Puppy Love 

Have you met our newest addition?  

Meet Bluebell!

  

Oh you know, our life is pretty boring.  We have so much spare time on our hands…so we decided we needed a puppy. 

HA! 

I know, I know, most everyone thinks we’re crazy to have a puppy right now, but there’s a method to our madness. I promise. 🙂

You see, Vladik LOVES dogs.  He has no fear of dogs (in fact, the dogs would be wise to fear Vladik a bit) and loves to wrestle them, run with them- and just be with them.  Around Christmas time we started thinking that it would be really good for Vladik to have a dog, especially with all of his upcoming surgeries.  Also, Vladik has loads of energy.  The kid doesn’t stop.  We started thinking it would be great to have a dog, someone for him to spend some of that excess energy on.  

   
 

I put a feeler post out there into Facebook land, something along the lines of “We’re thinking of getting a dog to be a companion for Vladik. Thoughts?” And the rest was history!

Our friend Paige responded that her English Shepherd had just delivered a litter of 10 puppies and that English Shepherds are a great breed for companion and therapy dogs.  We researched the breed and we were sold.  We began planning how we could swing getting an English Shepherd for Vladik.  Not long after that, Paige told us that she and her husband had talked, and they wanted to gift us one of the puppies for Vladik!  AMAZING!

Shortly after the new year we went to visit the puppies and decide which one would come home to us.  Paige had prayed and asked the Lord for it to be made really clear, the right pup for Vladik.  The kids and I sat in a circle on Paige’s kitchen floor and she put all the available puppies, with different colored collars, in the middle of our little circle.  One puppy, the one with the blue collar, went up to Vladik immediately.  She chewed on his shoe, laid on his lap, walked circles around him and then just sat at attention right beside him.  And that was that!  Blue collar puppy had made her choice.  Paige was so happy, because that was the exact puppy that she had originally that would be best for us!  Blue Collar Girl became Bluebell, and a few weeks later she came home with us. 

   
   

Having a puppy is a ton of work, of course, and I would be lying if I said there weren’t moments when I’ve thought “We’re truly gluttons for punishment”, but we already love our Bluebell so much!  Really.  She.is.awesome. She’s smart as all get out and so stinkin’ soft.  She feels like a stuffed animal! Yes, she chews and chews and chews, but she is learning! Bluebell is just the perfect dog for our family and we are so blessed to have her.  We plan to take her back to Ukraine with us and I’m pretty sure she’ll love her life once we have our group homes on our little farm.  Think of how much joy she’ll bring to all our boys!  I can’t wait to see it! 

So, there you have it.  That’s why we have a puppy at a time when it seems like probably the worst idea ever 🙂  Call us crazy, but we’re already in love.  No turning back now!

   
   

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UNBELIEVABLE.

I am in awe. My heart is so full it’s about to burst.

Another one of our boys will soon have a family!!!

I.CAN’T.BELIEVE.IT.

Last March we introduced you to 7 of our boys who were available for adoption in this post, and this post.  I held my breath and hit the publish button, wondering what God planned to do about it.  For many months it seemed that nothing was going to happen.  And then all of a sudden…BAM! The families started rollin’ on in!  We now have FOUR families in process to adopt our boys!

Like I said, I.CAN’T.BELIEVE.IT.

God loves our boys so much!

First Vladik was set free,

then a wonderfully brave family found Alex, 

then a family saw Jonathan and knew he was theirs, IMG_2512

then Ben’s family fell in love,  

and now Isaiah’s family has found him!

I can’t even tell you how much this builds our faith.  We love these boys like they are our own, and we know that adoption will save their lives.  Literally.

The gates of the institution are about to be busted wide open!

As long as everything moves smoothly, the families should be adopting one after the other in a pretty small window of time.  This is so good!  It’s great for the local government to learn that there are people who love these boys and see their value.  It is also great for us as we work toward opening our group homes and deinstitutionalizing the other boys.  People’s eyes will be opened and we pray that God does His miraculous work in the hearts of government officials in the town. It’s just unbelievable.

