Category: The Kids

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Back to School 2017

September first came and went and Ukrainian schools are back in session!

Let me just tell you, the feeling that came with not being the new people was such sweet relief. We’ve been the new people at school for the past 4 years, and we were so over it. How wonderful to be known, to not be gawked at (mostly), to belong! Moving to a new culture has cured me forever of taking belonging for granted. Belonging is so hard to come by, and so amazing when it’s found. We found it for our kids and I’m beyond thankful!

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This year promises to be quite challenging, as full immersion can’t help but be, but we already feel the successes of last year’s hard work, so that’s encouraging.

Our goals for putting our kids in a Ukrainian local school are:

  1. Ukrainian language fluency.  This is our home and we want our kids to be able to communicate in every situation. While they are young, and their brains are growing so rapidly we feel it’s in everyone’s best interest for them to be immersed in Ukrainian language. I wish I had the opportunity! Their language has already far-surpassed mine.
  2. Integration into Ukrainian society. I’m a homeschooler in my heart. I adore homeschooling and I miss it like the dickens. BUT, I realize that homeschooling our kids here is not what is best for our family right now. It would be easy for them to stay home and live on our sweet little American island, but…they would be totally isolated. They need peer relationships. They need to learn how to function in Ukrainian society independently. They each need to find their place here, and as much as I want them all home with me, I know that I know it’s not what is best for them right now.

So, we press on with local school and all of it’s blessings and challenges.  It’s cool to look back on the first week of school last year compared to this week. We have come so far! Our kids’ language has grown by leaps and bounds. They have much more of an understanding of how Ukrainian school works (completely different from American school, if you’re wondering), and they’ve pretty seamlessly picked back up where they left off. Last year we had buckets of tears. This year we have kids who feel successful. My heart is full.

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Seth entered first class, so now all the kids are at the same school together. He seems to be ready, and three days in, so far so good. We anticipate some learning difficulties, due to his history, but we’ll just have to take each day as it comes. Socially and emotionally, he is ready, and for Seth that had to happen in order for him to have a chance at success. His teacher was Ezra’s teacher last year and she’s great. She knows our family and we “get” how to communicate with each other. I’m hopeful for my baby.

Hava is in second class. She has her same class of kids and same teacher (they keep the same teacher for the first four years) so she’s all set to go. She adores her teacher and already has friends, so we’re golden. 🙂

Ezra skipped a grade and is now in sixth class, which is appropriate for his age. We really wanted him to have a fresh start this year in a new class and with new confidence. He’s going to have to work hard to catch up, but he’s motivated, so I think he’ll be okay. Ezra’s our introvert, so Ukrainian school is pretty challenging for him. I’m so proud of how far he’s come!

Addy is the one who’s probably going to have the biggest challenges this year. She skipped two grades and is going to give eighth class a try- the appropriate grade for her age. Due to being the only foreigners and then spending a school year in the States, then entering a new school as the only foreigners again, poor Addy has been held back FOREVER! Last year she was two grades behind her peers and it was starting to be a big problem for her. I know that in the whole big scheme of life, it doesn’t really matter, but when you’re thirteen and you’re in a class with eleven year-olds, it matters a heckofalot. 😉 She’s a super smart girl, she has just never been given the opportunity to try to catch up and prove herself. We fought hard for her and Ez to be moved up, so hopefully we made the right decision. For Addy it was very important to have this chance, so she is super motivated to work her tail off to be successful.

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Vladik has the same set-up as last year. Our friend is teaching him individually, and then he will be integrated into some lessons with the same class as last year.  Our goal for Vladik this year is to be integrated a bit more into the fabric of the school. Socially, he’s ready for it. Academically, we are limited on what he is able to do, but we are working to give him opportunities to be included at the level he is able. Right now we’re hoping to have him join the sixth class in P.E., music, art, and handicrafts. He adores his teacher and he LOVES school. I’m so thankful he has a place there.

That’s the scoop on school! It’s a lot of work and a lot of figuring out what the heck is going on, but we’re ready. When I was first researching putting our kids in local school the stuff I found talked about how the first year would be super challenging and the progress would be slow, but then the second year was when you would really see progress and the fruit of all the hard work. I’m trusting that will be the case for our kids this year. They are all so brave. I’m so very proud of them.

Here’s to a new school year and a new year of growth. Let’s do this thing!

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Parenting Overseas: When Kids Become Partners

Benefit #33 of our kids’ school: Extended Easter Break. Three cheers for Catholic schools! The kids are off today (Thursday), Good Friday, and the Monday after Easter!  It’s like Spring Break #2 and we couldn’t be happier.

I’ve been thinking lately about how my parenting has changed by us living overseas. I think it’s hard to differentiate between the changes that come from living outside our native culture, and the changes that come just by having older kids. I think one major difference that comes with our location is the freedom and independence our kids can experience at younger ages.

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Back when we lived in the US I used to read about “Free Range Parenting” and wish that was more possible for my kids. I’m pretty sure no one could have ever accused me of being a helicopter parent, but I did always wish for more opportunities for my kids to learn independence at a younger age. That sounds great, but is stinkin’ hard to do in American suburbia! It’s hard to teach independence when the city bus routes are super inconvenient and expensive. It’s nearly impossible when the city plans are made for driving and not for walking. Cell phones are expensive and pay phones are nearly non-existent. In my humble opinion, the culture of ultra-protection of kids also makes it really difficult for well-meaning parents to provide opportunities for their kids to learn and make mistakes and recover without repercussions from outside sources. It felt like for our kids to learn their way out and about without adults they would need to wait until they were 16 and could drive! I know there are creative workarounds for parents who are really intentional about teaching independence, but it just never felt quite natural like I wished for. You know?

I didn’t realize how moving to Ukraine would make it easier for me to be the kind of parent my heart longed to be, in that regard. In Ukraine we have opportunities a’plenty for our kids to explore and learn and even be forced into situations where they have to think for themselves and be independent. It’s just built into the culture! There are some parts of Ukrainian culture that I imagine are similar to American culture back when my parents were kids. I like that.

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Public transportation in our city is cheap and super easily accessible. Our kiddos come home from school by themselves on city buses most days. It’s totally normal to see a kid Hava’s age (8) on the bus alone or walking alone down the street. Hava and Seth can go to the store by themselves and get me a few grocery staples. No one bats an eye that my 6 year old is at the store by himself (unless he’s not dressed warmly enough..hehe). It’s AWESOME. I love it because I KNOW my kids can do it, and they feel so proud of themselves when they are successful.

The little store down the street from our house is an old Soviet type store where you have to go up to the counter and ask the cashier for what you want. The thing is, there aren’t really lines. Whichever customer is the quickest or loudest gets their voice heard first.  Our Seth is super shy. The first time he went by himself to get me bread he must have been gone for more than 20 minutes.  I kinda started to worry a bit, but I knew he was fine, so I just waited. When he finally came home I found out he had been too embarrassed to pipe up and ask for the bread so he just stood there and waited until the store was completely empty and the cashier finally asked him what he wanted. 🙂  But he learned that day and he was so proud of himself when he came home with the bread!

