smile?  JOY. I can’t even comprehend it.

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Over the next two years, we had the awesome privilege of watching Dima come more and more alive.  He still had many days when his mind was somewhere else, not wanting to, or not able to engage with us, but he also had many days when he was funny and smiley and would babble your ear off.  We all absolutely adored him. He learned to say “banana” and “Lala” (the Ukrainian word for a doll). Roma, one of our team members had a special love for Dima and was working to teach him to feed himself independently.  Every time he was at Romaniv, Roma would make sure to pick up Dima and get him out of his bed.  He would cuddle him on the couch and just enjoy being near him.  Our baby.

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I know that our grieving and mourning is more about us than about Dima.  He is finally free.  He’s definitely not grieving and he knows no pain.  He is made whole.  He can run! He can speak! He is healed and right now he knows the great love of the Father better than we can even begin to comprehend.

Still, we grieve.  We miss our friend and we always will.  My heart aches for the suffering he had to endure in this life.  I wonder if he was alone when he died?  Did he suffer?  Was he in pain? Did anyone at that hospital far away truly care for him?  Was he treated well?  Did anyone see him for the treasure he was? My heart longed to show him every day that he was loved, even adored.  I dreamed of how much he would blossom in the love of a family.  I so wanted him to experience that joy and peace here on earth. Why was so much of his life spent waiting for life to begin?  It’s hard to trust God’s ways in times like this.

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But then I remember his joy that day, years ago in the Sensory Room. For many years humans had not been a positive thing in Dima’s life.  Humans had hurt him and neglected him and cast him aside.  But when awakened and faced with humans- he smiled.  The only way that was possible was if God was near to him in a way that we couldn’t see. God promises in His Word to be a Father to the Fatherless, and we have to trust that He keeps his Word. We have to trust that God showed his love to Dima in the deepest places of his mind and soul. We have to trust that even if he seemed to live this life so alone and abandoned, his Father in heaven never left his side, even for one second.

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It was the joy of the Lord that brought a smile to Dima’s face.

It was the peace of God that followed him when he traveled to the hospital far away.

And it was the goodness of God that allowed his suffering to end.

We will never forget our precious Dima.  We will miss him forever.  But may we never ever forget his joy in unimaginable circumstances.  Please, learn from his life. Choose joy today.

Precious Dima, you were loved.  You were treasured.  You were longed for and wanted. We saw your beauty and we will never be the same because of you.

Run free, my love.

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Introducing…Interns!

The vision of Wide Awake is to bring dignity, love, and hope to people with disabilities in Ukraine.”

If you’ve hung around here for a while you know that our big, God-size dream is to open small group homes for our boys to live out their days.  The dream is to remove the boys from their horrible reality and insert them into safe, loving, warm environments where they can get all the love and help they need for the rest of their lives.  They will play and receive therapy and sleep in soft, warm beds.  They will be surrounded by music and laughter.  If they are able to work they will garden and care for animals and work with their hands.  Our boys need occupation.  They need to contribute to the world around them.  It brings meaning to their lives.  The dream is for them to be IN the city, not hidden away from society.  The dream is for them to have the opportunity to become all that God has created them to be, surrounded by people who love them, treasure them, and believe in them. 
We’ve got big dreams around here. We’re dreaming big, believing that God has great futures in mind for our boys.

We will not believe that God’s best for them is to lay in bed 24 hours a day, seven days a week, staring at blank walls. We will not believe that spending the next 20 years rocking back and forth on a bench is God’s hope for their future.
We know God wants more for our boys and we know that He uses people as his hands and feet in the world.

Last year it became apparent that less money needed to be spent improving the physical living conditions of the boys, and more money needed to be spent placing loving, consistent people in their lives.  To answer that need, through a three-way partnership with Hands of Hope (funded by their child-sponsorship program), Mission to Ukraine (local non-profit acting as fiscal agent), and Wide Awake (hiring and training) we were able to hire two full-time teachers who teach the bigger boys Monday through Friday.  That need is also being answered by an increase in the amount of time our team spends with the boys each week.  Since last spring there have been teams going to visit the boys 3 days a week.  The team has grown in number and in love.  It is a truly beautiful thing.

Now I am so very happy to report that the need is being answered in yet another way.  INTERNS!

Tanya, Mira, and Maxim

Our family attends a wonderful church in Zhytomyr: Христианской Молодежной Церкви (Christian Youth Church).  Youth Church is our family in Ukraine.  God has done a wonderful thing in partnering us together.  Almost all of our team comes from Youth Church, and Wide Awake gave Youth Church a grant to carry on the work of bringing teams to the boys while our family is here in the US.  Youth Church has done a FANTASTIC job of growing the team, and now the work in Romaniv has become an official ministry of our church!  Vika, the team leader for Romaniv, has just rocked it.  We are so proud of her and the whole team and are honored to call Youth Church our Ukrainian home. 🙂

Youth Church, in partnership with Wide Awake, is now sending three interns to Romaniv three days a week!  The interns were picked from our team.  Maxim, Tanya, and Mira have been volunteering at Romaniv since October 2014.  They have been faithful, loving, extremely dedicated, and committed to the boys.  This is not a project for them.  This is their love.  The three interns are university students who are doing this paid internship in addition to their schooling.  They will be with the boys for six hours, three days a week, and are an answer to prayer.  Jed began their training when he was in Ukraine in October, and then our dear friend Olya, an OT, continued their training when Jed came back to the US.  Thank you to Salem Vineyard, our sending church in Oregon, whose child-sponsorship helps to pay for this exciting new venture!