Please pray for the four families who are in process.  All of them are private at this point, but as soon as I am able to introduce you to them you can bet I will.  If you would like to give them a note of encouragement just send it to me and I’ll pass it along.

To God be the glory for the great things HE has done!!!

PS: Now only two adoptable boys are left!  I’ll spend the next two Fatherless Fridays on Aaron and Stephan.  My faith is big right now, what about yours?

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Fatherless Friday: Isaiahu

A friend told me that I had neglected to blog about the big news!  BEN HAS A FAMILY!  An adoptive family has stepped up and is working as fast as they can to get to him.  Praise God.  Adoption will save his life.  We are so thankful!   The family is private for now, but when they are ready I’ll make sure to introduce you to them.  To keep best up to date on our boys make sure to follow us on Facebook.  I update there several times a week.  🙂

Introducing…Fatherless Friday!  I’d like to take Fridays to share about children we love who are still waiting for adoptive families.

First up is our precious Isaiahu.

Pure sunshine.

Jam-packed with potential.

Beautiful baby boy.

This is the thing: I am confident that if you could all just meet Isaiahu in person, look in his eyes and hold him in your arms, he would be snatched up in an instant.  Everyone who meets him falls in love with him.  His diagnosis sounds scary, but he is so wonderful!  He is absolutely a delight.

I mean, think about it.  This little boy lays in his bed in one single room day after day after day.  He only leaves that room when the weather is nice and his nanny takes him for a walk, or if one of our team members carries him out for a stroll down the hall.  He most likely hasn’t left his small building since the early days of fall, before winter set in- except to visit the hospital.  His world is so so tiny.  Yet he still smiles.  He still makes small gains.  He is awesome.

Wide Awake International and Bible Orphan Ministry have teamed together to hire two special nannies that alternate days, caring for Isaiahu and Ben from 7am-7pm.  Those nannies keep those baby boys alive.  Literally.  They care for their needs, hold them, feed them, bathe them, all in that little room.  They keep them safe from other boys who have not been taught to be safe.  Those nannies are such a blessing to our little ones.

Three times a week our teams come to spend time with the boys, and then three other days a week Wide Awake Int interns work with specific boys, providing therapeutic interactions that help to move the boys forward in development. His potential is ENORMOUS!  This is the first time he has had consistent therapeutic interactions and he is blossoming.

But it’s still not enough.

Isaiahu will never really thrive in his current environment.  A mental institution is no place for a 7-year-old boy- especially one as helpless as Isaiahu.

He is learning to hold his head up and to sit with support.  He smiles and laughs when his name is called.  He prefers his nannies over others and seems to have an obvious attachment to them.  He is ticklish and loves to be praised when he’s working hard.  The doctors say he is losing his sight, but it’s obvious he can still see.  Oh, how I pray for a mommy and daddy to come for him before it is too late and his world fades to black.

Someone see this precious treasure and say YES.  He may be dependent on you all his days, true. That is no small thing.  It is a very big reality.  Another big reality is that he will bring his family so much joy.  He is a ray of sunshine in a very dark place where he does not belong.  Think about what blessing will come from serving a sweet one like this.  Think about the rejoicing and cheering and smiles that will come from seeing him hit new milestones.  Think about the beauty of watching him truly live with a mommy and daddy who treasure him and fully see his value.

Sweet little Ben has a family coming for him, and now it’s his roommate’s turn.

You can read more about Isaiahu in these posts: The Day We MetFighting for my Babies, Guest post for Isaiahu.

If you can’t adopt but would like to help, you can donate to Isaiahu’s adoption grant here.  This will help relieve some of the costs of his adoption when his family finds him.

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The Sky’s the Limit

Since the beginning of December we’ve been taking steps toward putting Vladik in school for the rest of this school year, while we’re in the US.  It’s been a decision I didn’t expect us to make, but for many reasons it just seems right.  We aren’t set on him being in a special Ed classroom all day every day, we just feel that it makes sense to take advantage of the opportunities he has here in the US to be taught by professionals- before we head back to Ukraine and it’s all up to me. [GULP] On Monday we spent about 2 hours with a school psychologist and a speech pathologist and they evaluated Vladik.  They had never seen a situation like ours before: 15 years old, no educational history AT ALL, smart, but behind in everything because he’d simply never had a chance.  ZERO life experiences until 5 months ago.  Born at age 15. 🙂

Vladik blew them away.  His zest for life, his joy, his eagerness to learn- he is truly a miracle.

