Category: Deinstitutionalization

When Plans Must Change

This is a post I never imagined writing. In fact, we took all the precautions imaginable to try to prevent a post like this from ever happening, but, here we are.

This past weekend we had to remove our dear Anton from our home.

Anton has struggled off and on with aggressive behaviors basically the whole time he’s lived with us. It kind of surprised us because he was not aggressive at Romaniv. In fact, he was the most meek, quiet, subdued and shy man you could imagine. Almost all of the boys and men at Romaniv are aggressive to some degree. Aggression is the language of institutional life. And since Anton lived there from the age of 4 till we took him home at age 30, that was the language of his childhood, his teen years, and his adulthood. In an institution like that only the strong survive. The pecking order is well-established and the stronger abuse the weaker. It’s what Anton knows, but since he himself was not aggressive, we felt okay bringing him home. Also, we knew God said Anton was our family, so we listened.

Once Anton started to act out aggressively when upset or not feeling well, or when he didn’t get his own way, we were a little surprised (although not completely- we tried to be “prepared for anything”) and sad, but also hoped that once his language abilities grew and he felt safe, his aggression would diminish or maybe even completely go away. We still hope for that!

In the past month or so Anton’s aggression has dramatically increased. When awake he has been in an almost constant state of stress and keeping him from escalating has become a full time job. This past weekend it became obvious that it was not safe for him to be in our home with our children for even one more day.

Let me say right now that we are 100% committed to Anton- legally, and in our hearts. We love him so so much, and we know that this is not who he wants to be. He desperately wants to do the right thing. Anton can be fun-loving and tender-hearted. We truly believe he doesn’t want to hurt others, but he is working through something and it’s not safe for him to work it out in close proximity to small children. Maybe this is a stage in his healing and he will come out on the other side even more loving and more like his true self, but while we are committed to helping him heal we also have to consider every person in our family. Boris and the little ones can’t be sacrificed during Anton’s healing process. He’s a full-grown man and his emotions are big. We realized this weekend that we had to find another way.

Right now we have Anton staying in an apartment in town and our team is taking turns staying with him. Today Jed is out with a realtor looking for a more long-term apartment that Anton can live in until the duplex is finished, and then we plan that he will live there. We are hoping to find 2 guys who will live with him in the apartment. He can spend the daytime with our team like always, and then have his evenings and weekends at the apartment.

Our hearts are broken, and in just the last few days our plans and ideas for our family have been turned on their heads.

When we brought Boris, Anton and Ruslan into our home we planned they would live with us, in our home, for life. But it seems God has other plans. Yes, the duplex is literally right outside our back door, but it’s still not what we had planned. At the same time, we have a responsibility to our kids, and we also know we can’t help transition other boys to the duplex and then the next home after that if 100% of our attention has to be focused on just keeping the people in this one house safe. We have to have some margin in order to keep our family and Wide Awake, as an organization, healthy and growing.

Our dream of “family-style homes” is still the dream. But God is kind of asking us to redefine in our minds what “family” means. Family doesn’t have to mean a mom, a dad, and a bunch of kids. That scenario doesn’t work for every person- especially when we’re talking about people who have been so extremely abused and traumatized for so many years. Sometimes family needs to be smaller, quieter, and more controlled, with fewer moving parts. We have 6 kids. Our home will never be quiet. In my mind, it’s a peaceful chaos, but I think we are learning that it’s just not the best environment for our Anton. “Family” is a place where you are loved and accepted as you are. It’s a place where you are supported and encouraged to grow into your full potential. We can still provide that for Anton.

We’ve cried a river of tears over the last few days. My mind just keeps trying to figure out a way to keep him here, but I’m also in awe of how much more peaceful it is here without feeling like we have to protect everyone from Anton every minute. I didn’t realize how much of our hearts and minds and household routine were consumed with keeping Anton from escalating. It’s just not sustainable if we are committed to these guys for life and if we’re going to be able to bring more boys from the institution.

My heart screams that no one can love him as deeply as I love him. How can I entrust him to another? He must be so confused. He’s one of my babies and I know he loves me just as much. But right now he needs something that I can’t give him, and my heart needs to trust that God’s plans for Anton are good and He is not surprised by this turn of events- even though we are.

That’s where we stand now. We would so appreciate your prayers during this time. We need so much wisdom. Anton needs so much peace. We are visiting every kind of doctor available to make sure we are not missing some physical ailment that is causing him pain or stress. We will not give up on our boy.

We met with our team on Sunday night and were amazed and encouraged when we stood back and realized we were in a room FULL of people who love Anton and want the best for him. Jed and I are not alone in this. I thank God for our wonderful, loving, committed team.

If you have any questions don’t hesitate to ask. We have no secrets and always want to be honest about the journey, while also maintaining Anton’s dignity.

Thank you for loving us and believing in this work.

BeLOVE[d]

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If You Build It…

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The roof is going up on the next home for our boys and I realize that I haven’t written a lick about it! In fact, if you follow this blog much you may have noticed that I haven’t been actually writing about much of anything at all. It’s been silent here on the blog, but that silence doesn’t reflect what has actually been happening here in Ukraine. It has been busy here, as usual. 🙂

We have room on our property for our current home, plus 2 duplexes. The plan is for each side of each duplex to have space for 4 boys/men from the institution, plus space upstairs for the people who will be their family.

The first duplex is well underway and it is HUGE!!! I’m kinda jealous and wish I was going to live in it! The homes are going to be fabulous. We’ve learned some lessons from our current home setup and have designed to meet those needs in the plans for the duplexes. For instance, the duplexes will have toilets separate from showers, more toilets, a “family space” upstairs for the family who will live in the home and for guests, a separate bedroom for each boy, and a lockable pantry in the kitchen that will also house the refrigerator. The homes will all be fully accessible and up to ADA standards. Not to mention, they’re just going to be flat-out GORGEOUS! So many windows, so much natural wood, so much light. So much excitement!!!

