It’s Story Time. 🙂 This story doesn’t have an ending yet. It’s ongoing, but the outcome is looking very promising.

Back in July, we were out working in the garden when we got a call from the Director at Romaniv. He had a mother with him in his office at the institution, and she wanted to give up her adult son. Because of COVID and institution restructuring, they weren’t accepting any new boys at that time. But, the mother was at her wits end, so he called us. He asked if she could come to our house and talk to us about her options.

An hour later we met one brave mama.

Have you ever wondered what kind of parent would willingly leave their child in a terrible place like Romaniv? Have you ever said the words “How could they? I would never ever.”

I have. I have wondered and I have judged and I have said “I would never ever.” But I’ll tell you what, it’s only by the grace of God that I have never. I used to judge those parents, and I judged them harshly. But, that was before I better understood their circumstances. Now I realize that if not for Jesus and the outrageously privileged circumstances into which I was brought up, it could be me. It could be you.

I would never condone a parent leaving their child in an institution. Never. I’m not saying I agree with the practice. Please don’t read that. What I am saying, is that in a country like Ukraine, with absolutely zero safety net for families with children with special needs, sometimes it seems they have little choice. Add in the fact that most of these families don’t know Jesus, are living in poverty, and are in a culture that absolutely does not value their child, – and calling their circumstances an “uphill battle” is putting it insanely mildly.

Take that mama who came to our house on that July day as an example. She is a single mama of 2. She and her husband are separated and he is not involved at all. Her older son, Siri, is 23 and has an intellectual disability. He also has some mental health issues for which she has found zero help from doctors. Siri used to attend a boarding school for children with special needs, and he was happy there. Then, when he turned 20 and aged out of that program she had nowhere else to turn to for help. Siri, a social guy who was used to spending lots of time with peers, was suddenly home alone all day in an apartment while mom had to work. He really isn’t safe to be home alone, but what other option was there? With no extended family willing to help, and no programs offering assistance of any kind, the family was forced into an extremely unsafe situation.

After many months of being home alone all day, trapped in an apartment, Siri began to decline. He stopped using the toilet, stopped feeding himself, and eventually stopped talking. This young man who used to thrive in the company of others, who could even read and write, was now dependent on his mother to (literally) run home every three hours to feed him, change him, and make sure he was okay, before locking him back inside for his own safety. Then an already impossible situation became even more difficult when Siri became aggressive and explosive. COVID forced his younger brother to learn from home, and the two boys at home alone all day was just absolutely not sustainable. But still, what could mom do? She was 100% on her own with no support and no help. In order to keep her younger son safe she felt she had to put Siri in an institution. This hero mama who had raised her son alone for 23 years was at the end or her rope.

It seems like a nearly impossible thing, to raise a child with special needs, alone, in a culture that has some built-in supports like Medicare and public schooling. But it is a whole other beast to raise a child like Siri alone in Ukraine. This society says our boys have no value. Finding appropriate medical care for them is daunting and nearly impossible (no exaggeration). The government gives zero help, and even walking down the street is a constant reminder that this culture will only accommodate the able-bodied and independently-capable. I find raising our boys here a super difficult task- and I have a whole team of help!!! I remember how scared we were when Anton became aggressive toward our kids. I had Jed there to help me- and it was still scary and confusing. We felt so helpless. I can’t fathom the hopelessness and fear that this mom has felt. Whichever decision she made, it was like she was choosing one child over another. Hers was 100% a lose-lose situation.

After meeting with mom on that hot July day, we spoke with our team about how God might be asking us to step in and help. Mom was still pretty determined to place Siri in the institution, but was agreeable to our help while she waited for a spot to open up for him. We started including him in our weekly art class and group activities on Fridays. He was withdrawn and shy, but his mom seemed mostly happy for him to have the outlet.

Over the past several months we have watched Siri change into a different person. It’s actually pretty incredible. We are starting to see the boy he probably was when he was in school. He has slowly learned that our team and our boys are a safe place for him. He has begun to dance, to sing, to hug. He has a light in his eyes when everyone is all together. He has found his people. It’s not all unicorns and rainbows. There have still been some pretty rough times at home, but, thankfully, they are countered with good times- times of growth and happiness.

A few days ago Mom called Tanya, our teacher, and told her that a place had opened up for Siri at an institution in our region. She was on her way to check it out. She had only a few days to make a decision as to whether she would place him there, or the spot would go to someone else. Tanya was at our house when she called. We stopped and prayed. We asked our team to stop, wherever they were in the city, and pray. So many people all over the world were praying! We cried out to God to intervene. We asked for his mercy over this family. We asked for His will to be done. After the visit, Mom had a lot to think about. She didn’t want to talk to anyone, and we just waited and prayed. Then, finally, when our team was all together at the mountains Tanya got a phone call from her. She had decided to turn down the placement. Siri would stay home with her! Praise God. A few of us might have cried tears of relief. 😉

Now comes the road of figuring out how to help mom keep her son for the long haul. Now is the time to figure out how to make their living situation sustainable and safe for all. Now, more than ever, we need God’s wisdom for how to hold this mama’s arms up.