There may have been some tears in the room as we talked about how far Vladik has come-  from the cowering boy in the Isolation Hall to the brave boy shooting matchbox cars across the meeting room table.

Those two ladies got it.  They really and truly “got” it.  They saw the treasure in Vladik.  They saw the untapped potential that has waited years and years and years to be discovered.  They looked past his outward appearance and his awkward speech and institutional behaviors and truly saw the person.  Those two women saw the value in my son and I will be forever grateful to them for that.  At the end of the meeting they declared “We need to get this boy in a classroom! He’s waited long enough.”

And boy did they live up to their word, because today Vladik started school.

It will take a while to figure out which school and which classroom is the best fit for our boy, but they didn’t want him to have to wait, so they arranged for Vladik to start with tutoring in the meantime.  I think that was a fantastic idea.  Tutoring is the perfect transition for Vladik.

We started today and are just doing 30 minutes per day, 5 days a week.  Vladik’s attention span is like minuscule, so 30 minutes is about his max.  Plus, this is his first activity away from Mama and Papa, so it’s a great way for him to learn that we will always come back for him and it’s a really safe place for him to learn some independence.  The teacher speaks no Ukrainian 🙂 so, Vladik will be learning some English along the way!

Oh my, I made the rookie mistake of telling Vladik last night that he would start school today.  Silly me.  I should have known that in order to avoid approximately 372 questions about when we will go to school, I should have just waited and told him in the car on the way there. [live and learn]   But I just couldn’t wait to tell him!  He was jumping and laughing and clapping with glee.  He said “Addy has a school, Ezra has a school, Hava and Seth have a school, and Vladik has a school!!”  When I came to pick him up today at the end of his lesson he said “Mama!  This is my school!”  He was so proud.

I love that boy.  I picture him wandering the halls of Romaniv and my heart breaks in two.  He had so much more in him than we ever realized.  He had an imagination and a smart brain and a sense of humor and a great capacity to love, all just sitting and waiting for a chance.  Born at age 15, now my sweet baby can fly.  The sky is the limit for our boy.

March 2015 and February 2016

I dream of that same future for the rest of our friends who sit and wait at Romaniv.  I wonder what they will be on that day when their chance at freedom finally comes.  I wonder who will be funny and who will be super smart and who will have a knack for growing flowers and who will be great with the animals.  I do know that they will all exceed our expectations because the sky will be their limit.  And I pray that day comes soon.

Jed is working hard in Ukraine, deciding on the best property to purchase and meeting with government officials.  This God dream of ours is going to happen.  It’s really going to happen.  Doors are flying open in front of us.  People are going to see the beauty of our boys and they’re going to see their value, just like the school psychologist and speech pathologist recognized the beauty of our Vladik.  The joy of Vladik experiencing his first day of school is just a glimpse of the freedom that is to come.  We.Can’t.Wait.  When God puts a dream in motion the sky’s the limit!

 

 

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All About Vladik: Four Months Free

I think it’s about time for an update on Vladik, don’t you?  I know many of you love him very much, and have prayed for him for many years.  It is our joy to share his journey with you.  Some things I won’t share, just to protect Vladik’s privacy, but there is a lot I will share, because Vladik’s story is a great story of redemption and we just can’t keep it to ourselves!

General Transition: Vladik is doing unbelievably well.  He is a walking miracle in every way.  He sucks the marrow out of life more than anyone I’ve ever known.  He is also still the happiest person I’ve ever known.  He almost NEVER stops smiling!  And if he does stop smiling, or if he starts to cry, you know you better pay attention.  His cry is the most pitiful thing!  Maybe it’s because it’s so rare to see him unhappy, but when he starts to cry we can’t even handle it.  So so sad!!  He generally only cries when he is in pain (shots, blood draws, IV’s…) or when he is overwhelmed.  Like yesterday, at the end of a loooooong day of doctor’s appointments, we were sitting, waiting for the nurse to come back in the room and he just leaned into me and started crying.  It was so unexpected, and so sad!  He just really wanted to go home.