We are hoping to keep a steady pace on the build so that the first duplex will be completed in the late spring or early summer. We need another $30,000 to complete the project. In the meantime, we are praying about which boys will live in the first homes and figuring out the process for securing guardianship of them. If we take anyone under the age of 18 everything is done differently than if we take adults, so there will be a learning curve there. Also, most of the boys under the age of 18 have parents, so we will need to work alongside them to see what supports could be put in place for reunification, and if that is not possible, then we need to make a plan for how we can work alongside the parents in caring for the boys here at the Homestead. So much to consider! Right now the plan is that one side of the duplex will be for children (under the age of 18) and the other side will be for adults. The current children at the institution are all 13 or 14 years old, but developmentally much younger.

Our focus in choosing boys at this point is pretty much zeroed in on the Isolation Hall. The boys and men there have significant medical needs that will never be addressed properly in the Institution. They are the ones our work has pretty much centered around in the last 5 years with our interns and our volunteer teams, so it makes sense for us to put our attention there, in the beginning. But of course, we are very open to God’s leading in this. We need so much wisdom and clarity!

The elephant in the room of this whole project is the question of who will live in the duplex with the boys?

Yeah, that’s a good question. And the answer right now is…we have no idea.

We are currently working on a job description and ministry description because the time has come to look in earnest for who will join us in this work. We need people who will live in the duplexes with the boys like we do in our home, and we also need people who will live off-site and come in as daily help to the Wide Awake machine (Romaniv work, administrative help, in-home helpers, Special Wednesday helpers…the list goes on and on). It’s just gotten to the point where if we don’t bring more help in the growth will have to slow, or even stop, and we don’t want that to happen. Our boys need OUT.

Our dream is that a blend of Ukrainians and foreigners would work together to care for our boys. Ukrainians are the obvious choice. They have the language, know the culture, and already live here. But at the same time, we see the benefit of outsiders coming in to join as well. Westerners come into this with different eyes and a different perspective. Ukrainians have been raised to see people with disabilities in one way, and an outside perspective is just really, really helpful- especially when you’re fighting for change in a culture that, historically, does not accept or recognize our boys as valuable.

Another benefit to outsiders coming in would be friendship for us. 🙂 We have a Ukrainian team that we love so much. They are our family here and I don’t know where we would be without them and their friendship. We also long for friendship with people in our native tongue. We long for relationship with people who understand where we come from and who can understand us fully. It is a deep desire and need for us, personally, if this work and life is to be sustainable for the long haul.

So, here’s to hoping and praying that if we build it…they will come!

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We have no doubt that God has the right people in mind to help on this journey. He has provided the land, the funds to build the home, and the boys to fill it. There’s just no way it’s going to sit empty because of a lack of helpers. So, we pray and begin to actively seek out who those helpers might be.

If this strikes a chord with you and you find that it’s something you just can’t let go, can’t forget, let’s talk. It’s certainly not a romantic call, but it’s an important one. I can promise a YES to this work will never leave you bored. Hehe.

To all who have given to help make this duplex a reality- THANK YOU! It’s really happening! Thank you for believing in this dream and in this work. We can’t wait to fill it to the brim with life and love.

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Eight Months In

We’re coming up on 8 months with Anton and Ruslan and I feel like we’re slowly starting to come up for air. Caring for our guys is still pretty much all-consuming, but we have gotten in to a bit of a rhythm, and things are looking up!

Sometimes it feels like their progress is so minuscule, but then we look back and remember things we had to do a few months ago just to keep the peace around here and we see how far the guys have come. Very far!

Anton. Six months ago we were barely sleeping because Anton was up all hours of the night wandering the halls. I remember we used to have to turn off all the water to the house and unscrew all the downstairs lightbulbs before we went to bed every night because Anton would get up and try to take a bath at 3 in the morning, or shriek and hoot and holler at 2am so that we would get him up and feed him. We had to remove all options in order for him to be able to turn his brain off enough to rest and fall asleep. At one point Jed was sleeping on a couch in front of his door to remove the option of nighttime wanderings. Those were the days…yikes.

Now I can happily report that Anton goes to bed easily and doesn’t get up until at least 6:30 every morning. (knock on a biiiiiiig ol’ piece of wood 🙂 ) His sleep success is thanks to a strict evening routine that we dare not stray from, and blessed medication. The combo of the two saved our lives.

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He’s saying a lot of words, and more and more often he says them at the appropriate times! He used to only really speak when he was angry, but now that’s not always the case. There are so many words in there and sometimes he’ll shock us with a “See you tomorrow!” (in Ukrainian of course) or something like that.

Anton gets stressed pretty easily, and when he doesn’t feel good, physically, he gets really worked up. In times of stress he is aggressive toward others, so that is a big bummer. I hate those times because I know he is just repeating what he’s seen his whole life and it’s not the real Anton. When he is in an aggressive mood it just becomes a matter of keeping him separate from everyone else and that is exhausting. I hope and pray that someday Anton will be able to express his emotions in ways that are less painful to others. We are doing all we can to help him learn a new way.

When Anton feels good and is at ease he is so joyful, sweet and fun-loving. He loves big bear hugs, dancing, toy cars and fidget-spinners. He enjoys stirring things in the kitchen and will gladly eat anything and everything you put in front of him. He has started to say “I love you” on occasion and this week he said “Mama” for the first time. Melt my heart.

Ruslan. To be honest, it’s hard for me to write about Ruslan because I’m unsure how much to share. Whenever I share about our boys I want to respect their dignity and respect their privacy. It’s so important for me not to overshare their personal struggles. At the same time, I always want to be honest about this process. It does none of us any good for me to pretend all is unicorns and rainbows when they so clearly are not. This is stinkin’ hard work for us, our team, and our boys every.single.day. Most of all for our boys. Learning to become a human after 20+ years of living like an animal is not an easy process to go through. They need our empathy and our compassion, but they also need our strength. They need to have a standard to rise to, expectations to meet. They need to know we believe in them and we want more for them because we love them!