Would you pray with us for Siri and his mama and brother? Pray that God gives this hero mama strength. Pray that she would come to know Jesus and his never-ending love. Pray for our team, that we would have wisdom about the best way to help this little fam. Thank you!

We made this video back in 2014 to introduce people to our friend. Now we are his legal guardians and he lives with us! Watching this video brings tears to my eyes. Boris has come so far.

Her heart pounded in her chest and her stomach churned as the van turned onto the gravel road lined with trees.

Two weeks earlier she and he had left their four small children and flew all the way across the world to visit that place. They had heard the stories and knew deep in their souls that they were supposed to DO something about the injustices being done in that place and others like it.

She had cried countless tears over the past year as she washed dishes and changed diapers and swept the floor in suburban America. Her heart was broken for the helpless ones who were trapped in their suffering with no future, no hope. Though she had never met them, in her heart she already loved them. Her mama heart ached to hold them and make everything better.

The van pulled up to a gate and stopped. They stepped out of the van and instantly she heard them. She heard the sounds of the ones she had dreamed of and longed to know. The yelling, the moaning, the cries of excitement intensified- visitors had arrived!

She and he walked hand in hand down the sidewalk of the institution and the noises became louder. She saw curious faces peeking through windows and her heart skipped a beat. Would her heart deny her? Would her body betray her? Would all their preparations and prayers leave them reeling in the depth of their naivety? What if they met the boys face to face and wanted to run away from them instead of embracing them? What if this was not the YES they had hoped it would be?

But then a door opened and she was among them, punched in the gut by the smells and the sounds; all five senses assaulted in an instant.

As she and he were swarmed by faces and hands and bodies, fear melted away and her heart became alive. In that moment she realized that her soul had been longing for those souls in front of her. Her hands were covered in their saliva and their scent, and yet she couldn’t contain the joy and the “rightness” she felt in that moment. She glanced in his direction and their eyes met. He gave a slight nod, yes, he felt it too.

This was what they were put on the earth to do. These were their people. This was their path.

______________

That first day at Romaniv will forever burn in my memory. I met my boys that day. I met my future that day. I loved them instantly and fiercely that day and I promised myself I would fight endlessly for them. It was a naive love, most definitely, but it was true.

Mama Bear awoke that day. Circumstances and disappointments have made her cower in her cave these last months, afraid to love them like she did before. Living with them was harder than she imagined it would be. In the midst of their overwhelming trauma, her love has not been enough. Their hearts are like bottomless pits that can never be filled. No amount of her love will ever be enough. So she cowers in her cave, afraid to give more, afraid to bring more boys to freedom because of the damage, pain and disappointment that is sure to follow.

But she can not fight for them from her cave. She can not fight for them and remain safe from pain. To love them is to feel their pain and to walk with them through it, even if that walk takes forever.

I am their Mama and I will not be afraid.

In the last blog post “A Call to a Small Life” we hinted at the soon-to-be-revealed job descriptions. The time is come!

Below is the Role Description for “Live-In Assistants” for the new duplex.

We are actively seeking individuals, couples, or families to live in community with us, our boys, and the ones we have yet to bring out of the institution. We are looking for a commitment of at least one year after a successful 90-day trial period. An openness to a longer commitment would be amazing, but is not required.

We are seeking foreigners and Ukrainians to grow this community together. 

Because of the nature of this work and the experience we have had thus far with the deinstitutionalization of our boys, we are not currently open to families with small children living in the home. If you have small children and are interested in joining our team we definitely have a need for “Live-Out” assistants as well. So, please inquire by email if that interests you. kjohnson@wideawakeinternational.org 

____________________________________

Live-In Assistant Job Description

Live-In Assistants are people who choose to live in a Wide Awake International home with adults who have intellectual and possibly physical disabilities, the “core members” of the community. Assistants share life, laughter, and friendship with the core members. Assistants provide skilled direct care supports to core members, ensure their safety and well-being, and support their integrated participation in all aspects of daily life. They are committed to mutual relationships with core members and other assistants in which all parties are recognized as having something to share with the others.

Live-In assistants participate in community prayer, retreats, trainings and celebrations.

To apply:

• Please read the job description and qualifications below

• Contact Kim Johnson for an application at kjohnson@wideawakeinternational.org

Live-In Caregiving Assistant Purpose: Assistants accompany and assist core members in their activities of daily life: creating home and supporting core members in sharing their gifts within the house and the larger community.