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Our Addy is 13 and is off right now with two friends from school, out and about in the city. She took the bus to meet them and later they’ll find a bus that will take them to youth group. She has a cheap little phone that she uses to call me and let me know she’s okay. It’s AWESOME!  She has learned which buses to use and how to get where she wants to go most places in the city. I’m so happy for her that she has that chance to be independent and I’m also happy that we don’t have to drive her all over town so she can see her friends! Ha!

The big ol’ language issue also changes our parenting, and I haven’t quite figured out how I feel about it. 😉 Back when we lived in the US and I worked as a nurse on the pediatric floor of our hospital it was extremely common for us to treat Spanish-speaking families.  I remember so many times when the parents couldn’t speak much English and they would have their child translating for them. We would use a medical translator for official communication, but for just basic conversation I remember always feeling relieved when there was a school-age kiddo in the room who could help us communicate with mom and dad. I also remember thinking in the back of my mind “Why don’t these parents learn English?  Certainly they don’t want to live their lives with their kids better understanding the world around them and translating for them!”

Yeah, I can give a definitive answer on that one. Those parents didn’t want their kid in the driver’s seat of communication, but guess what? You get desperate and it happens. And in those important moments it’s better to have your kid there to help you rather than no one at all.  Guess how I know?  Yep. Been there done that. Last week.

We’ve gotten to the point where our kids’ language is better than ours. NOOOOOOOO!  I swore I wouldn’t let it happen, but it has. They are immersed in Ukrainian 5 hours a day and I’m not. It was bound to happen. I guess I just didn’t expect it to happen so fast. Now when we’re out and about and I need to understand something I’ll make sure all the kids are listening too, so that if I miss it I can know that somebody will understand. Addy has the best language and I find myself looking to her for help way more than I’d like to admit. The other day I had the kids at the dentist and the dentist actually looked at Addy and said “I want you to listen really good so that you can help your mom understand.” OMG. Low point. I made sure Addy knew, after the fact, that I had indeed understood the dentist (well, at least 70% or so…). Ahem.

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It’s funny how that lack of understanding, or handicap in communication kind of changes your relationship with your kids in small ways. Adults will look to my kids when relaying information, assuming they will understand better than I will. And sometimes they’re right- especially at school. In some ways, and in some moments it changes our role to more like partners with our kids, rather than us moving in the more traditional roles. We’re all working together to make sense of a strange new world, rather than us adults understanding the world and teaching our kids how it all works.  It can be a bit unnerving, especially when we’re talking about partnering with a first-grader, but I think I like it. It causes the kids to take more responsibility for themselves, rather than all the responsibility being on us parents. I know I like that.

All of this learning and growing and digging in roots in a different culture that we are still learning to understand is a heckuva lot of work. It’s stretching and confusing and painful much of the time. But, there are also beautiful parts of it that are unexpected blessings. The partnership with our kids and family teamwork is one of those unexpected blessings. The natural independence training is also an extra blessing. Sometimes it’s mind-blowing to consider how extremely different our kids’ childhoods are than our own, but I have to believe that there are things they are learning by living this curious life that they absolutely need for their futures.

So, steady on, my friends. This parenting gig is no joke, but God will give us everything we need for our specific children. We can trust Him on that one.

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Shoe Debates, Friendly Pack Mules, and Spring is Here!

I’m happy to report that THE SNOW IS GONE. The streets are (mostly) dry(ish) and the debate over which shoes to wear has simmered down a bit.  In my previous life, in Oregon, the debate over which shoes to wear was mild and was simply a matter of “is it raining or not.” If it’s raining, you can’t wear Toms.  If it’s not raining, Toms it is! I mean, I was most likely just going to be dashing across a parking lot if the weather was less than optimal, so making the best choice in footwear was not the end all.

In Zhytomyr in the winter, the shoe debate is real.  It is intense.  One does not simply throw on a pair of shoes and prance out the door without a care in the world!  No, no, no.  One is most likely going to be walking a fair distance out in the elements and waiting at bus stops. One must consider the level and freshness of the snow, the amount of ice, the wetness or dryness of said ice and snow.  On some days we have rivers for sidewalks, and on others we have ice skating rinks for sidewalks.  Rivers and ice skating rinks call for different shoes, different strategies.  One must also consider the distance to be walked and the condition of the sidewalks en route.  If I’m taking out the trash and heading that direction, I need to prepare for mudslides (and dead cats, apparently).  If I’m walking down our road in the opposite direction there will be less mud, but a lake or two to be traversed, so that must be taken into account. We’ve become quite adept at deciphering the sheen on the ice and navigating the sidewalks in the safest, non-broken-hip-est manner. Skillzzzzzzz.

My favorite boots for walking in mildly cold, non-snowy weather currently have a break in the sole, so my right foot is bound to get wet.  I keep forgetting to take them for repair, so if I want warm, dry feet my only choice are my snow boots.  But snow boots without snow are a little more Napoleon Dynamite than I’m willing to go, so I usually opt for the wet foot.  Why not just get the shoe repaired you might ask? Yeah, I know. It’s a mixture of forgetfulness, procrastination, and fear of doing new things and not knowing how or what is expected of me.  I guess in the end I just opt for the wet foot.  Don’t judge.

All that to say, soon warmth will come, summer will come, and along with it, fewer and fewer shoe debates.  We will happily pack away the snow boots and non-snow boots.  Multiply that by 7 people and it equals 28 fewer shoes in my entryway and 500 times more peace in my heart.  (Shoe clutter is my nemesis.)

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Beautiful dry, snowless, puddless sidewalk!

You know what else comes with warm weather?  Visitors!  We’re preparing our summer schedule and are excited to welcome several friends, old and new.  The boys and our team are going to get so much love and encouragement in the warm summer months!

I’m super excited to have all the visitors too.  I’m excited for English conversations and the joy that comes from seeing our boys through the eyes of others.  It’s a lot of work to host people, but it’s also refreshing, encouraging, and just plain fun. Guess what else gets me excited for visitors?  All the stuff we have them carry over to us from the US!  I’ve been out of brown sugar for over a month and my baking is SUFFERING. Peanut butter and chicken-flavored Better Than Bouillon have also been sorely missed. I’m filling my Amazon cart in preparation. Yes, we totally and unashamedly use our visitors as pack mules. Come on, summer! Hehe

The kids are all doing really well.  In a couple of weeks, we’ll have Spring Break, and then they only have like 2 more months of school!  I can’t even imagine the feeling of accomplishment they will have when they walk out the doors of school on that last day.  We are so close to completing a full year of Ukrainian school!!  There have been many good days, and also many days when we have all been in tears, ready to throw in the towel.  Many days of wondering if it is worth it, but as we round the final corner I think we are all seeing that it has totally been worth the blood, sweat, and tears.  The kids’ language has grown by leaps and bounds.  They never could have grown like that just here at home.  I am so incredibly proud of them.

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It is totally NOT ice cream weather, but we got a little excited about the sunshine.