Ruslan’s trauma presents itself as high anxiety and a need to be in control of everything. At Romaniv his world was small. The stressors were crazy HUGE, but there were few of them. His main priority there was keeping himself safe and keeping himself fed. Here in the real world, the wider world, there are many, many things outside of his control. There are so many more things for him to obsess about and be anxious about. If it’s not one thing it’s another.  He wants desperately to control his environment, but when you live in a house with 10 other people you just can’t control every single detail. That is outrageously hard for Ruslan. Sometimes it seems like it’s only getting harder, only getting worse, but he has actually made some great strides in the past few months. A few months ago he was was having daily meltdowns and those really only happen on rare occasions now. You can see him ramping up for a meltdown, and then most of the time he can wind himself down. Not always, but most of the time. I’m so thankful for that!

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When Ruslan is relaxed and at peace he is hilarious. He has a great sense of humor and a compassionate heart. He really loves Evie and is mostly gentle with her. He loves to sing, and worship time at church is his most favorite thing EVER. The anxiety ridden Ruslan who acts out in fear holds back the real Ruslan. The anxious Ruslan is also extremely hard to live with. It breaks my heart because I want things to be different. So, we will continue to fight for him. We will fight to get him all the help we can so that he can live his life to the fullest.

We have waited a bit to see how things would play out with a highly structured day and several months of safety and now we have an accurate baseline for Ruslan. We are ready to seek out psychiatric care for our guy and see how we can best help him move forward. If you would pray with us for wisdom in this we would really appreciate it.

Health. As far as medical stuff goes for both guys, we’ve been slowly but surely getting things taken care of. Fridays have become our “medical day”, so Kenny and I try to tackle the different medical appointments on Fridays. We’re focused on dental stuff right now and that’s super fun since Kenny and I both HATE going to the dentist. I’m not sure how much moral support we provide, but we do our best. Hehe. Anton has one problematic tooth that should be fixed next week and Ruslan has a whole mouthful of problems. I’m not sure he’ll have any teeth left when we get finished. Poor guy. 🙁 I’m guessing we’ll be exploring the world of dentures or implants in the near future. Anton has some physical symptoms that I don’t have answers for yet, but all in all I think they are both in pretty good health at the moment. Step by step we’re getting there!

I have to say that there is no way we could do any of this without our amazing team. Kenny and Oleg are with us Monday through Friday, bathing our guys, shaving them, taking them on bike rides, teaching them how to make tea, keeping them safe, talking them off the ledge, teaching them how to be men, loving them, comforting them, supporting us and all in all just being awesome. This really would be impossible without their help. We would have burned out months ago.

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Masha, Masha, and Lesya are also absolutely essential to the success of this home. “Harry Potter Masha” 😉 comes to our home three times a week. She plans and organizes the guys’ schedule for the week and is learning to implement the plans that Olya, our wonderful OT, recommends. Masha’s work makes it so that we aren’t just spinning our wheels with the guys, but we are hopefully moving toward specific developmental goals. “Second Masha” and Lesya each come once a week and provide great additional support to our guys and the rest of the team. I love our team and can’t express how thankful I am that God brought each of them to our family.

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So, there’s a bit of an update on our two newest family members. If you have any questions about Anton or Ruslan, or the process of deinstitutionalization don’t hesitate to ask! My hope and dream for writing this out is that someone reading it will also feel called to this deep, difficult, and beautiful work. We need help and I know God will call the right people to join us. I also write this so that those of you who pray will know better how to pray for our family and our team.

To all of you who pray, support, encourage and love us from afar, thank you! We can’t tell you how much we need it and appreciate it. Thank you for partnering with us on this journey. We couldn’t do it without you!

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Superheroes Live in Our House.

Sometimes I don’t know completely what I’m thinking or feeling until I write it out. You’ve been warned. 🙂

When we moved to Ukraine 5 years ago our mission was clear: to bring hope, love and dignity to people with disabilities. Our main goal was deinstitutionalization.  We dreamed of this work. We dreamed of this reality. We dreamed of the day we would begin to bring our guys out and have the opportunity to show them the love of a family. I dreamed of being a mama to them- to those who had no mama.

Now we are living that dream. It is a reality!

Four of the very ones we dreamed of setting free are downstairs drinking tea at the kitchen table. The ones who can speak call me “mama”. I dreamed of that. 🙂

Yes, I dreamed of it, but now that it’s here, I struggle with the reality of it. The day to day of it is harder than I imagined- much less romantic than I imagined. The reality of deinstitutionalization of adults who are so very broken- body, mind and spirit is non-stop work with very little reward. Yet I longed for it. I wept for it. I dreamed of it. But it’s so dang hard. So.dang.hard.

Where’s the disconnect? I love our guys. I can’t imagine not having them with us. Then why do I struggle so bad with their behaviors?  Why am I so often annoyed? Why do I (too often) wake with dread in my heart over the hardships I know the day will bring?

I can tell you why. Two reasons:

  1.  Far too often I try to do this work, live this life, without Jesus.
  2. As much as I fight for our guys to be included and seen as equals by the people around them, in my heart, I still see them as “less than”.

Friends, this work will bring you to your knees. Spending your life with the broken, teaching them to become human is a work that will break you. Well, I guess I can’t speak for you, but it’s definitely breaking me. Every single day I’m confronted with my own weakness, my own ugliness. It’s so yucky. Here I am fighting for justice for our guys; trying to show Ukrainians a new way, and yet I know that I don’t value them the way they deserve to be valued. Somehow, even after knowing all they have suffered, I still have a bit of my heart that looks down at them.

God forgive me.

I put my agenda before them. I dismiss their feelings as less important than my own. I shower love on them when they behave more human, but when they move into old behaviors I withhold my affection.

God forgive me.

I find myself realizing that those who are “lower functioning” (I hate that term but don’t know a better one) are generally easier for me because they require less of me. I can care for them more on my terms- when it’s convenient for me. The “higher functioning” of our boys demand more. Their struggles, feelings and hurts are presented in more complex ways and I’m exhausted with trying to make sense of it all, so I sometimes give up.

God forgive me.