Vladik loves home.  He always wants to know which direction is home and when are we going home.  He calls our house “The Red Tomato” in Ukrainian, because it’s red. 🙂  He’s always gotta check in about where The Red Tomato is, and if that’s where we’re going next.  I love that he loves home, and I also know he always checks in about it because he’s still not quite sure that he will always be with us.  That’s okay buddy, keep on checking in as long as you need to. You’re stuck with us!

We still speak only Ukrainian to Vladik and have not really taught him any English yet.  But, we just decided this week to begin speaking to Vladik in English and Ukrainian.  We don’t want him to be on the fringes of our family in any way, and not having English excludes him from many conversations unless one of us translates.  It’s time.  This should be fun!  Ha!


Family: Seth and Vladik are still best buds.  Vladik calls Seth “Seppa” and Seth calls Vladik “Vladchik”.  They play together, fight together, laugh together and cry together (well, Seth does the crying…haha).  They are always hugging each other.  It is the cutest thing.  Seth is the leader, for sure, and can kind of take advantage of it, but Vladik is learning to stand his ground a bit better too.  He actually knows how to push Seth’s buttons, so yeah, typical brother stuff going on there. 🙂  Havalah is doing great with Vladik.  They don’t play together much, since Vladik doesn’t share a common love for Barbies, but Hava is always coming up to Vladik and giving him little loves.  She really loves him.

Ez and Addy have had a bit of a harder transition, which was to be expected.  It’s difficult to know how to navigate having a new brother that is physically your same size, but developmentally like a toddler. There are some habits that a toddler might display that are cute,  but when done by a toddler in a 10 year old body…not so cute, more just annoying…and LOUD.  Ha!  We have all had to remember often that Vladik has never been parented at all.  He has never had a family to teach him what is appropriate.  He has never had good social modeling.  He has never had any healthy relationship modeling.  He likes attention and will try to get it however he can- negative or positive- he’ll take what he can get, much to Addy and Ezra’s chagrin.  BUT, I will say that they have many sweet moments and over the past few weeks the positive moments have far outweighed the annoying, make-him-be-quiet-and-stop-touching-me-moments.  Yay!  Vladik is learning better how to relate to his siblings, and his siblings are growing in their love for him.  When you love someone you can accept a lot of behaviors that would have made you crazy before.  We talk a lot about choosing love, even when you don’t necessarily feel it at the time. Also, Vladik’s sense of humor is coming out more and more and he is making us laugh more all the time!  That helps those sibling relationships for sure.

Slowly but surely, he is becoming just one of the bunch.  They have all come so far!

Vladik does great with mommy and daddy. He loves us both and seems to be attaching appropriately. He doesn’t play us against each other like he used to when he was stressed.  He listens and obeys eagerly, 90% of the time.  Usually the other 10% of the time he needs only a firm voice and a reminder that it’s important to listen and obey.  We have done a couple “time-outs” and that has been super effective.  It’s really only “Okay, you didn’t listen so now you have to sit in this chair for 3 minutes.”  But, it is enough to get him to stop and pay attention.  He generally desires to obey.  When he is stressed we have to be a bit more firm with him to draw those boundaries in nice and tight, and he responds really well.



Medical: Oh my, have we been busy in this department!  Vladik came to us as a big mystery puzzle and we are slowly fitting all the pieces together.  Vladik is miraculously healthy.  Praise God!  Let’s start with the head and move down.

Head: We just had an appointment this week with the craniofacial surgeon and the neurosurgeon to discuss the results of Vladik’s head CT.  Boy was I surprised to hear their thoughts!  They both agreed that Vladik does not need any skull surgery.  What????  I was all prepared to hear a plan and instead heard, “He’s dismissed from our service!”