Yesterday we were at the hospital getting Addy, Ez, and Hava mandatory check-ups for school and I realized that I have started to rely on their ears when we are out and about.  I tell everyone to listen, and if I don’t catch what was said, most likely one of them will.  It’s awesome!  All communication outside the home used to fall on Jed and me completely, but now the kids can understand for themselves, and actually, truth be told, they have much better comprehension than I do at this point. Grrrr… the competitive side of me hates that!  But, I love that they can communicate and function so well in society.  That was our hope in sending them to school.

So, here’s to dry feet, American pack mules friends, and Spring Break.  The snow is gone, the sun is out, Brian Adams radio is playing (again, don’t judge), and my heart is full.  Happy Tuesday to our friends near and far!  BeLOVE[d].

PS: You will not believe this! I was typing this post when I had to pause to go get Seth from kindergarten.  On the way home we stopped at the post office and guess what was waiting for us???

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Our wonderful Tom and Emma sent us a package with brown sugar, Better Than Bouillon, peanut butter, jalapeños and many other special treats. OMG. Can you believe that timing?  THANK YOU, Tom and Emma.  We love you!

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Frozen Cats, Injuries, and Parenting Wins

I’m sitting here at the table in a super quiet moment.  Ooooh I love it.  I’m debating getting up and making a cup o’ coffee, but I’m too afraid to disturb the moment. So, I’ll probably just stay put.

Vladik is sitting at the table with me drawing a picture for his special class he takes at MTU once a week.  He stays home from school on Wednesdays so he can go to that class.  Also, he does well with a day off in the middle of the week to spend time with mom and dad.  He really enjoys going out to the property with Jed and seeing all the work the guys are doing.  Vlad has an engineering mind and loves all things electrical  and tools and stuff like that. -Basically everything I hate.  Hehe. He’s constantly drawing pictures of the house for Sasha, our friend and builder.  Sasha is so kind, making a big deal over each and every drawing, discussing the details with Vladik.  I love it.

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Seth is at his village preschool/kindergarten and the other 3 are at school.  Seth only goes to his school for 3-4 hours per day and has finally gotten into the groove.  PTL!  I never thought it would happen.  He has a couple little friends there and that has made all the difference.  He wrestles with them every day and comes home with small injuries most days.  I guess their teacher is fine with it?  Ha! Anyway, he has a good time and is learning, so we are winning there, for sure.

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Waiting for the bus after school

Wanna hear something gross?  Of course you do! When we take out the trash we have to walk down a little path/alley behind our apartment, around behind a kindergarten, and then to some dumpsters behind a big apartment building.  It’s all paths and not really a road, so it is never cleared of snow or ice.  It can actually be a bit treacherous! Anyway, a couple weeks ago I noticed a cat had died and was frozen, mid-stride, right on the side of the path.  EEEEEK!  Disgusting.  It’s mouth and eyes were frozen open and it was just horrible to look at.  Poor kitty. It’s still there.  IT’S STILL THERE.  Still frozen, still horrible looking, STILL THERE.  I keep wondering who will take care of it???? If you’re going to suggest that I do it because I’m so concerned…you can just shut your mouth.  There is no way on God’s green earth I’m taking responsibility for that dead cat.  Nasty.  Anyway, I assume everyone is just ignoring it because everything is still frozen around here and everyone hopes someone else will do it.  But sooner or later everything will thaw. Then what?  Ugh.  Now I just avert my eyes every time I have to pass by it because it’s haunting me.  Make it stop!!!

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Our ice skating rink/street

Last week I had this strange infection in my thumb that became a big ordeal.  The big ordeal included: me googling “my thumb is going to explode”, attempting to treat it myself with Jed and a sterilized needle (yes, I know, not smart….but we were desperate), heading to the hospital and being examined by a surgeon in a dimly-lit, flickery-lightbulb hallway, giving a urine sample in a bathroom with OPEN GLASS BOTTLES (aka specimen jars) ON A WOODEN TABLE, NO TOILET SEAT, NO TOILET PAPER, NO SOAP.  Seriously. Slightly high risk for specimen contamination, dontchathink?  My ordeal included a $0.75 X-Ray, thumb numbing and lancing, blood samples taken using a pipet and a rubber tube, and then some sort of loud electromagnetic treatment with this:

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I don’t even know what to say…

All that said, they took very good care of me and the surgeon was competent and extremely kind.  I do have to say though, as an RN who worked in the hospital setting for 13+ years, it was all very Twilight Zone/Civil War tent medicine’ish.  The lead up to the actual procedure was so strange and foreign and old-school that I half expected to be handed a bullet to bite down on as my thumb was cut open. But alas, it was all done with sterile procedure and ease.  I guess you can’t always judge a book by it’s dimly-lit cover. 😉

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You have to buy booties from the pharmacy before going into the hospital

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Seriozha (aka Kenny) saved my life by helping me navigate the hospital experience 🙂

We’ve recently had some parenting wins that I think you should all know about. Aren’t we parents all too hard on ourselves?  I know I am. Why do we do this to ourselves? Let’s take a moment to reflect on the things that, despite our best efforts to screw everything up, seem to be going right. Here we go:

  1. Every time we have our friend Rosa over to play games we listen to a finely-tuned Pandora station called “Phil Collins Radio”. I’ve been thumbing that station up and down  for at least 4 years, so you know it’s full of gems.  Or, if Jed will allow it, Rosa and I will opt for “Bryan Adams Radio”.  This tradition started back when we lived in the US and would play games with our most special Tom and Emma.  Games just call for music everyone can sing along to, and these two stations are exceptional, in my humble opinion.  Well, lately Addy and Ezra have been joining us in our game play and they can now sing along to at least the chorus of several good songs.  The other night we were listening to music while washing the dishes and Ezra requested “Total Eclipse of the Heart”.  Then the next night Addy requested “Take My Breath Away”.  I know we make mistakes every day, but requests of high caliber, such as those, give me hope. #parentingwin
  2. The other day I asked Vladik to go put his notebook in his backpack for school.  He proceeded to toss the notebook in his bag and then declare “Boom shaka laka!” Be still my heart. #parentingwin
  3. Ezra just completed his very first chapter book without pictures.  He started it.  He read it every night.  He asked to stay up late to “finish one more chapter”. He talked about it at dinner. He read it until the very end.  I thought this day would never come. #parentingwin
  4. There is a little boy in Hava’s class that doesn’t really have any friends.  The other kids don’t like him and often aren’t kind to him. Hava decided that was wrong.  She sincerely likes him and decided to appoint herself as his protector. Every day she reports to me on the kindness level of others and what she did to be a friend to him.  #parentingwin

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Welp, I’m off to take Vladik to class and fetch Seth from Kinder…while averting my eyes from frozen cat.  #jesustakethewheel  Happy Wednesday!

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More About School

Yay December!  Pandora comes to life in our house around Christmas time.  We’ve got the “Peaceful Christmas”, “Ray Conniff Singers Christmas”, “Amy Grant Christmas”, and “Frank Sinatra Christmas” stations on heavy rotation. It’s a beautiful thing.  I’m smiling just typing it out!

Life has been a bit non-stop around here, but it has also been good.  We’ve found a smidge of a rhythm, which is more than I could say for many months before this, so I find joy in that.