As you’ve figured out, if you’ve read this far- I am far from a superhero (I’m sure you already knew that). I am a super flawed human who screws up on the regular. I function too often out of my own strength, which is consistently running out.

I need Jesus. Guys, I have zero business getting out of my bed and letting my feet touch the ground without first talking with Jesus. I’ll tell you what happens when I try to do my day in Kim’s strength. I’m short- like I have zero patience. I’m easily annoyed. I find more joy in my coffee than in the people around me. I’m discontent. I search for approval from others. I look for distraction. I compare my life to the lives of others and I either envy them, judge them, or puff myself up. Bottom line: Kim minus Jesus equals HOT MESS.

I’m not sure why I think I can do this on my own when I so clearly stink at it.

And yet-

His power is made perfect in my weakness. God has called us to this work and I know that I know if I turn to Him He will give me everything I need. Tomorrow is a new day and His mercies are new every morning. Amen?

I’ll tell you who the superheroes are around here: their names are Ruslan, Anton, Boris and Vladik.

Our guys have endured unimaginable pain, abuse and neglect. Their childhoods were stolen from them. Their teen years were stolen from them. So many missed opportunities, missed birthdays, missed cuddles, missed “I love you”s, missed adventures, missed family dinners, missed holidays, missed moments of peace and joy. Ruslan, Anton and Boris spent 3 decades as prisoners, innocent of any crime.

They came to us afraid, diseased, malnourished of body and spirit. But every single day they wake up and they try again. They are survivors. They are learning to give themselves to others, learning to become human. I’m certain it hurts them far more than it hurts me.

Our guys are deserving of the best- not because of what they have endured and not because of their likability, but because they are children of God, created in His image, just like you and me.

I’m done. I’m done holding back a part of my heart and selfishly longing for something different. I’m done parceling out my love to those who “deserve it” in that particular moment.

I’m here. I’m planting myself. No matter if our guys are every fully included in society here in Ukraine, they will fully be included into my heart. Not everyone is lucky enough to live with superheroes, but I get to live with 4. I’m one lucky lady. 🙂

BeLOVE[d]

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“International B-Mo Day”

Today marks ONE WHOLE YEAR since our beloved Boris was taken out of Romaniv and joined our family. ONE YEAR! It feels like it has flown by, but it also feels like he’s been with us for a lot longer.

Learning to love and care for Boris has been the most character-defining time in my life. I’ve said it before and I’ll say it till the cows come home: caring for the weak and broken is a fabulous way to expose your own weaknesses and areas of brokenness. I thought I was a pretty okay person until B-Mo joined us. He has taught me the extreme selfishness in my heart and the extreme impatience as well. I will be forever grateful to him for this. Not that those battles have been won, but at least now I can see that the battles are there and the areas where I am exposed.

We had no idea what to expect when we took Boris home last December 18th. I remember that he knew the day was special. As soon as I entered the Isolation hall to get him dressed he grabbed my hand and scooted toward the door like “Let’s get outta here!” Now that I know him and I know how smart he is, of course he knew the day was special! I’m sure he heard nannies and others talking about it for weeks in advance. Sweet boy. Boris is no dummy.

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I remember how when we pulled up to the driveway he was afraid to get out of the van. Jed eventually had to pick him up and carry him into the house. I remember how after he ate he tried to grab all the food he could off the counter. I remember how we had to feed him and how he was so impatient because he was used to food being shoved down his throat at such an amazing speed, he didn’t know how to eat slowly.

I remember how in those first days he was quiet and only interested in sitting on the couch alone.

I remember the first several months when Evie was born and Boris’ honeymoon period was over and how we (mostly I) cried every day. “How are we going to do this? Why did we do this? I can’t live like this forever…” I’m going to be painfully honest here. There were many days last spring when I had major feelings of regret. Not regret like “Let’s take him back to Romaniv”, but regret like “I regret that I chose to do this with my life.” Seriously. In those days, Boris had his good moments, but they were few and far between. He was mostly just unhappy and disregulated and demanding. Nothing was good enough. Nothing made him happy (except for riding in the car”. His self-harming was at an all time high and the only saving grace was bedtime, because thank God, Boris has always stayed in his bed at night. Every day I woke with dread. It was a dark time.

And now? Now those moments seem like ancient history. Now? Now I love my Boris/B-Mo/Beemchick/Borya/Borka/Beemo-my-Weemo like I never thought possible. I adore him. He blesses my heart and he is a gift to our family. With his small, broken body he is teaching us thankfulness and contentment and perseverance. But don’t be deceived, he isn’t perfect! He still loves to punch himself in the head whenever he gets the chance. He loves to throw fits at the dinner table and will throw his bowl and cup on the floor any chance he gets. He will pee his pants if he’s mad and all that jazz, but guess what? I’m not anything close to perfect either. I’m impatient and short and so so selfish. The difference is now, now we know each other. Boris is known. He is known and he knows us. We get each other and we know what to expect from each other. He has become a part of us- an irreplaceable member of our family, adored by all. After a lifetime of being treated like an animal, Boris is becoming human.

In Romaniv Boris was basically silent. Now I can say with confidence that Boris is THE LOUDEST member of our family. Oh.my.word. He has a lot to say and and is determined every day to make up for his 26 years of silence. He doesn’t say words, but we all understand his “B-Mo talk” just fine. We know what sounds are happy sounds, impatient sounds, wanting sounds, angry sounds, scared sounds. We know his favorite music and foods, and he has definite preferences in people. We know him, and being known is part of what has helped Boris in becoming human over this past year.

I am so thank that God has given us the gift of our Borya. I get teary just thinking of all the years we missed, but I’m so thankful for all the years to come. He is our sunshine blessing and our whole family is changed by him. At some point along the journey we realized we would be devastated without him.

So today we will celebrate our little Beemchick with cookies and hugs. We will kiss him and tell him how much we love him. He might not understand the big deal, but we do. We can look back and see a life redeemed, and we are thankful.