Responsibilities relating to:

Community Development

• Uphold and share the vision and hope of the community and maintain the simple life style of the community

• Help extend warm welcome to visitors, including community members, families, neighbors, and merchants

• Encourage households members to develop and nurture friendships within, and especially outside the community

• Attend team and community meetings, community nights, and community activities.

• Help plan celebrations for birthdays, anniversaries, and days of special importance to household members

• Accept community mentoring from more experienced community members

Core Members 

• Develop caring and loving interpersonal relationships. The most important aspect of the “living with” spirit of Wide Awake is that of fostering relationships.This area calls forth both the assistant and the core member in their personal growth, as well as the growth of the community. It is a process of discovering one’s own gifts and helping the other to find theirs.

• Carry out core member training programs where applicable and teach skills needed to be learned (personal hygiene, personal appearance, laundry, room management, household cleaning, cooking, budgeting, job skills, shopping skills, appropriate behavior)

• Help core members to look at alternatives, anticipate consequences, make decisions, and accept responsibility for their actions

• Listen to and respect the desires of the core members.

Home Management/Administration

• Assume responsibility for the health, safety, and care of core members

• Do assigned housekeeping chores and take initiative to keep house (inside and out) clean and in repair. Assist core members with their chores if needed. Aid in motivating core members to complete needed tasks

• Plan and prepare balanced meals. Assist core members to help cook and prepare meals.

• Maintain and operates house vehicles in a safe manner

• Maintain accurate financial records of core member and house money

• Be conscious of budgeting and keep within house and community budgets

• Take initiative, be resourceful and creative, think out problems, be willing to use own judgment when deemed necessary

Spiritual Life

• Support the community and carry in prayer the homes, each member of the community, their families, friends, and concerns

• Maintain and respect the home as a Christian home in terms of values and prayer. Encourage prayer in the home and in the community with assistants and core members.

• Respect days of worship. Attend with core members their choice and place of worship.

• Share faith life with the community. Be responsible for communicating needs and meeting personal worship needs.

Qualifications

• Interest in living in a faith community founded on the Beatitudes (Matthew 5)

• Minimum age of 18 years

• Desire to work with individuals with disabilities (Experience with people with disabilities is not a requirement)

• Creativity, flexibility, attention to detail, and ability to organize time

• Commitment to living in the community for at least 1 year after a successful 90-day trial period

• Verbal and written communication skills

• Physical ability, with reasonable accommodation, to fulfill role responsibilities, including ability to transfer adults from wheelchairs to vehicles, beds, etc. and to lift wheelchairs into and out of vehicles

• Ability to work as part of a team

Other Details:

• Assistants are responsible for funding their own way to and from Ukraine

• After a successful 90-day trial period, assistants are responsible for the costs related to obtaining a visa and temporary residency in Ukraine. Wide Awake International will assist with the legal process in obtaining residency

• Food and lodging will be provided by Wide Awake International

• Assistants will be responsible for providing for their own toiletries, food needs beyond the community meals, and personal spending money

You can also find this role description on our website: http://wideawakeinternational.org/volunteer

Much of our language, like “assistant” and “core member”, and some wording for the role description was adopted from an organization with a lot more experience than us. Thank you, L’Arche Communities, for paving a beautiful path of dignity for us to follow.

January ended up being a pretty great month. To start with, Jed’s mom brought Vladik home to us. Yay! Then she stayed for a month to spend time with us and help with the kids so Jed and I could go to the Vineyard UK National Conference in Nottingham. One of our partner churches flew us out there for the conference and a few days of rest and man oh man, we didn’t even know how much we needed it until we were in it.

When you’re knee deep in a project or work it’s helpful to get away and regain some perspective. We’ve been neck deep for the past year and a half, so our perspective in some areas was severely lacking. Time away spent with friends who love us and speak into our lives was a precious treasure that came just at the right time. I’m so thankful we had that opportunity.

While we were away we had good news and not so good news. The good news was, our precious “Preston” flew home to Indiana with his new family to begin his new life! The bad news was, our “Aaron” who was just adopted from Romaniv (the last child who was available for adoption!) failed his medical exam and therefore wasn’t issued a visa to the travel to his new home in the US. Noooooooo!!! Failing that exam is every adoptive parent’s fear. Additional testing had to be done, and now there is an 8 week waiting period for those results to come back. Obviously, Aaron’s family couldn’t wait 8 additional weeks in Ukraine, so a different plan had to be formed.

I shared that story on our social media and invited people to help cover the expenses of caring for Aaron for the next 2 months, as he requires full-time care, and the Wide Awake community rallied! In less than 24 hours all of the expenses were covered, plus additional funds that the family can use for airplane tickets when they travel back at the end of the waiting period. Thank you so much to all who gave so quickly and so generously! The family was blown away by your love.