The kids are really doing awesome at school.  They have passed through the season of merely surviving (thank God!) and have moved into a season of growth.  God has been so faithful to our kids.  I have done more than my fair share of worrying about them since we very first moved to Ukraine, and all along God has spoken the words “Do not worry about your kids.  I am with them.” But of course I still worry and worry and worry…because I guess I’m a slow learner. Anyway, I’m now seeing some of the fruit of His watch and care over them.  Things are still challenging in many ways, but we aren’t drowning anymore, and there are a whole lot less tears.  Things are looking up!

Addy is in fifth class and is just fantastic.  She’s really growing into a lovely young lady.  Can you believe she’ll be THIRTEEN in February????  What the heck? She is so kind and so joyful.  If you knew her as a little bitty girl, she is just the same, only taller, and with some maturity added in.  By age, she should be in 7th class, but the school really thought it was best for her to do 5th this year.  She’s feeling the age difference in a pretty big way, but has found one sweet friend, Vika, that she really loves.

Addy is hoping to talk with the school and work hard to skip a grade next year, in order to get her closer on par with her peers.  We’ll see if they are open to it.  I’m proud of her for having the guts to try!  Addy also goes to a middle school youth group at the church where a few of our friends go.  She enjoys that a lot, and it’s just the right thing for her to spread her wings a bit.

Addy LOVES Bluebell and helps take such good care of her

Ezra is in fourth class and is coming right along.  He has a couple little friends, Mark and Nikita, that he really loves.  I’m so thankful for them!  School is harder for him than it is for Addy, but he is really working hard and doing well.  Our friend who helps him with his homework is just fantastic with him, and step by step he is improving his skills and understanding.

Last week Ezra’s class did a dance for all the parents and other students and Ezra rocked it!  He was amazing!  We were shocked because he was dreading it so much.  You know, he had to hold a girl’s hand!  NOOOOOOOOOO!!!!  He warned us that he would probably be sick that day and not be able to participate. 😉 But, lo and behold, he gathered the courage and did amazing.  What a brave kid.

Ezra and his buddies at his birthday outing

Hava is in first grade and is just rockin’ it.  She is so blessed to be able to start out from the beginning with her appropriate age.  She’ll have a much easier time than Addy and Ezra because of it.  She’s learning to write Ukrainian cursive and is coming right along with her Ukrainian reading.  She has lots of little girlfriends in her class, and her biggest complaint is that they all fight over who’s going to hold her hand when they have to pair up to walk down the hall to lunch. What a hard life!  Hehe.

School in Ukraine is generally much more serious than in the US.  There is not a lot done with fun in mind, and the standards for work are extremely high.  Despite that, I think Hava’s teacher does her best to understand that her little students are very young and need extra grace.  I appreciate that.

Hava and her little school friends. CUTIES!

Vladik is attending the same school as Addy, Ez, and Hava and he LOVES it.  Oh, my word.  He gets absolutely giddy when it’s time to go to school.  Our friend Tamara teaches him and she is just the right fit for our special boy.  She is not a trained teacher, but she is an experienced mom and she loves Vladik.  She sees his value and sees his potential.  That makes her the perfect choice.  Four days a week she comes to our house, picks up Vladik, and takes him on the trolleybus to school.  He does PE and art with Addy’s class, and the other time is spent in his own little classroom doing individual lessons with Tamara.  Then she brings him home after lunch. They are working on learning about months, days, seasons, weather, numbers, counting, personal hygiene, and appropriate social interactions….all the stuff you would teach your toddlers and preschoolers.

Vladik has many big gaps in his knowledge, so we decided to start at the very beginning and make no assumptions about what he does and doesn’t know.  He is eager to learn and is soaking it all in.  Tamara speaks no English, so Vladik has learned to speak English at home and Ukrainian at school.  His language is EXPLODING!  It’s really the ideal situation for him and we are so thankful that God made a way for him to get the education he needs.

Vladik at his class that he attends once a week at Mission to Ukraine

Seth.  Seth was and is our biggest mystery.  🙂 His needs are different than our other kids and much more difficult to decipher.  We have struggled since September to find the right educational fit for our Sethers.  He just wants to stay home with Mommy all day, which would be fine, except that then he gets zero Ukrainian.  He will go to first grade next year, and it will be 500 times harder for him if he doesn’t get a better handle on the language. Because of that, we knew we had to find some sort of kindergarten/preschool for him to attend, at least part-time.

We tried a few places and just never felt peace about it.  FINALLY, last week we found our landing place for Seth.  Ivanivka, the village where we are building our Wide Awake Homestead, opened a kindergarten at the public school there and we started to send Seth.  There are 7 kids there right now, but more will come when the weather warms up.  (It’s super cold in the classroom…like kids wear their snowpants the whole time…) It meets for 4 hours a day, and we send Seth four times a week.  They do some pre-K stuff in workbooks but mostly play.  It’s perfect for Seth.  He’s not ready to do a bunch of seatwork.  He mostly needs to interact with other kids and gain some confidence in the language.  We’re only in week 2, but so far so good. He’s only refused to stay one day so far, which for Seth is pretty good! 😉   Hopefully, things will only get better from here!

Ivanivka School

I took a pic of the math book I needed to buy for Seth’s class

 School has been a HUGE help in bringing some stability to our lives here.  Our kids know what to expect and where they belong.  It is definitely a super challenging road to walk, but so far any issues that have arisen have been able to be worked out with administration.  They love our kids there and really want to work with us.  I’m thankful.

Thank you to all of you who pray for our kiddos.  It means so much to us!

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Tuesday

1.  THANK YOU all for praying for the situation with our new little guy at the institution.  Please keep praying for his health, as well as for the impact of that night.  The impact is far-reaching, relationally, politically, and spiritually.  I know I sound vague, but I gotta be. (Any former youth groupers remember the “unspoken” prayer request?  Ha!)  Just keep praying, pretty please.  Thanks 🙂

2.  School is going great for the kids!  We have gone from daily tears to smiles and declarations that “This was the best day!”.  Of course if you ask, Addy and Ezra will tell you that school is “so boring”.  But, they are making friends and feeling comfortable and understanding more each day.  Our friend, Romana, comes each day at 4:30 to help them with their homework and she is saving our lives, one story problem at a time. I really do like our school and I am so thankful that God has given our kids a safe place to land and grow.

On the bus, headed to school

3.  Jed and Vladik return today! FINALLY FINALLY FINALLY!  I didn’t mention it here, but we had a bit of an immigration fiasco last month.  We are applying for permanent residency and we were missing one apostille.  We didn’t know it, and Jed had to leave the country.  You can only be in Ukraine for 90 days out of 180 days without a visa or residency, and he met his limit.  So, in the dead of night, we made a run for the border.  Think Sound of Music, but much less romantic.  Think tears and a trashed house and frantic calls to friends to take Bluebell at the last second.  We spent a few days in Budapest as a family, and then I returned home with four of the kids, while Jed and Vladik couch-surfed throughout Europe, waiting till Jed could get on the other side of his 180 days.  Finally, today, after 33 days and 10 countries, Jed and Vladik are coming home! Many thanks to our gracious friends all over the continent who have cared for my boys so well.  What would we do without you all?