We’ll love you forever, our precious Boris. ❤️

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10 Things I’m Learning

Every day is an adventure around here. You just never know what the day will hold! We are definitely in the trenches right now with our new guys, but are seeing little signs of progress along the way. There were a few weeks in there when I woke each morning with great fear of what the day would hold. I don’t feel that as often anymore. The days (and nights) are still unpredictable, but the better we know our guys and the better they know us, the more tools and relationship backbone we have when the rough moments come. Things are looking up, slowly but surely!

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Things I’m learning right now:

Routine routine routine. Nothing beats a good routine. Our guys thrive on it like nobody’s business. They seem so much more at peace when they know what’s coming next.

Routine routine routine can also turn around and bite you. In other words, a change up in the routine can really throw a wrench in their day. Yikes.

Double (or triple) every recipe, every time. 

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Keep the bedside loaded. Anton sleeps better if all his fidget spinners (even the broken ones) are at his bedside during the night. He just likes to know they’re there.

Time spent on character building is time well spent. When it comes to homeschooling, character training comes first. It is not a waste of time to spend time on character building. Good character is what it’s about! Who cares if our kids are super smart but lack character?!

A load a day keeps the mountain away. One load of laundry a day keeps things manageable. Two a day is even better, but at least one must happen or we drown.

Outsource cooking. Vladik cooks a big ol’ pot of soup every week with his teacher, we pay a neighbor lady to make lunch once a week, and I’m currently teaching Addy to cook dinner one night a week. In a world where most everything has to be made from scratch and I’m feeding 10-13 people 3 times a day, these kitchen respites are saving my life.

Spiritual Disciplines matter. We have no business walking into our day without putting Jesus in His proper place in our lives. We need him for every breath.

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Sleep is overrated. Between Anton’s middle-of-the-night roamings, Boris’ middle-of-the-night screechings, and Evie’s middle-of-the-night feedings I’m learning to hold on to sleep reeeeeeeeal loosely.

All people are precious. People will not know they are precious unless someone tells them and shows them they are precious. It’s easy to say, but harder to live. At times it seems our guys want to make themselves as unloveable as possible, but still, in those moments, we must show them that they are precious and loved. Every time they rage or yell or cry or harm themselves it is communication. In those moments they are crying out “Do you love me? Am I lovable? Do I matter to you?” Ruslan asks in words, “Do you love me, Mama?” Anton asks with his eyes, forehead touching mine, eyes searching. My prayer is that in those moments, no matter how tired I am, no matter how hard my buttons have been pushed, no matter if my feelings have been hurt- my prayer is that my answer will always be “Yes. You are precious and I love you.”

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The Lonely

Yesterday we got Anton and Ruslan’s medical histories from the institution. Oh my heart. Twenty plus years of their life, summed up in doctor’s chicken scratches on paper yellowed from time. We know the basics of how they spent the last 20 years. They sat on benches inside in the winter, and sat on benches outside in the summer. End of story. The medical files are the only hints we have of any significant life events outside bench- sitting.  They are our glimpse of our boys’ past- those, and a photo of each boy from time gone by.

My heart leapt and sank when I saw the photos. My babies! Oh my dear ones, I’m so sorry you had to wait so long. I’m so sorry you had no mama to comfort you, no papa to guide you. I’m so sorry you endured such abuse and neglect when you could not defend yourselves. You were so young, so small. My heart is broken for the little boy left at Romaniv alone and afraid.

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Ruslan, age 10

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Anton, age 16

Our life here is a full one; full of responsibilities and full of people. But our life here is also a lonely one. Our lives are completely absorbed with the care of people whom the society has thrown away. Our time, energy and love is wrapped up in people who are not accepted in this country. Our work is isolating. Couple that with language barriers and cultural difference, and then add the distance from loved ones…sometimes the loneliness of this life threatens to overwhelm.

The other night I was rocking Evie to sleep in a quiet, dark room. My thoughts were wandering and all of a sudden I was completely overwhelmed by loneliness. It washed over me like a giant ocean wave. I’d never felt anything like it. Evie wasn’t asleep, but I had to leave the room, lest my mind wander to a verrrrrrry dark place. I wept as I longed for family and friends far away. I lamented my lonely and often isolated existence in my Ukrainian village. I wished for the peer relationships with other moms that are non-existent at this time of my life when I need them so badly. If there ever was a “woe is me” moment- that was it. Not.pretty. Yikes.

I share that story not to bring pity on myself or to fill my inbox with messages from concerned friends, but to share what I am learning from it.

The feelings of loneliness I have are only the tip-tip-top of the iceberg of the loneliness our guys lived with their whole lives. In Anton, Ruslan and Boris we are seeing the effects of how 30 years of utter aloneness and helplessness shape a person. The effects are devastating. In my own loneliness, which greatly pales in comparison to the life they have known, God is granting me greater empathy and compassion for the boys I love so dearly.

I may feel alone, but-

I am surrounded by my family who love and care for me. They were abandoned by their family.

I chose this life that I’m living, and the sacrifices that come with it. They had absolutely no choice or agency in their situation. They were completely helpless. 

I have always been taught, and have always known that I was loved by God first, and also by many people. They had no one to teach them or comfort them. 

I have hope. I know that this work, this life is exactly what God has asked me to do and I trust that He will give me the grace to do it. They had no reason to hope. They lived in hell and were prisoners, innocent of any crime.

I do believe and trust that God comforted them while they were in the institution. I believe that He fathered them in ways we could not see. His word says that He is a Father to the fatherless, so I know it has to be true. At the same time, there is the reality that they were abused and neglected in every way- for decades. I can’t explain that paradox. I know both sides to be true and I guess I just won’t be able to make sense of it this side of eternity.

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Boris, age unknown

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Baby Vladik

Jean Vanier, a great man who has spent his life living with and loving people with intellectual disabilities, said “To be lonely is to feel unwanted and unloved, and therefore unloveable. Loneliness is a taste of death. No wonder some people who are desperately lonely lose themselves in mental illness or violence to forget the inner pain.”

Ruslan, Anton, Boris, Vladik. I weep over the many years they had to taste that loneliness. I look at the pictures of them as little ones and wonder at what could have been, had they not waited so long.