The plan we came up with was that Max, one of our team members who is currently on a break from university, would live in an apartment with Aaron for the 2-month waiting period. When Jed and I arrived back in Ukraine after our England trip we picked up Aaron in Kyiv and brought him to our house for the weekend because Max wasn’t available to start caring for him till Monday. Aaron did SO WELL in our home. He obviously loved the stimulation of all the people, the space to move around, the toys and balls. It seemed like a no-brainer to all concerned that he would be better off in a family environment instead of one-on-one in an apartment.

That left the question of how to make it all happen. Aaron on his best day still requires full-time supervision and assistance. There was no way we could simply add him to our family and not change things up. The money had been donated to care for him, we just had to find the best way to use it. Then we had an “Aha!” moment and we made a decision that was better for all involved. Andriy stayed with us in our home, and Ruslan moved into the apartment with Max. Not what you were expecting to hear? Yeah, it took us a bit by surprise too, but sometimes the most obvious answers are the hardest to come by. 🙂

For several months we had been mulling over the idea of moving Ruslan to an apartment, even before Anton moved. There are several reasons that made this the right choice for this moment. First, Ruslan has a great potential for independence. He will never live alone, but he has great potential to learn to care for himself in many ways. He wants independence. He sees all his friends (our team) live in apartments with friends so the concept was interesting to him. In an apartment setting there will be more time and space for him to learn skills necessary for independence.

Second, Ruslan is highly anxious and quite obsessive. Anton did not thrive in the large family environment, and Ruslan, although he managed it better than Anton, also had big struggles. Ruslan wants to control everything and everyone in his environment. He’s been learning that when you live in a family it’s not possible or necessary to control everyone and everything, but in the large family context it was causing him a lot of angst.

Third, there were some personal matters that made it necessary for the health of our family that Ruslan moved to a different space. To protect the dignity of all of us I don’t want to really expand on that. Everyone is safe, and no one has been physically harmed, but you just can’t predict how interpersonal relationships will develop when you bring new people into your home, specifically people who have endured 30+ years of trauma and abuse. We have learned much from having Ruslan in our home, and we love him dearly. It is just healthier for everyone if he lives separate from us. I know it might seem like I’m glossing over this, but I hope you can trust that this is not a decision we came to lightly. We have been agonizing over how to make it work, interpersonally, with Ruslan in our home, and the reality is, it just can’t work for the long term. If you have more questions about this, please shoot me an email. I’m happy to talk.

This move, even though we had considered doing it for a long time, was unexpected, but it feels 100% right. When Anton moved out it was traumatic and sad and felt like a loss (at the time). This does not feel like that. Ruslan was excited for the new adventure of living with Max, and Max is the perfect person to lead Ruslan into a more independent life. Anton’s leaving felt like failure, at the time, because Anton is developmentally much younger. He was confused and it felt like getting him out of the house ASAP was the only option in that stressful situation. This move feels like a next step. Aaron’s coming into our home for this time caused everyone to rethink how we are doing what we are doing and shook us up a bit. But we feel confident God used that situation for all of our good.

At church on Sunday Ruslan was happy, loved and well-cared for; Anton was happy and loved and content. They arrived at church with different people, but were still surrounded by so many who love them. God is so faithful to provide the people to love our boys. Every one of them is in a good spot right now and we couldn’t be more thankful.

I don’t know what the future will hold for Ruslan and Anton. Possibly they will stay in apartments, possibly they will live in the duplex, we’re tossing around the idea of tiny houses on our property. We want to do what is best for them and we are committed to them, so we know God will show us in his timing.

I wanted to share with you so you would know how to pray and also so that those who gave toward Aaron’s care would be fully informed on how the money is being used. Max is being paid to care for Ruslan, so that we have the ability to care for Aaron in our home. Same use of funds, just a “change in seating”, if you will. If you have any questions, please don’t hesitate to ask. We always want to be open and honest. Thank you for your love and encouragement, as always!

Well this year sure flew by in a flurry! I was just looking through the 2019 blog posts to find the highlights to link here and saw that I really didn’t write a whole lot. That in itself shows what kind of year we had around here: fast and furious. 🙂

Here in our home, with Anton and Ruslan, this year has been unbelievably difficult. There have been many beautiful moments, don’t get me wrong, but the overarching feeling when I sat down and initially looked back over this year in our home was not “beautiful”, it was “stinkin’ hard and painful”. It has been a year of learning to lay down our lives and learning what this dream of deinstitutionalization really is. Of course we already had some experience with Vlad and Boris, but for many reasons it has just been exponentially harder with Anton and Ruslan. We have learned A LOT. We have changed A LOT. And we have so much to be thankful for.