Hungary

France

The border between Germany and Austria

4.  We are hiring a friend to teach Vladik individual lessons at school.  I’m so excited and hopeful for him!  Starting next Monday he will go to school with the other kids in the morning, and his teacher will accompany him.  He will do music, PE, and art with Addy’s class (fifth grade), and then his teacher will give him his own lessons for the rest of the time. Vladik will attend school half day, 4 days a week.  I’m working on making the lesson plans and it’s quite the job, but necessary.  Vladik wants to learn, he wants to go to school like the other kids- and he should! I think he’s going to love it.  I’ll keep you posted!

5.  Today we re-submit our residency documents.  Hopefully, all is in order…otherwise, the 4 kids and I will meet our 90-day limit.  Yeah, let’s not think about that.  Everything will be fine.  Everything will be just fine.  No need to worry….ahem. Yikes.

Photos for residency: no smiles allowed!

6.  Guess who saved my life this past month?  GRAMMY!!!!  When Jed’s parents found out that I would be without Jed again, and this time here in Ukraine, Grammy hopped on a plane and rescued me. Seriously, if Grammy hadn’t come my kids would be running with the wild dogs in the street.  Things were at a critical mass around here.  She has cooked every meal and washed every dish since her arrival.  I bow at her feet. 🙂


7.  For all the Bluebell lovers out there, I’m happy to report that Bluebell is doing just fine.  She is happy and obedient and just a joy to our whole family.  She was a bit bored so we found her some new chewies at the grocery store.  Cow hoof, anyone?


Welp, Jed and Vladik are on their way home from the airport, so I better go.  Thanks all, for loving us and praying for us.  This has been a bit of a tough season, but we know that God’s plans are in motion and our trust is in Him!

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The Big School Question

It’s that time of year again!  School is on the brain.  School uniforms can be seen in every shop, little tents can be seen on the sidewalks selling school supplies at a discount. Here we goooooooo!

School is about to start and the Johnson family has (yet again) the big question looming over our heads: “What will we do about school???” I gotta tell you, I’m am SO OVER asking that question.  I’m over it! I have to admit to being a bit jealous of everyone who stays in one place and without much thought or debate knows exactly where their children will go to school each year.  I’ll admit to being a bit jealous of everyone who knows what to expect and what supplies to buy how to communicate with the teachers and what is expected of them and their children.  But, pity party over.  I realize that we will never be those people.  Time to suck it up and move on.  🙂

Uniform shopping!

There are several variables that make schooling a big challenge here.  First of all, we seem to be the only foreigners with kids around here.  If there are others they must be hiding because no one knows about them and no one has ever seen them.  Because our kids are, seemingly, the only foreigners and are not fluent in Ukrainian the schools have no idea what to do with them. ESL-type programs are nonexistent here because everyone is from here! I know that kids learn quickly, and will eventually catch up, but it’s not like Addy can just enter 6th grade here and on day 1 write an essay in Ukrainian.  There’s just no way!  Addy and Ez will absolutely need help and assignment modification, but if schools have never done that or considered that before, then their answer is usually just to put the kids in first grade over and over so that they don’t fail.  Hava will be fine because she’ll do first grade, and Seth will be fine in preschool/kinder, but we are pretty adamant this time around that the schools find some way for Addy and Ez to be with their peers.

There are four schooling options available to us:

1.  Local Public School.  PROS: Free, great opportunity for social integration, taught 100% in Ukrainian, opportunity to go to school with neighbors. CONS: Big class sizes, no ability to modify assignments for our kids, our kids would go to the village school which does not have a good reputation, a public school would not accept Vladik.

We sent Addy and Ezra to our neighborhood public school for a semester in 2014.  It was a fine experience.  They both did first grade and all went fine.  It wasn’t amazing, but it was okay.  I would be very hesitant to send them to public school in the upper grades. They are just not equipped to work with us.

2.  Local Christian School. PROS: Great opportunity for social integration, taught 100% in Ukrainian, opportunity to get to know other Christian families, smaller class sizes.  CONS: No desire to modify assignments for our kids, unsure if they would accept Vladik, they have a waiting list right now, so most likely we wouldn’t get in anyway.

We sent Addy and Ezra to this school for a semester in 2014 and it was just okay.  They wanted them to continue to repeat first grade until they were fluent in Ukrainian…so yeah, probably that’s not the best option for us.  NO WAY are we making them repeat first grade again.  NOPE.

3.  Home School. PROS: We know how to do it.  🙂 No language barrier or cultural barriers, they will not fall behind in study content and English reading and writing, more time together as a family, and more time to be involved in ministry as a family.  CONS: Social isolation (NO ONE homeschools here), far less exposure to Ukrainian language.

My heart longs for this option.  I love homeschooling my kids and I believe in homeschooling 100%.  It is cozy and wonderful and would be BY FAR the easiest option for us.  But, we know that we know that is not the option God has for us. If we call Ukraine our home, then we must give our children opportunities to be a part of Ukraine.  They will be absolutely isolated if we homeschool, and in a very closed culture, we must provide them with opportunities to be with other children and develop language skills. We are already the oddity everywhere we go.  We can’t just keep our kids at home.  We just know we can’t.

3.  Local Ukrainian Private School.  PROS: Great opportunity for social integration, taught 100% in Ukrainian, smaller class sizes, a desire to integrate our kids and modify assignments for them, open to Vladik.  CONS: We don’t really know anyone there so it’s starting all over.

This is the obvious choice for us at this point.  🙂

We met with the director of the private school this last week and the meeting was super positive.  She was full of energy, and right away it was obvious that the director and the teachers were excited to have our kids.  It was like they were excited to accept the challenge, which is a huge blessing to us.  We don’t want to feel like our kids are a burden to the school.  They are open to putting Addy and Ezra with their peers which is a HUGE blessing to us!  Maybe the most miraculous moment in the meeting was their reaction to Vladik.  There was not one moment when they debated if they would accept Vladik into the school.  They looked at him and were like “Okay, now let’s  decide where we should place Vladik.”  Not “if”, but “where”.  Miraculous.  We were almost positive that by bringing Vladik back to Ukraine we were basically deciding he would never get more education at a school, because Special Ed does not exist here. What a big surprise and blessing that they are willing to take him, and WANT to take him.  YAY!!!


At this point it looks like Addy will be in 5th class, Ezra will be in 4th class, Hava will be in 1st class, Seth will be in kindergarten, and Vladik…we’re still up in the air about him.  He will need a one-on-one who will help him in the classroom, and then take him out part of the time for individual instruction.  The school needs to find and hire a teacher for him, and then they will need to figure out which classroom is the best fit for him.  If you could pray that they find the best person for him that would be great!  It needs to be someone who will treasure Vladik and love him for who he is, yet not be afraid to push him to meet his full potential.