In Ukraine alone, there are thousands of children and adults who are helpless and alone in institutions. But it doesn’t have to be that way!

Do you have room at your table for one more? Do you have love in your heart to give? Could you reach out and give of yourself so that one more soul could know the love of a family? No child, no adult should be alone and if you have the ability to help, then by all means- do it. It really doesn’t need to be more complicated than that. If all that is standing in your way is your desire for your own comfort, then it’s time for something to change.

Adoption is messy and uncomfortable and hard. Let’s be honest, it’s so much easier to not adopt. Like 500% easier. But this life isn’t about doing what’s easier. It’s about chasing hard after Jesus and running the race full-on till the race is complete. If you are alive, then your race is not complete. If running hard after Jesus means laying down your life so that another may truly live, then just go ahead and do it. If adoption is meant to be your YES and you are still saying NO, please reconsider. Someone is waiting for your yes, and the sooner you can get to that someone the better. If adoption isn’t supposed to be a part of your race, that’s perfectly okay! Just figure out what your YES is and get busy doing it.

In this month of November, this National Adoption Month, please consider again if adoption should be your YES. Consider again how you can make space in your heart and home for the lonely. Consider laying down your life so that others may live. Say YES!

BeLOVE[d]

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Deinstitutionalization is no Joke.

It’s been about a month since I last wrote here. We’ve been a family of 11 for about 6 weeks now and finding time to come up for air these days is quite the challenge. 🙂 The past 6 weeks have contained some of the highest highs and the lowest lows I have ever experienced. Alllllllll the feels. All of ’em. Deinstitutionalization is no joke.

The more we know our guys, the more we grieve over the many wasted years, the many abuses and the neglect. And the more we know them the deeper we grieve for the ones left behind.

Ruslan, Anton, Boris- they are not children. They are men, each with more than 20 years spent wasting away, locked away, hidden away. The tragedy of it makes my heart ache. They have spent their whole lives living in fear, treated like animals, when all along they were worth so much more.

Sometimes I look at them and I see them at face value: men who spent their lives in a mental institution. They have B.O. They don’t close the door when they use the bathroom. They don’t wash their hands without a reminder EVERY TIME. Anton spits when he is angry and has been aggressive at times. Boris still hits himself waaaaaaay too much. They don’t sleep well (which means we don’t sleep well). They have major anxiety about just about everything. They are food-obsessed. Ruslan asks the same questions approximately 258 times per day. They wipe their noses on their pillows. Anton will wander off and has no awareness of cars or strangers. Boris will wet himself as a way of manipulating us or the situation. Ruslan has a tennis ball that he obsessively searches for in the night- just to make sure it’s still there.

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And on and on. So much brokenness. So many tears (cried by me, because they never cry,  they only laugh when they should cry).

Last week, at an especially hard moment, I looked at Jed and asked “How can we ever expect anyone to want to do this work with us? It’s just.so.hard.” And then Jed calmly reminded me that God loves our guys more than we ever could and this is HIS work. Any time we try to pick up the weight of this and carry it by ourselves we collapse under the weight of it. We have to daily, sometimes hourly, hand the weight of this work back over to Jesus.

Yes, the more we know them the more we grieve.

But, also, the more we know them the more we love them.

Ruslan sings himself to sleep every night. He sings about whatever is on his mind and it’s hilarious. He sings about the friends who will come over the next day, or about a girl he thinks is pretty 🙂 or about Jesus. And Anton!  Guys, Anton is talking. Like a lot! When he was in the institution I only ever really heard him say one word. If you asked him who loved him he would answer “God”. Now he talks so much. He talks in bed, on the toilet, in the bath, at the table. Mostly he talks to himself, but when you ask him a question he will often answer, and a lot times we can understand him!  It’s absolutely incredible to watch him explode with language. We hoped for that, but I’m not sure we really expected it to happen! Boris is growing and changing all the time. He understands English and I pretty much only speak to him in English now. He is so smart! Watching the three of them during worship at church is good for the soul. They all love music and each dance in their own way. It’s so funny and cute and soul-filling.

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When we lay ourselves down and choose to view our guys through Jesus’ eyes, with eyes of compassion, we can look past the effects of a life of trauma and see the little boy inside who just wants to know he is safe.

Our sweet Anton can get quite stressed in his new life. He spent the last 20+ years sitting on a bench, so it makes sense that he would get overwhelmed. Now we can see the signs: red cheeks and neck and lots of talking. He can get a bit aggressive when he is overwhelmed and that really scared me. My mind started racing “What have we done???” Then one day we realized that Anton is a 30 year old sized two year old. He really is!  He is developmentally stuck at about age 2 or 3- he’s just a big dude, so looks can be deceiving. Now we know when he has a tantrum we just need to treat him at his developmental age and all will be well, eventually.  Our sweet buddy, we love him so much. Now if he’d just sleep a little more…

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The kids are still doing well. Vlad has been reverting into some old behaviors, so that’s tricky, but I guess was to be expected. Yesterday we went to lunch and the three older guys stayed at home with Kenny and one of our interns. We asked the kids each how they are doing, what are some of the joys and struggles of having our new additions home. By and large, table manners were the biggest complaint (ha!) and hearing Anton talk was the biggest joy. I was happy with those answers. We can work on table manners!

The days are full, and often hard, but we also have a lot of moments of laughter. Most of all, we have love. So, we’ll just keep putting one foot in front of the other. 🙂

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Ruslan and Anton: The Skinny

Well, we’re two and a half weeks into life with Anton and Ruslan, our new additions, and I stole away for a few minutes to update you all on how it’s going. I know many of you have prayed for us and journeyed alongside us for many years and now the answer to our prayers are sitting downstairs on the couch watching cartoons. 🙂 Crazy, right?

“How’s it going with the new guys?” That’s the question everyone’s been asking, and a question that is impossible to describe with just one word. In general, I think Ruslan and Anton are doing really well. We didn’t know them as well as we knew Boris before he came to live with us, so we really had no idea what to expect. Although, we have learned with Boris that it doesn’t matter how well you know someone in an institutional setting. Once you get them out and into family life you really never know what they will be like. Boris is much different than I expected. So, we knew that we could not predict how Ruslan and Anton would adapt to “life on the outside”. So far I’m pleasantly surprised.