I’d love to sit down and report to you the many great strides and changes that have been made in our boys, and while they have changed and made some strides, the greater changes have been made in the hearts of our family.

This year has forced us, Jed and me, to dig deep down inside ourselves and deal with our junk, ’cause Lord knows we’ve got a whole lot of it. Many times this year the way has felt so dark. We have felt hopeless, helpless and in way over our heads. We’ve learned, and are still learning, how impossible it is to do this thing of deinstitutionalization in our own strength. We’ve learned that we’ll most definitely burn out and cope in unhealthy ways when we try to do this on our own. We’ll get bitter. We’ll pick up our phones as an escape. We’ll get all judgey. We’ll lose our patience with our kids and we’ll even stop laughing.

There’s just no way around it. We either do this thing with Jesus, or we fail. That has been the big lesson of 2019: Jed and Kim without Jesus doesn’t work. Praise God for his never-ending mercy and unrelenting love toward us, and thank God for your prayers and encouragement that have sustained us in the darkest of times.

We are different people than we were at the beginning of the year, in a good way. So when I look at it that way I am filled with thankfulness for this past year of struggle. We are changed. Our kids are changed. They have grown and stepped up and matured. Our team has grown and stepped up and matured. Our team has grown in love for each other and we have learned so very much about the path that lies ahead of us. If we had never brought Ruslan and Anton into our home we would have been dreadfully unprepared for the next phases of this journey. So, praise God that his ways are higher than ours. All the tears, all the struggles with self, all the sleepless nights have been 100% worth it. I mean that.

When you look outside our home at the other parts of this Wide Awake machine there are no shortage of miracles. 🙂

In January we sent out desperate plea for our “Preston” to be adopted. The government was threatening to send him back to the institution if he did not have a committed family by summer. A family pretty quickly stepped forward and they met Preston on Christmas Eve. 🙂 Christmas Day at our house was spent with Preston and his new family getting to know each other. Praise God for his love for our sweet boy.

In July we sent out another desperate plea for our “Aaron” to be adopted. He was the last boy at Romaniv available for adoption and was going to age out at the end of the year, making him forever unadoptable. That same day, as the post was being written, an adoptive family was at Romaniv for another boy (“Kayden”) and they also fell in love with Aaron. They ended up adding him to their adoption and had court for him on December 18th. Aaron is legally an orphan no more, saved at the very last minute by an AMAZING family. He’ll go home to them in January. Praise God for his pursuit of the ones left behind and forgotten for so many years. This is such a huge miracle!!!

If those adoptions were the only thing that happened this year it would be enough to be a miraculous year, but let’s not forget the ginormous building right outside our back door. Ha!

Thanks to the generosity of donors, the next Wide Awake home is well on it’s way to completion. The roof is on and the windows and doors are in. We are looking at a completion date of late spring, early summer. It’s amazing!!!  (and did I mention, huge?)

The house is a duplex, so it has the capacity to be a forever home for 8 of our friends from Romaniv- four on each side, plus the people who will live there with them.

We are still searching for who will live in the duplex with our boys, so if this is something that your heart can’t let go of, please contact us and we can begin a conversation. I promise we are great neighbors. 😉

As we end the year I want to say thank you to this Wide Awake community for being such a wonderful source of encouragement and support to us and our team. In the good times you have celebrated with us, and in the hard times you have encouraged us, trusted us, and lifted our arms, encouraging us to press on, and reminding us of our why. We thank God for you and look forward to the growth that will happen in 2020!

BeLOVE[d]

This is a post I never imagined writing. In fact, we took all the precautions imaginable to try to prevent a post like this from ever happening, but, here we are.

This past weekend we had to remove our dear Anton from our home.

Anton has struggled off and on with aggressive behaviors basically the whole time he’s lived with us. It kind of surprised us because he was not aggressive at Romaniv. In fact, he was the most meek, quiet, subdued and shy man you could imagine. Almost all of the boys and men at Romaniv are aggressive to some degree. Aggression is the language of institutional life. And since Anton lived there from the age of 4 till we took him home at age 30, that was the language of his childhood, his teen years, and his adulthood. In an institution like that only the strong survive. The pecking order is well-established and the stronger abuse the weaker. It’s what Anton knows, but since he himself was not aggressive, we felt okay bringing him home. Also, we knew God said Anton was our family, so we listened.

Once Anton started to act out aggressively when upset or not feeling well, or when he didn’t get his own way, we were a little surprised (although not completely- we tried to be “prepared for anything”) and sad, but also hoped that once his language abilities grew and he felt safe, his aggression would diminish or maybe even completely go away. We still hope for that!

In the past month or so Anton’s aggression has dramatically increased. When awake he has been in an almost constant state of stress and keeping him from escalating has become a full time job. This past weekend it became obvious that it was not safe for him to be in our home with our children for even one more day.