They are basically having us fill out a form that says Addy and Ezra have special needs, as well as Vladik.  This will enable the school to legally modify their assignments and give them their grades based on modified work.  We explained to the staff that our desire for our kids is language acquisition and social integration.  We don’t really care about their grades.  Seriously, grades are the least of our worries!  It is a battle to get educators here to realize that for Addy and Ezra, this is not a problem of intellect, but completely a problem of language.  They are smart!  They do amazing at school!  They just don’t have the level of Ukrainian they need to be able to function like the other students. They don’t need to be in second grade at 10 and 12 years of age, they need to be with their peers where they are socially motivated to reach their potential.

I have no idea how it will all pan out, but at least for now, we have a plan and a school that is welcoming us with open arms. The learning curve will be outrageously steep, especially for Addy, Ezra, and Havalah.  We’ll also need to figure out how they can get content and practice in English language stuff without burning them out…yikes. I’m super nervous for them, well for all of us, but trusting God that He will give them everything they need.

I’ll keep you posted as we go!

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All About Vladik: Seven Months Free

I wish every single person who ever met Vladik at Romaniv could see him now.  You would not know this child.

Jed is back in Ukraine right now and has been sending me tons of pics of my babies there.  When I see those pictures and then stop and think about Vladik living there I almost can’t even imagine it.  The boy I know now is so much different than the boy I knew there.  He’s a new creation.

I’ve said it before and I’ll say it again: Vladik is a miracle.  How could a child raised there be this joyful, this full of life, this loving, this generous?  Only God could do something like that.

General Transition: He’s a rockstar. Vladik is growing in his development in leaps and bounds.  His language is growing as well, both Ukrainian and English.  He’ll often ask us what certain words are in English, and if we tell him once he usually remembers.  So, now Vladik speaks a mixture of Russian, Ukrainian, English, and “Vladik speak”.  Everyone in our family understands about 99% of what he says, but it’s another story with the rest of the world.  Slowly and surely he is becoming more understandable.  He desires to communicate and his social skills have vastly improved, so we are not worried.


Vladik came to us with many institutional behaviors.  He didn’t know how to behave in most any environment and had a lot of nervous twitches- like sticking his tongue in and out really quickly, licking his hands, and putting his elbows up to his ears, almost like he was blocking his ears.  He would also make tons of inappropriately loud sounds at inappropriate times.  Like if there was quiet he just had to fill it!  If we were in a store or the library and it was quiet you could guarantee Vladik would start filling up the space “BEEP BEEEEEEP!  BEEP BEEEEEEP!”  Oy. We’ve come a long way baby. Now if he beeps we just remind him that he’s not a car and he instantly stops.  🙂 He is sensitive to environments and if all is quiet he is usually good about being quiet.  The only real nervous behavior he still holds on to is the elbows up at the ears, but that one is more and more rare.  He usually only does that if he knows he’s done something wrong, or if someone else is in trouble.  It’s wonderful to take a moment to think back at how far he’s come. Praise God!

Family: We’ve hit a point where it feels like he’s just always been here.  I no longer have that feeling like I’m the babysitter of a child who just always stays (that is a normal feeling in adoption, FYI). He is our son and it feels natural.  I couldn’t have said that even one month ago.  He still loves his Seth and I think when he had his surgery it bonded him more to the other kids as well.  They were all so concerned for him and that empathy really helped with relationship building.  He really is just one of the gang.  I’m so thankful for that.


  
School: Vladik started school a few weeks ago and is doing amazingly well!  In January he started seeing a tutor for a half hour a day while the school district found a classroom placement for him.  Then in the last week of March, he became a freshman at South Salem High.  Ha!  He’s in a self-contained classroom and we are so blessed by teachers and assistants who love him and treasure him.  Vladik LOVES school.  We started him going half a day at first, but now he is going full day.  Most of the fun, more active learning happens in the afternoon, so we knew he would really enjoy that.  Like every day his class gathers recycling from all the classrooms and they sort and shred it.  Vladik is kinda obsessed with the shredder. 🙂 Today he goes on his first field trip to a recycling center!  He could hardly sleep last night he was so excited to ride the school bus. I am so happy for him that he has this opportunity.  Sweet boy deserves every bit of joy and life that we can offer him.


Medical: Vladik had sleep apnea, so we had his tonsils and adenoids taken out on March 30th.  He also had the back of his throat expanded to make his airway larger.  He did great and has fully recovered.  We had a few scary hours in the recovery room after learning that his body is extremely sensitive to narcotics, but we learned our lesson on that one!  I’m excited to repeat the sleep study, but I can already tell you that the surgery made a big difference.  You know how when you have a newborn and they’re sleeping so still and silently that you have to go super close to make sure they’re still breathing?  Yeah, I had to do that the other night with Vladik.  🙂 I’m used to being able to hear Vladik sleeping from every other room in the house, but that’s not the case now!  He sleeps absolutely SILENTLY.  I’m so so so happy for him!!!!!!  His body used to have to work so stinkin’ hard just to get air.  He had to sleep with his head back and his back arched just to keep his airway open.  The ENT told us that Vladik probably had many very dangerous nights as a small child because his airways were so small.  Thank you God for protecting our baby!  Now I pray that he will start to gain weight since he won’t be working so hard just to sleep.
The next surgery for Vladik is on his right hand.  A plastic surgeon will be giving him a thumb sometime in May.  WOOHOO!  That is the surgery Vladik is so excited about.  We were hoping to do surgery on his feet first, but we won’t be able to.  The foot surgeon will be out of the country for the months of May and June and we will simply run out of time.  We need to be back in Ukraine as a family in August, so we have to let the feet go for now.  Most likely Vladik and I will return for that surgery sometime at the beginning of next year.  So now we just eagerly await insurance approval so we can schedule hand surgery!


Otherwise, I guess I can just say that Vladik is our joy and we love him more every day.  A couple months ago we started teaching him how to hug.  Vladik is very protective of his body and would barely receive a hug.  He would kind of back his shoulder into you and that was as good as it got.  He would often come and kiss my shoulder, but he was too embarrassed or nervous to hug.  We taught him that you give friends high fives, but with family, you need to wrap your arms around them and that is a hug. Now if I say “I need love” (in Ukrainian) he will wrap his arms around me and hug me tight.  And yesterday, for the first time, he initiated.  I was in the kitchen and he came in and said “LOVE!!!” And gave me the hugest hug! Melt.my.heart.

He’s just awesome and we are so thankful that we get to have him in our lives.  Precious, precious boy.


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The Sky’s the Limit

Since the beginning of December we’ve been taking steps toward putting Vladik in school for the rest of this school year, while we’re in the US.  It’s been a decision I didn’t expect us to make, but for many reasons it just seems right.  We aren’t set on him being in a special Ed classroom all day every day, we just feel that it makes sense to take advantage of the opportunities he has here in the US to be taught by professionals- before we head back to Ukraine and it’s all up to me. [GULP] On Monday we spent about 2 hours with a school psychologist and a speech pathologist and they evaluated Vladik.  They had never seen a situation like ours before: 15 years old, no educational history AT ALL, smart, but behind in everything because he’d simply never had a chance.  ZERO life experiences until 5 months ago.  Born at age 15. 🙂

Vladik blew them away.  His zest for life, his joy, his eagerness to learn- he is truly a miracle.