I guess I’m not yet sure if we should be relieved or if we should seek a second opinion.  I have an email to an expert on Apert Syndrome and am waiting to hear his thoughts.  Right now we are choosing to trust the doctors and be thankful. 🙂  This is their rationale: the CT showed that all of his cranial sutures are already closed.  Because he is 15, his head is done growing and his brain is done growing.  His dilated eye exam showed there is no pressure on his optic nerves, and he does not show any signs or symptoms of intracranial pressure.  Because of this, there is no need to expand his skull.  They said that if he doesn’t have intracranial pressure now, there is no reason for him to develop it later because his head is done growing.  It all makes great sense.  I guess we just really want to make sure we get this one right, which is why we are considering a second opinion.  Prayer for wisdom about that would be appreciated!

We are unsure how much of Vladik’s delay in development is because of restricted brain growth in his earlier years.  If he had been born here he would have had skull expansion surgery as an infant.  The doctor said that unfortunately, because he was not treated, that damage is already done and now it is too late for treatment.  So, we are glad we don’t have to deal with skull surgery, but we also mourn a bit for what might have been if we had gotten to him earlier.

Eyes:  Vladik’s eyes have many of the typical traits of Apert Syndrome.  They are placed in a different position on his head and even the eyeballs are rotated out a bit.  He has good vision and does not need glasses…yay!  But he does not use his eyes together and they are often crossed.  He will have eye surgery this spring to adjust the muscle position a bit and help him to use his eyes together.

Teeth: Vladik’s teeth are actually not in horrible shape!  Sure they are funky, and he could really use some braces, but health-wise, they are not bad at all!  He had two old fillings with decay underneath that we have had replaced and he got two crowns.  He did amazing.  We won’t be able to tackle orthodontics until we get to Ukraine. It’s too long of a process for us to undertake here in the US.  Because of that, we can’t really do any mid-face surgeries, as those must be coupled with orthodontics.  Midface surgery, in Vladik’s case, is not a medical necessity.  It would be more cosmetic, I guess, and honestly for a child with Apert Syndrome, Vladik’s midface is actually not in a bad position!  It doesn’t seem to affect his airways at all.  Because of that, we have opted out of those surgeries.  It just isn’t possible, with our living situation, to couple anything with orthodontics.


Ear, nose, throat:  We have yet to see the ENT doctor (grrrr), but we have been pushed up in the priority list as of yesterday.  Vladik had a sleep study and it showed he has obstructive sleep apnea.  He snores and gags and chokes and coughs all night long.  The craniofacial team is recommending a modified tonsillectomy (can’t do a full one because of his cleft palate).  Hopefully taking part of the tonsils would help his apnea enough for him not to need CPAP.  All the other surgeons agree that if a tonsillectomy is going to happen, then that needs to happen before any other surgeries.  Simply because airway management during anesthesia will be much easier if his airway is more clear. So, we are looking forward to that appointment. The ENT will also order hearing testing, as recommended by the cranio docs.  Vladik’s speech is still pretty hard to understand and they want to rule out hearing loss.

Hands: Can you believe the physical issue that has caused the most angst so far has been fingernails????  OMG.  Vladik’s fingernails are so difficult to manage!! They are fused, like his fingers, and just a pain.  We have been dealing with an ingrown fingernail since November that eventually led us to the ER because everyone is afraid to touch him. We FINALLY saw a hand surgeon yesterday (as a follow-up for the nail) and he was awesome!  He would like to give Vladik a thumb!!  He is suggesting starting with a thumb and seeing how well Vladik can learn to use it before trying for anything more.  Because of his age, it looks like from the x-rays that it would be very difficult to separate the other fingers, plus, we then run the risk of him not gaining great use of them because of his age and the lateness of a surgery like this.  We agree.  Having thumbs will absolutely change his life.  We told him last night that the doctor wants to give him a thumb and he was flipping out!!  He was pounding the table and shrieking and laughing.  Ha!  It will be amazing. The doctor suggested just doing one hand at a time, so as to not incapacitate him, but honestly, he needs both hands to do everything anyway, so we are going to ask for both thumbs to happen at once.  We’ll see!