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At their first wedding!

Physical.  Ruslan and Anton both seem to be in pretty good health. There are some digestive issues that we have to work out, and some concerning results of lab work we had done, but most of that will probably resolve itself in time.  One of Ruslan’s feet has a pretty major issue that would probably require therapy and maybe surgery to fix. He walks with a very big limp and it looks so painful to watch him do stairs. 🙁 But, he runs and jumps and dances with the best of them. When we are out and about and are going to be walking more than just a little bit we make sure to bring a wheelchair for him. Anton is a pretty big guy, who we’re learning, benefits from PLENTY of exercise. He was waking up all night long hootin’ and hollerin’ and waking the whole house with loud laughter, but that is happening less and less. He still wakes up pretty early, but 6:00 is much better than 3:00!!!  He’s on the right track. 🙂

Emotional.  As you can imagine, our guys are in need of a great amount of healing. We know that their paths to healing may be very long, so we need to be patient. They both lived at Romaniv for more than 20 years and we don’t know where they were before that. They have been neglected and abused in every way you can imagine, and beyond what you can imagine. Pain like that doesn’t heal overnight.

Ruslan is a pretty anxious guy. He is verbal, so that helps a lot in easing his anxiety. When we are out and about he always wants to know where home is and when we’ll go back there. He always needs to make sure everyone is present and accounted for, and hey, I’ll take any help I can get in that department! Haha.  I remember when Vladik first came to us he was the same way regarding asking about home and needing to know which direction home was located. Ruslan is also a pleaser and wants to make sure we are happy with him. He needs lots of affirmation. He loves to help around the house and one sweet thing is that out of all four of our boys from Romaniv, Ruslan is the only one who shows interest in Evie. He talks to her, strokes her little hands, and has even picked her up a couple times! Yikes! 🙂 It’s really beautiful to watch him interact with her.

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Anton is often in his own world and takes a lot more intentionality to reach. He is happy to sit and play with his spinner for hours on end, so we have to work to keep him active. He’s the happiest, most content guy who has begun to laugh A LOT. His laugh is so jolly! We are learning that Anton is sensitive to noises and he gets pretty easily agitated by Boris’ many vocalizations. So, we have to make sure to give him space in those times because he can get a little aggressive. He’s just repeating what he knows, so we have empathy for him, but he also knows it’s wrong to hit, so he’s learning the not-so-fun world of good ol’ fashioned consequences (ie. missing out on a treat, or sitting in a chair for a few minutes without his spinner). Anton has a lot of insecurities about food so we are working hard on eating slowly, not hovering around the kitchen every moment of the day 😉 , and eating appropriate amounts. He doesn’t speak often so it’s hard to know what’s going on in that brain of his!

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Integration into Family Life.  This is the fun one. Ruslan and Anton are doing really great integrating into family life. Ruslan already told me he wants to learn to speak English. I bet he will too! He is so stinkin’ smart. Ruslan likes to join in on anything and everything that is going on in the house. He loves to be a part of the group. Anton is happy to join in too, but just needs more help to do it. They both love music and playing ball outside. They enjoy going on walks and, of course, going anywhere in the car.

As a whole, I would say our kids are adjusting pretty well to having Anton and Ruslan in the family. We’re dealing with the normal meltdowns that come with a major life change- there’s no escaping that. But in general, I’m super impressed with our kids and their adaptability. They are heroes.

It’s been a pretty huge adjustment for Jed and me. Our hands are now extremely full(er) :). Anton and Ruslan are doing well, but they also require a lot of attention. We’re trying to nip institutional behaviors and teach new behaviors to replace the not-so-pleasant ones. That requires a lot of time. Teaching hygiene, manners, appropriate interpersonal interactions, safety…we are starting from the ground up and it’s pretty intense. Vlad and Seth have experienced some regression since their arrival, so we are working through that as well. And then there’s Boris…yeah, he doesn’t love sharing attention AT ALL, so he’s pretty challenging at the moment. Basically, in this phase of life, from the moment we get up in the morning till the moment we lay our heads down at night we have to be “on”. There are just a lot of moving parts around here and a lot of people needing different levels of supervision and interaction. It’s a lot. More than ever we are aware of our deep need to abide in Christ. There is no way we can do this without His help.

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Evidence of the one time we took EVERYBODY grocery shopping. Not quite sure why we attempted that…hehe

Monday, Wednesday, and Friday we have one of our Wide Awake interns here helping us, and then Monday through Friday Kenny is here with us during the day as well. We’re working with the interns to develop an educational plan for the boys (Boris included), but it’s slow going. Right now they are still adjusting to life outside of Romaniv, and we’re okay with that. The interns and Kenny help us keep everyone engaged, active, and safe as they learn about the world around them.

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At the car wash with Kenny

That’s a glimpse into our life at the moment! It’s a bit insane and there’s definitely never a dull moment. Lots of laundry. Lots of cooking. Lots of noises. Lots of correcting and guiding. But also, lots of laughter. Lots of new experiences. Lots of love and memory-making. It’s a raw kind of life. The good moments are so very good, and the bad moments are kind of horrible. It’s not all rainbows and unicorns- definitely not romantic. But, it’s the life we have chosen and our yes to the Lord. It is beautiful in its own way. We are learning about our own weakness and humanness and learning what it means to lay our lives down. Jesus is so faithful to meet us right where we are when we need Him most. I’m so thankful for that. I really am thankful for the opportunity to see my great need for Jesus every single day.

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Jed took the guys to the Black Sea!  

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Both guys love working out in the woodshop with Jed

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Thank you for loving our big ol’ messy family. We are so thankful for your love and support. Please, when you think of us, pray for us. We appreciate it so much!

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The Next Big Leap

Tomorrow is a big, big day around here. Tomorrow Ruslan and Anton, two more of our friends from Romaniv will come to live with us forever. Jed has legal guardianship of them, and now we are taking the next big leap to bring them into our family.