There may have been some tears in the room as we talked about how far Vladik has come-  from the cowering boy in the Isolation Hall to the brave boy shooting matchbox cars across the meeting room table.

Those two ladies got it.  They really and truly “got” it.  They saw the treasure in Vladik.  They saw the untapped potential that has waited years and years and years to be discovered.  They looked past his outward appearance and his awkward speech and institutional behaviors and truly saw the person.  Those two women saw the value in my son and I will be forever grateful to them for that.  At the end of the meeting they declared “We need to get this boy in a classroom! He’s waited long enough.”

And boy did they live up to their word, because today Vladik started school.

It will take a while to figure out which school and which classroom is the best fit for our boy, but they didn’t want him to have to wait, so they arranged for Vladik to start with tutoring in the meantime.  I think that was a fantastic idea.  Tutoring is the perfect transition for Vladik.

We started today and are just doing 30 minutes per day, 5 days a week.  Vladik’s attention span is like minuscule, so 30 minutes is about his max.  Plus, this is his first activity away from Mama and Papa, so it’s a great way for him to learn that we will always come back for him and it’s a really safe place for him to learn some independence.  The teacher speaks no Ukrainian 🙂 so, Vladik will be learning some English along the way!

Oh my, I made the rookie mistake of telling Vladik last night that he would start school today.  Silly me.  I should have known that in order to avoid approximately 372 questions about when we will go to school, I should have just waited and told him in the car on the way there. [live and learn]   But I just couldn’t wait to tell him!  He was jumping and laughing and clapping with glee.  He said “Addy has a school, Ezra has a school, Hava and Seth have a school, and Vladik has a school!!”  When I came to pick him up today at the end of his lesson he said “Mama!  This is my school!”  He was so proud.

I love that boy.  I picture him wandering the halls of Romaniv and my heart breaks in two.  He had so much more in him than we ever realized.  He had an imagination and a smart brain and a sense of humor and a great capacity to love, all just sitting and waiting for a chance.  Born at age 15, now my sweet baby can fly.  The sky is the limit for our boy.

March 2015 and February 2016

I dream of that same future for the rest of our friends who sit and wait at Romaniv.  I wonder what they will be on that day when their chance at freedom finally comes.  I wonder who will be funny and who will be super smart and who will have a knack for growing flowers and who will be great with the animals.  I do know that they will all exceed our expectations because the sky will be their limit.  And I pray that day comes soon.

Jed is working hard in Ukraine, deciding on the best property to purchase and meeting with government officials.  This God dream of ours is going to happen.  It’s really going to happen.  Doors are flying open in front of us.  People are going to see the beauty of our boys and they’re going to see their value, just like the school psychologist and speech pathologist recognized the beauty of our Vladik.  The joy of Vladik experiencing his first day of school is just a glimpse of the freedom that is to come.  We.Can’t.Wait.  When God puts a dream in motion the sky’s the limit!

 

 

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All About Vladik: Four Months Free

I think it’s about time for an update on Vladik, don’t you?  I know many of you love him very much, and have prayed for him for many years.  It is our joy to share his journey with you.  Some things I won’t share, just to protect Vladik’s privacy, but there is a lot I will share, because Vladik’s story is a great story of redemption and we just can’t keep it to ourselves!

General Transition: Vladik is doing unbelievably well.  He is a walking miracle in every way.  He sucks the marrow out of life more than anyone I’ve ever known.  He is also still the happiest person I’ve ever known.  He almost NEVER stops smiling!  And if he does stop smiling, or if he starts to cry, you know you better pay attention.  His cry is the most pitiful thing!  Maybe it’s because it’s so rare to see him unhappy, but when he starts to cry we can’t even handle it.  So so sad!!  He generally only cries when he is in pain (shots, blood draws, IV’s…) or when he is overwhelmed.  Like yesterday, at the end of a loooooong day of doctor’s appointments, we were sitting, waiting for the nurse to come back in the room and he just leaned into me and started crying.  It was so unexpected, and so sad!  He just really wanted to go home.

Vladik loves home.  He always wants to know which direction is home and when are we going home.  He calls our house “The Red Tomato” in Ukrainian, because it’s red. 🙂  He’s always gotta check in about where The Red Tomato is, and if that’s where we’re going next.  I love that he loves home, and I also know he always checks in about it because he’s still not quite sure that he will always be with us.  That’s okay buddy, keep on checking in as long as you need to. You’re stuck with us!

We still speak only Ukrainian to Vladik and have not really taught him any English yet.  But, we just decided this week to begin speaking to Vladik in English and Ukrainian.  We don’t want him to be on the fringes of our family in any way, and not having English excludes him from many conversations unless one of us translates.  It’s time.  This should be fun!  Ha!


Family: Seth and Vladik are still best buds.  Vladik calls Seth “Seppa” and Seth calls Vladik “Vladchik”.  They play together, fight together, laugh together and cry together (well, Seth does the crying…haha).  They are always hugging each other.  It is the cutest thing.  Seth is the leader, for sure, and can kind of take advantage of it, but Vladik is learning to stand his ground a bit better too.  He actually knows how to push Seth’s buttons, so yeah, typical brother stuff going on there. 🙂  Havalah is doing great with Vladik.  They don’t play together much, since Vladik doesn’t share a common love for Barbies, but Hava is always coming up to Vladik and giving him little loves.  She really loves him.

Ez and Addy have had a bit of a harder transition, which was to be expected.  It’s difficult to know how to navigate having a new brother that is physically your same size, but developmentally like a toddler. There are some habits that a toddler might display that are cute,  but when done by a toddler in a 10 year old body…not so cute, more just annoying…and LOUD.  Ha!  We have all had to remember often that Vladik has never been parented at all.  He has never had a family to teach him what is appropriate.  He has never had good social modeling.  He has never had any healthy relationship modeling.  He likes attention and will try to get it however he can- negative or positive- he’ll take what he can get, much to Addy and Ezra’s chagrin.  BUT, I will say that they have many sweet moments and over the past few weeks the positive moments have far outweighed the annoying, make-him-be-quiet-and-stop-touching-me-moments.  Yay!  Vladik is learning better how to relate to his siblings, and his siblings are growing in their love for him.  When you love someone you can accept a lot of behaviors that would have made you crazy before.  We talk a lot about choosing love, even when you don’t necessarily feel it at the time. Also, Vladik’s sense of humor is coming out more and more and he is making us laugh more all the time!  That helps those sibling relationships for sure.

Slowly but surely, he is becoming just one of the bunch.  They have all come so far!

Vladik does great with mommy and daddy. He loves us both and seems to be attaching appropriately. He doesn’t play us against each other like he used to when he was stressed.  He listens and obeys eagerly, 90% of the time.  Usually the other 10% of the time he needs only a firm voice and a reminder that it’s important to listen and obey.  We have done a couple “time-outs” and that has been super effective.  It’s really only “Okay, you didn’t listen so now you have to sit in this chair for 3 minutes.”  But, it is enough to get him to stop and pay attention.  He generally desires to obey.  When he is stressed we have to be a bit more firm with him to draw those boundaries in nice and tight, and he responds really well.