Yesterday was their first day on the job and we are all so excited!  Maxim, Tanya, and Mira’s focus is on the boys in the Isolation Hall, since the teachers are not working with those boys.  They have divided the Isolation boys up between themselves and will each work with the same boys every day they are there.  They are beginning with performing functional assessments on each boy and then setting individual goals for the development of each boy.  Their work is more focused and therapeutic because they have the ability to give their time and attention to the same boys each day.



We are looking forward to awesome results!  Even just their consistent, positive presence is life-changing for our friends.

Do you know what that means?  That means that between our teams and the interns, we have loving, energetic, amazing youth spending time with the boys SIX DAYS A WEEK!!!!!!  Freaking out excited!!!!!  That’s not even counting the teachers who are there Monday through Friday and teams who visit from other churches.  PRAISE GOD!

I remember back to the spring of 2014 when Jed and I decided to start going to Romaniv on a second day each week. It was just the two of us going to Romaniv alone, asking God to bring more help…and now this.  God is so amazingly faithful.

We believe that all of this loving presence is preparing the boys for the lives of freedom that await them.

Soon my Friends, soon you will be free. But in the meantime, I hope you can see how many people love you so dearly.

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Indiana Adventures

I gotta tell ya, we just had the most encouraging week!  

I’ve written before about Hands of Hope, our fabulous partners in Indiana.  Hands of Hope provides awesome support to adoptive and foster families in Indiana, and they also do great orphan care through child sponsorship.  Through the Hands of Hope Romaniv sponsorship we are able to bring fresh fruit to the boys three days a week, pay the salary of two teachers who are working full-time to teach the boys, and more.  Hands of Hope is an immense help in bringing greater quality of life to our boys.  Because Hands of Hope pays for much of the work that is done at Romaniv now, Wide Awake is able to put funds away to prepare for the future: group homes instead of institutionalization.  

Their partnership and investment into our boys is priceless. 

This past Tuesday Jed, Vladik, and I were able to fly to Indiana to spend some time with the Hands of Hope peeps and talk a whole lot about the boys we adore so much.  It was a fast and fabulous trip!  Jed flew in from Ukraine on Monday and we flew out to Indiana on Tuesday morning.  At this point I’m pretty sure Jed could go 10 years without stepping foot on another airplane and be pretty happy with that. 

   

 

On Tuesday night we got to spend the evening with some lovely people who sponsor sweet Boris and Zhenya.  And then on Wednesday night there was an open house for “Friends of Romaniv”.  Basically sponsors and any and everyone who loves our boys could come and just hear about what’s happening at Romaniv and how they can pray.  It was beautiful.  Many of the people who came Wednesday evening have visited Romaniv before and dearly love the boys.  We always love talking about our sweeties, but talking about them to a room full of people who have loved them for years (in many cases before we even knew they existed!) takes it to a whole new level.  Love-fest level!  🙂 

The highlight of our Wednesday was a lovely young lady named Renee.  Renee visited Romaniv on a mission trip when she was 16 years old.  She fell in love with Vladik on that trip, came home and became his sponsor through Hands of Hope.  Renee prayed and prayed over the years that Vladik would find a family.  She LOVED our son before we did.  Well, now Renee goes to college in Kentucky.  She found out Vladik was going to be in Indiana and drove over 3 hours to come and see him in person.  

  
 

What a special reunion.  Vladik was clueless of the importance of that night, but someday he’ll understand.  

Thursday night was just beautiful.  Hands of Hope had an event called “Sip and Savor”.  It was so classy!  Free lattes and people walking around with trays of cheesecake?  Yes, please.  🙂  

The three main focuses of Hands of Hope were presented at the event: Orphan Care (child sponsorship), Foster Care support, and Adoption.  Jed and I did the presentation about adoption because we received a matching grant for our adoption through Hands of Hope.  THANK YOU!!!!!  It was doubly special because Vladik was the first Hands of Hope sponsor child to be adopted.  Cool, eh?  I say hopefully the first of many! 

Man, it was just wonderful to be in a room full of people passionate about caring for the orphan.  There are so many different ways to say YES and hearing about all the ways people can say YES by partnering with Hands of Hope is just rad.  It’s the real deal.  

  
 
  

Besides those official meetings, we just had plenty of time to drink coffee and eat yummy food with our friends.  All of these friends we met in Ukraine at one time or another through Hands of Hope, World Next Door, or Mission to Ukraine.  They were all so happy to see Vladik in a family and we were so blessed to spend time with people who know our boys and our friends in Ukraine and love them.  Common hearts + coffee + cozy couches = a whole lotta good times.  We got to stay with our friends Christopher and Lois and it was seriously like a vacation.  They spoiled the heck out of us.  SO FUN!   

  

God has blessed us so much with this partnership with Hands of Hope.  Again, we are just amazed at God’s love for the boys.  How is it, why is it that He has drawn so many hearts to this one institution in the middle of nowhere Ukraine?  We believe it’s because God has something very special for our boys.  He has been drawing them out of darkness into light for such a time as this.  I’m just thankful we get to be a part of His unfolding plan.  

To God be ALL the glory for the GREAT things He has done!

  

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