I’ve been posting updates about the process on our Wide Awake Facebook page, but I haven’t really had the time to write all about it on here. So, here goes!

The plan all along has been for us to be a pilot home for deinstitutionalization here in Ukraine. The family-style homes that we dream of don’t exist here (that we know of), so we are taking the leap to do it ourselves and see if we can be a model that Ukrainians can replicate. We don’t pretend to be, nor do we want to be THE great hope of Ukraine (that would be Jesus). This issue of institutionalized people is an issue that Ukrainian people need to solve. We are just called to be a spark. We are called to model a different way and encourage others to follow. To that end, we remodeled the Homestead house with the space to bring 3-4 boys/men from Romaniv to live with our family, to become members of our family. We already took guardianship of Boris back in December, and now Anton and Ruslan will round us out as a family of 11. We would technically have room for one more, but we feel that with Boris’ needs, plus the added blessing of our Evie, two more will pretty much bring us to capacity. 🙂

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Jed with Ruslan and Anton a couple weeks ago 🙂

Just like with Boris, we are now the legal guardians of Anton and Ruslan. We did not adopt them because they are already adults, so it’s not legally possible to do an adoption. Our Vladik is adopted (he was 15 when we adopted him, so legally still a child), but in our minds and hearts, they are all the same. It’s just different in legal terms. In our minds, once they enter our home they are our family till death do us part. The intensity level rises a tad when you are bringing in a 30-year-old, instead of a 15-year-old, but if this is what God is asking us to do our answer still needs to be yes.

People have asked how we chose Anton and Ruslan out of all the wonderful boys that we know and love at Romaniv. Wow, that’s a good question with probably kind of a vague answer. I guess we just knew! With Boris, it was no question. Jed and I both had a really intense attachment to him and it was just a “duh” that he would be the first. He needed out desperately and we knew he was meant to be with us. Then we started to pray and ask God who would be next. At first, we thought we would take the men who were going to be first to age out of Romaniv, but right now in our region, no one is being transferred into the institution, and no one is being transferred out. So age doesn’t really matter. We knew we wanted to take men who were too old to be adopted and we wanted men who had no family to go back to. In our minds, reunification with the birth family is the most amazing plan ever, and we want to advocate for that as much as possible. So, it was important for us to take men who would not have the opportunity for reunification.

Three years ago Anton and Ruslan were taken to a camp for children with special needs that our friends at Mission to Ukraine provide each year. I was on the “Romaniv” team with them and got to know them a bit. I’ll be honest that before that camp I had never noticed either of them at Romaniv. I absolutely fell in love with Anton at that camp. He has such a sweet spirit and boy oh boy, he is so abused at Romaniv. He is a whipping boy for the aggressors and spends most of his days rocking on a bench, probably attempting to disappear. At camp, his precious spirit came alive and it was such a joy to behold. I’ve had a special love for him ever since that time.

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Anton and me at camp (2015)

Jed and I both also recognized at that camp the awesomeness of Ruslan. He is so smart and full of joy. Then in the spring of 2017, Jed and I both had encounters at Romaniv with Ruslan that firmly placed him in our hearts. We each had encounters when we were present when he had been hurt by another boy/man and were able to be at his side to comfort him while he cried. We had the gift of holding him and giving him the compassion that he has lacked for so many years. When it came time to choose our guys, Jed and I both eventually, in discussion and prayer, narrowed it down to those two boys. And we have never swayed since. There are many guys that, for safety reasons, we could not have in our home with our children, and then there are many that we absolutely adore and wish so much could come to be a part of our family. But, we just don’t have space for everyone. We really needed God to speak to us, and we believe He has.

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Jed and Ruslan at camp (2015)

Anton and Ruslan are both more independent than Boris. Boris needs help with every aspect of life. Anton and Ruslan can feed themselves, go to the toilet independently, dress themselves, and walk. Ruslan has some mobility issues, so when we are out and about in town he’ll need to use a wheelchair, like Boris. Ruslan can speak, and Anton only has a couple of words. Anton will need more assistance with daily life activities than Ruslan, but in general, they will require less “hands-on” than Boris.

We understand the gravity of what we are about to take on. Well, I should say we understand it as much as we can at this moment! In reality, there is zero percent chance that we can predict what this transition will be like. We know that it is no small thing to take in two thirty-year-olds who have lived in hell for 20 years. We know they have been neglected and abused beyond belief and the path to healing will be long. But, we also know for certain that these two are meant to be with us. We have put safety precautions in place. We have had discussions with our kids. Our interns and Jed’s assistant, Kenny, will be helping us several days a week. Now all we can do is see how it goes, modify the plan as needed, and trust God to give us the wisdom we need. It seemed right to take Anton and Ruslan both out at the same time. Ruslan is a helper, and we hope he might be a comfort to Anton. Also, our family has been through A TON of transition over the last year and we just feel like we need to do this big transition and then be done with transition for a bit (if that’s even possible). We are eager to settle in as a family of 11 and get on with it!

I’ll be honest, this YES is the biggest yet for me. Yes, it was a lot to commit our lives to Vladik and Boris, but this feels even bigger to me. It feels scarier. Maybe that’s because now we have lived the reality of our commitment to Boris for several months and we are knee-deep in the challenges and reality of what that looks like. Life with Boris is not without joy, but it is a hard, hard road. I know that Anton and Ruslan will have their own challenges and sometimes I worry about what that will look like in day-to-day life.

BUT

We know that we know that this is what God has asked us to do, so we have to put our trust in Him and keep on trusting.  Just like before, the only thing required of us is the next YES. We don’t need to worry about the future because we’ll have the grace for it when it gets here. 🙂 I’m so excited to watch Ruslan and Anton become the men that God created them to be. I’m so excited to shower them with love. I’m so excited for our family to be complete.

Please pray for us as we take this big step. Pray for grace and peace and safety and health and most of all that God’s Kingdom would come and His will would be done in our home.

Thank you, Friends!

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