Let me say right now that we are 100% committed to Anton- legally, and in our hearts. We love him so so much, and we know that this is not who he wants to be. He desperately wants to do the right thing. Anton can be fun-loving and tender-hearted. We truly believe he doesn’t want to hurt others, but he is working through something and it’s not safe for him to work it out in close proximity to small children. Maybe this is a stage in his healing and he will come out on the other side even more loving and more like his true self, but while we are committed to helping him heal we also have to consider every person in our family. Boris and the little ones can’t be sacrificed during Anton’s healing process. He’s a full-grown man and his emotions are big. We realized this weekend that we had to find another way.

Right now we have Anton staying in an apartment in town and our team is taking turns staying with him. Today Jed is out with a realtor looking for a more long-term apartment that Anton can live in until the duplex is finished, and then we plan that he will live there. We are hoping to find 2 guys who will live with him in the apartment. He can spend the daytime with our team like always, and then have his evenings and weekends at the apartment.

Our hearts are broken, and in just the last few days our plans and ideas for our family have been turned on their heads.

When we brought Boris, Anton and Ruslan into our home we planned they would live with us, in our home, for life. But it seems God has other plans. Yes, the duplex is literally right outside our back door, but it’s still not what we had planned. At the same time, we have a responsibility to our kids, and we also know we can’t help transition other boys to the duplex and then the next home after that if 100% of our attention has to be focused on just keeping the people in this one house safe. We have to have some margin in order to keep our family and Wide Awake, as an organization, healthy and growing.

Our dream of “family-style homes” is still the dream. But God is kind of asking us to redefine in our minds what “family” means. Family doesn’t have to mean a mom, a dad, and a bunch of kids. That scenario doesn’t work for every person- especially when we’re talking about people who have been so extremely abused and traumatized for so many years. Sometimes family needs to be smaller, quieter, and more controlled, with fewer moving parts. We have 6 kids. Our home will never be quiet. In my mind, it’s a peaceful chaos, but I think we are learning that it’s just not the best environment for our Anton. “Family” is a place where you are loved and accepted as you are. It’s a place where you are supported and encouraged to grow into your full potential. We can still provide that for Anton.

We’ve cried a river of tears over the last few days. My mind just keeps trying to figure out a way to keep him here, but I’m also in awe of how much more peaceful it is here without feeling like we have to protect everyone from Anton every minute. I didn’t realize how much of our hearts and minds and household routine were consumed with keeping Anton from escalating. It’s just not sustainable if we are committed to these guys for life and if we’re going to be able to bring more boys from the institution.

My heart screams that no one can love him as deeply as I love him. How can I entrust him to another? He must be so confused. He’s one of my babies and I know he loves me just as much. But right now he needs something that I can’t give him, and my heart needs to trust that God’s plans for Anton are good and He is not surprised by this turn of events- even though we are.

That’s where we stand now. We would so appreciate your prayers during this time. We need so much wisdom. Anton needs so much peace. We are visiting every kind of doctor available to make sure we are not missing some physical ailment that is causing him pain or stress. We will not give up on our boy.

We met with our team on Sunday night and were amazed and encouraged when we stood back and realized we were in a room FULL of people who love Anton and want the best for him. Jed and I are not alone in this. I thank God for our wonderful, loving, committed team.

If you have any questions don’t hesitate to ask. We have no secrets and always want to be honest about the journey, while also maintaining Anton’s dignity.

Thank you for loving us and believing in this work.

BeLOVE[d]

The roof is going up on the next home for our boys and I realize that I haven’t written a lick about it! In fact, if you follow this blog much you may have noticed that I haven’t been actually writing about much of anything at all. It’s been silent here on the blog, but that silence doesn’t reflect what has actually been happening here in Ukraine. It has been busy here, as usual. 🙂

We have room on our property for our current home, plus 2 duplexes. The plan is for each side of each duplex to have space for 4 boys/men from the institution, plus space upstairs for the people who will be their family.

The first duplex is well underway and it is HUGE!!! I’m kinda jealous and wish I was going to live in it! The homes are going to be fabulous. We’ve learned some lessons from our current home setup and have designed to meet those needs in the plans for the duplexes. For instance, the duplexes will have toilets separate from showers, more toilets, a “family space” upstairs for the family who will live in the home and for guests, a separate bedroom for each boy, and a lockable pantry in the kitchen that will also house the refrigerator. The homes will all be fully accessible and up to ADA standards. Not to mention, they’re just going to be flat-out GORGEOUS! So many windows, so much natural wood, so much light. So much excitement!!!