Medical: Oh my, have we been busy in this department!  Vladik came to us as a big mystery puzzle and we are slowly fitting all the pieces together.  Vladik is miraculously healthy.  Praise God!  Let’s start with the head and move down.

Head: We just had an appointment this week with the craniofacial surgeon and the neurosurgeon to discuss the results of Vladik’s head CT.  Boy was I surprised to hear their thoughts!  They both agreed that Vladik does not need any skull surgery.  What????  I was all prepared to hear a plan and instead heard, “He’s dismissed from our service!”

I guess I’m not yet sure if we should be relieved or if we should seek a second opinion.  I have an email to an expert on Apert Syndrome and am waiting to hear his thoughts.  Right now we are choosing to trust the doctors and be thankful. 🙂  This is their rationale: the CT showed that all of his cranial sutures are already closed.  Because he is 15, his head is done growing and his brain is done growing.  His dilated eye exam showed there is no pressure on his optic nerves, and he does not show any signs or symptoms of intracranial pressure.  Because of this, there is no need to expand his skull.  They said that if he doesn’t have intracranial pressure now, there is no reason for him to develop it later because his head is done growing.  It all makes great sense.  I guess we just really want to make sure we get this one right, which is why we are considering a second opinion.  Prayer for wisdom about that would be appreciated!

We are unsure how much of Vladik’s delay in development is because of restricted brain growth in his earlier years.  If he had been born here he would have had skull expansion surgery as an infant.  The doctor said that unfortunately, because he was not treated, that damage is already done and now it is too late for treatment.  So, we are glad we don’t have to deal with skull surgery, but we also mourn a bit for what might have been if we had gotten to him earlier.

Eyes:  Vladik’s eyes have many of the typical traits of Apert Syndrome.  They are placed in a different position on his head and even the eyeballs are rotated out a bit.  He has good vision and does not need glasses…yay!  But he does not use his eyes together and they are often crossed.  He will have eye surgery this spring to adjust the muscle position a bit and help him to use his eyes together.

Teeth: Vladik’s teeth are actually not in horrible shape!  Sure they are funky, and he could really use some braces, but health-wise, they are not bad at all!  He had two old fillings with decay underneath that we have had replaced and he got two crowns.  He did amazing.  We won’t be able to tackle orthodontics until we get to Ukraine. It’s too long of a process for us to undertake here in the US.  Because of that, we can’t really do any mid-face surgeries, as those must be coupled with orthodontics.  Midface surgery, in Vladik’s case, is not a medical necessity.  It would be more cosmetic, I guess, and honestly for a child with Apert Syndrome, Vladik’s midface is actually not in a bad position!  It doesn’t seem to affect his airways at all.  Because of that, we have opted out of those surgeries.  It just isn’t possible, with our living situation, to couple anything with orthodontics.


Ear, nose, throat:  We have yet to see the ENT doctor (grrrr), but we have been pushed up in the priority list as of yesterday.  Vladik had a sleep study and it showed he has obstructive sleep apnea.  He snores and gags and chokes and coughs all night long.  The craniofacial team is recommending a modified tonsillectomy (can’t do a full one because of his cleft palate).  Hopefully taking part of the tonsils would help his apnea enough for him not to need CPAP.  All the other surgeons agree that if a tonsillectomy is going to happen, then that needs to happen before any other surgeries.  Simply because airway management during anesthesia will be much easier if his airway is more clear. So, we are looking forward to that appointment. The ENT will also order hearing testing, as recommended by the cranio docs.  Vladik’s speech is still pretty hard to understand and they want to rule out hearing loss.

Hands: Can you believe the physical issue that has caused the most angst so far has been fingernails????  OMG.  Vladik’s fingernails are so difficult to manage!! They are fused, like his fingers, and just a pain.  We have been dealing with an ingrown fingernail since November that eventually led us to the ER because everyone is afraid to touch him. We FINALLY saw a hand surgeon yesterday (as a follow-up for the nail) and he was awesome!  He would like to give Vladik a thumb!!  He is suggesting starting with a thumb and seeing how well Vladik can learn to use it before trying for anything more.  Because of his age, it looks like from the x-rays that it would be very difficult to separate the other fingers, plus, we then run the risk of him not gaining great use of them because of his age and the lateness of a surgery like this.  We agree.  Having thumbs will absolutely change his life.  We told him last night that the doctor wants to give him a thumb and he was flipping out!!  He was pounding the table and shrieking and laughing.  Ha!  It will be amazing. The doctor suggested just doing one hand at a time, so as to not incapacitate him, but honestly, he needs both hands to do everything anyway, so we are going to ask for both thumbs to happen at once.  We’ll see!

We already have been waiting for months for an appointment with the hand surgeon at Shriners and our appointment is finally coming up at the end of the month.  We’ll go and see what that surgeon has to say and then make our decision. It’s so exciting to hear that Vladik could have thumbs.  That is what we hoped for.  SO SO EXCITING!!!

Feet:  We saw a foot surgeon at Shriners in November and he saw right away that Vladik would greatly benefit from surgery on his feet. Vladik’s feet are so funky.  They are almost impossible to fit for shoes and they always look so painful.  They are very misshapen and there are sores on the bottom of his feet where all the pressure lies.  The doctor wants to basically reconstruct his feet- lengthening some bones and shortening some others. This will help him so much as he grows and (hopefully) gains some weight.  The downside is that the surgery will land him in a wheelchair for 8 weeks.  OUCH. Trying not to think about that one too hard.  Wheelchairs are very traumatizing for Vladik.  I can’t imagine how he will react to not being able to walk.  I’ll let you know when that surgery comes up so you can be praying!


Vladik talks often about his old life.  He is faithful to tell us daily he doesn’t want to go back to his old house.  Just in case we should forget!  🙂  He talks about sad things that happen there and whenever he talks about it he uses the word “thunder” in Ukrainian. He talks about how there was a lot of thunder there and covers his ears.  These days it’s hard for us to even imagine Vladik there.  I feel like the Vladik I knew at Romaniv was a scared shadow of the Vladik I know now.  He was always scared, always in fight or flight mode, pinging from one thing to another.  He even stands differently now.  Before, he was hunched over like a cowering little boy.  Now he walks straight and tall.

He has a wonderful sense of humor and loves to make us laugh.  He is loving and kind.  He teases his sisters and is obsessed with microwaves.  He loves all things Lightening McQueen, and calls any kind of case with a handle a “businessman”.  He likes cheese and apple juice and Reeces Peanut Butter Cups.  If he doesn’t have borscht every few days he’ll let me know it’s time. He likes to do laundry and even cleans out the vent and adds a dryer sheet before starting the dryer!  He is such a special, quirky little character.  To know him is to love him.

The more we meet with doctors and tell his story, the more I am in awe of God’s protection over Vladik’s life.  That he survived living where he lived, without any surgical interventions, is unbelievable. He is so smart. He is so independent.  Everyone who meets him falls in love almost instantly.  I’m actually crying as I type this.  How did we get to be the ones to win this lottery?  I can’t even wait to see how he continues to grow and change as he gains confidence in the fact that he is loved and he will never ever go back to his old life.

Thank you Jesus for our sweet boy!

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