We are hoping to keep a steady pace on the build so that the first duplex will be completed in the late spring or early summer. We need another $30,000 to complete the project. In the meantime, we are praying about which boys will live in the first homes and figuring out the process for securing guardianship of them. If we take anyone under the age of 18 everything is done differently than if we take adults, so there will be a learning curve there. Also, most of the boys under the age of 18 have parents, so we will need to work alongside them to see what supports could be put in place for reunification, and if that is not possible, then we need to make a plan for how we can work alongside the parents in caring for the boys here at the Homestead. So much to consider! Right now the plan is that one side of the duplex will be for children (under the age of 18) and the other side will be for adults. The current children at the institution are all 13 or 14 years old, but developmentally much younger.

Our focus in choosing boys at this point is pretty much zeroed in on the Isolation Hall. The boys and men there have significant medical needs that will never be addressed properly in the Institution. They are the ones our work has pretty much centered around in the last 5 years with our interns and our volunteer teams, so it makes sense for us to put our attention there, in the beginning. But of course, we are very open to God’s leading in this. We need so much wisdom and clarity!

The elephant in the room of this whole project is the question of who will live in the duplex with the boys?

Yeah, that’s a good question. And the answer right now is…we have no idea.

We are currently working on a job description and ministry description because the time has come to look in earnest for who will join us in this work. We need people who will live in the duplexes with the boys like we do in our home, and we also need people who will live off-site and come in as daily help to the Wide Awake machine (Romaniv work, administrative help, in-home helpers, Special Wednesday helpers…the list goes on and on). It’s just gotten to the point where if we don’t bring more help in the growth will have to slow, or even stop, and we don’t want that to happen. Our boys need OUT.

Our dream is that a blend of Ukrainians and foreigners would work together to care for our boys. Ukrainians are the obvious choice. They have the language, know the culture, and already live here. But at the same time, we see the benefit of outsiders coming in to join as well. Westerners come into this with different eyes and a different perspective. Ukrainians have been raised to see people with disabilities in one way, and an outside perspective is just really, really helpful- especially when you’re fighting for change in a culture that, historically, does not accept or recognize our boys as valuable.

Another benefit to outsiders coming in would be friendship for us. 🙂 We have a Ukrainian team that we love so much. They are our family here and I don’t know where we would be without them and their friendship. We also long for friendship with people in our native tongue. We long for relationship with people who understand where we come from and who can understand us fully. It is a deep desire and need for us, personally, if this work and life is to be sustainable for the long haul.

So, here’s to hoping and praying that if we build it…they will come!

We have no doubt that God has the right people in mind to help on this journey. He has provided the land, the funds to build the home, and the boys to fill it. There’s just no way it’s going to sit empty because of a lack of helpers. So, we pray and begin to actively seek out who those helpers might be.

If this strikes a chord with you and you find that it’s something you just can’t let go, can’t forget, let’s talk. It’s certainly not a romantic call, but it’s an important one. I can promise a YES to this work will never leave you bored. Hehe.

To all who have given to help make this duplex a reality- THANK YOU! It’s really happening! Thank you for believing in this dream and in this work. We can’t wait to fill it to the brim with life and love.

We’re coming up on 8 months with Anton and Ruslan and I feel like we’re slowly starting to come up for air. Caring for our guys is still pretty much all-consuming, but we have gotten in to a bit of a rhythm, and things are looking up!

Sometimes it feels like their progress is so minuscule, but then we look back and remember things we had to do a few months ago just to keep the peace around here and we see how far the guys have come. Very far!

Anton. Six months ago we were barely sleeping because Anton was up all hours of the night wandering the halls. I remember we used to have to turn off all the water to the house and unscrew all the downstairs lightbulbs before we went to bed every night because Anton would get up and try to take a bath at 3 in the morning, or shriek and hoot and holler at 2am so that we would get him up and feed him. We had to remove all options in order for him to be able to turn his brain off enough to rest and fall asleep. At one point Jed was sleeping on a couch in front of his door to remove the option of nighttime wanderings. Those were the days…yikes.

Now I can happily report that Anton goes to bed easily and doesn’t get up until at least 6:30 every morning. (knock on a biiiiiiig ol’ piece of wood 🙂 ) His sleep success is thanks to a strict evening routine that we dare not stray from, and blessed medication. The combo of the two saved our lives.

He’s saying a lot of words, and more and more often he says them at the appropriate times! He used to only really speak when he was angry, but now that’s not always the case. There are so many words in there and sometimes he’ll shock us with a “See you tomorrow!” (in Ukrainian of course) or something like that.

Anton gets stressed pretty easily, and when he doesn’t feel good, physically, he gets really worked up. In times of stress he is aggressive toward others, so that is a big bummer. I hate those times because I know he is just repeating what he’s seen his whole life and it’s not the real Anton. When he is in an aggressive mood it just becomes a matter of keeping him separate from everyone else and that is exhausting. I hope and pray that someday Anton will be able to express his emotions in ways that are less painful to others. We are doing all we can to help him learn a new way.

When Anton feels good and is at ease he is so joyful, sweet and fun-loving. He loves big bear hugs, dancing, toy cars and fidget-spinners. He enjoys stirring things in the kitchen and will gladly eat anything and everything you put in front of him. He has started to say “I love you” on occasion and this week he said “Mama” for the first time. Melt my heart.

Ruslan. To be honest, it’s hard for me to write about Ruslan because I’m unsure how much to share. Whenever I share about our boys I want to respect their dignity and respect their privacy. It’s so important for me not to overshare their personal struggles. At the same time, I always want to be honest about this process. It does none of us any good for me to pretend all is unicorns and rainbows when they so clearly are not. This is stinkin’ hard work for us, our team, and our boys every.single.day. Most of all for our boys. Learning to become a human after 20+ years of living like an animal is not an easy process to go through. They need our empathy and our compassion, but they also need our strength. They need to have a standard to rise to, expectations to meet. They need to know we believe in them and we want more for them because we love them!

Ruslan’s trauma presents itself as high anxiety and a need to be in control of everything. At Romaniv his world was small. The stressors were crazy HUGE, but there were few of them. His main priority there was keeping himself safe and keeping himself fed. Here in the real world, the wider world, there are many, many things outside of his control. There are so many more things for him to obsess about and be anxious about. If it’s not one thing it’s another.  He wants desperately to control his environment, but when you live in a house with 10 other people you just can’t control every single detail. That is outrageously hard for Ruslan. Sometimes it seems like it’s only getting harder, only getting worse, but he has actually made some great strides in the past few months. A few months ago he was was having daily meltdowns and those really only happen on rare occasions now. You can see him ramping up for a meltdown, and then most of the time he can wind himself down. Not always, but most of the time. I’m so thankful for that!

When Ruslan is relaxed and at peace he is hilarious. He has a great sense of humor and a compassionate heart. He really loves Evie and is mostly gentle with her. He loves to sing, and worship time at church is his most favorite thing EVER. The anxiety ridden Ruslan who acts out in fear holds back the real Ruslan. The anxious Ruslan is also extremely hard to live with. It breaks my heart because I want things to be different. So, we will continue to fight for him. We will fight to get him all the help we can so that he can live his life to the fullest.

We have waited a bit to see how things would play out with a highly structured day and several months of safety and now we have an accurate baseline for Ruslan. We are ready to seek out psychiatric care for our guy and see how we can best help him move forward. If you would pray with us for wisdom in this we would really appreciate it.

Health. As far as medical stuff goes for both guys, we’ve been slowly but surely getting things taken care of. Fridays have become our “medical day”, so Kenny and I try to tackle the different medical appointments on Fridays. We’re focused on dental stuff right now and that’s super fun since Kenny and I both HATE going to the dentist. I’m not sure how much moral support we provide, but we do our best. Hehe. Anton has one problematic tooth that should be fixed next week and Ruslan has a whole mouthful of problems. I’m not sure he’ll have any teeth left when we get finished. Poor guy. 🙁 I’m guessing we’ll be exploring the world of dentures or implants in the near future. Anton has some physical symptoms that I don’t have answers for yet, but all in all I think they are both in pretty good health at the moment. Step by step we’re getting there!

I have to say that there is no way we could do any of this without our amazing team. Kenny and Oleg are with us Monday through Friday, bathing our guys, shaving them, taking them on bike rides, teaching them how to make tea, keeping them safe, talking them off the ledge, teaching them how to be men, loving them, comforting them, supporting us and all in all just being awesome. This really would be impossible without their help. We would have burned out months ago.

Masha, Masha, and Lesya are also absolutely essential to the success of this home. “Harry Potter Masha” 😉 comes to our home three times a week. She plans and organizes the guys’ schedule for the week and is learning to implement the plans that Olya, our wonderful OT, recommends. Masha’s work makes it so that we aren’t just spinning our wheels with the guys, but we are hopefully moving toward specific developmental goals. “Second Masha” and Lesya each come once a week and provide great additional support to our guys and the rest of the team. I love our team and can’t express how thankful I am that God brought each of them to our family.

So, there’s a bit of an update on our two newest family members. If you have any questions about Anton or Ruslan, or the process of deinstitutionalization don’t hesitate to ask! My hope and dream for writing this out is that someone reading it will also feel called to this deep, difficult, and beautiful work. We need help and I know God will call the right people to join us. I also write this so that those of you who pray will know better how to pray for our family and our team.

To all of you who pray, support, encourage and love us from afar, thank you! We can’t tell you how much we need it and appreciate it. Thank you for partnering with us on this journey. We couldn’t do it without you!