We already have been waiting for months for an appointment with the hand surgeon at Shriners and our appointment is finally coming up at the end of the month.  We’ll go and see what that surgeon has to say and then make our decision. It’s so exciting to hear that Vladik could have thumbs.  That is what we hoped for.  SO SO EXCITING!!!

Feet:  We saw a foot surgeon at Shriners in November and he saw right away that Vladik would greatly benefit from surgery on his feet. Vladik’s feet are so funky.  They are almost impossible to fit for shoes and they always look so painful.  They are very misshapen and there are sores on the bottom of his feet where all the pressure lies.  The doctor wants to basically reconstruct his feet- lengthening some bones and shortening some others. This will help him so much as he grows and (hopefully) gains some weight.  The downside is that the surgery will land him in a wheelchair for 8 weeks.  OUCH. Trying not to think about that one too hard.  Wheelchairs are very traumatizing for Vladik.  I can’t imagine how he will react to not being able to walk.  I’ll let you know when that surgery comes up so you can be praying!


Vladik talks often about his old life.  He is faithful to tell us daily he doesn’t want to go back to his old house.  Just in case we should forget!  🙂  He talks about sad things that happen there and whenever he talks about it he uses the word “thunder” in Ukrainian. He talks about how there was a lot of thunder there and covers his ears.  These days it’s hard for us to even imagine Vladik there.  I feel like the Vladik I knew at Romaniv was a scared shadow of the Vladik I know now.  He was always scared, always in fight or flight mode, pinging from one thing to another.  He even stands differently now.  Before, he was hunched over like a cowering little boy.  Now he walks straight and tall.

He has a wonderful sense of humor and loves to make us laugh.  He is loving and kind.  He teases his sisters and is obsessed with microwaves.  He loves all things Lightening McQueen, and calls any kind of case with a handle a “businessman”.  He likes cheese and apple juice and Reeces Peanut Butter Cups.  If he doesn’t have borscht every few days he’ll let me know it’s time. He likes to do laundry and even cleans out the vent and adds a dryer sheet before starting the dryer!  He is such a special, quirky little character.  To know him is to love him.

The more we meet with doctors and tell his story, the more I am in awe of God’s protection over Vladik’s life.  That he survived living where he lived, without any surgical interventions, is unbelievable. He is so smart. He is so independent.  Everyone who meets him falls in love almost instantly.  I’m actually crying as I type this.  How did we get to be the ones to win this lottery?  I can’t even wait to see how he continues to grow and change as he gains confidence in the fact that he is loved and he will never ever go back to his old life.

Thank you Jesus for our sweet boy!

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Introducing…Interns!

The vision of Wide Awake is to bring dignity, love, and hope to people with disabilities in Ukraine.”

If you’ve hung around here for a while you know that our big, God-size dream is to open small group homes for our boys to live out their days.  The dream is to remove the boys from their horrible reality and insert them into safe, loving, warm environments where they can get all the love and help they need for the rest of their lives.  They will play and receive therapy and sleep in soft, warm beds.  They will be surrounded by music and laughter.  If they are able to work they will garden and care for animals and work with their hands.  Our boys need occupation.  They need to contribute to the world around them.  It brings meaning to their lives.  The dream is for them to be IN the city, not hidden away from society.  The dream is for them to have the opportunity to become all that God has created them to be, surrounded by people who love them, treasure them, and believe in them. 
We’ve got big dreams around here. We’re dreaming big, believing that God has great futures in mind for our boys.

We will not believe that God’s best for them is to lay in bed 24 hours a day, seven days a week, staring at blank walls. We will not believe that spending the next 20 years rocking back and forth on a bench is God’s hope for their future.
We know God wants more for our boys and we know that He uses people as his hands and feet in the world.

Last year it became apparent that less money needed to be spent improving the physical living conditions of the boys, and more money needed to be spent placing loving, consistent people in their lives.  To answer that need, through a three-way partnership with Hands of Hope (funded by their child-sponsorship program), Mission to Ukraine (local non-profit acting as fiscal agent), and Wide Awake (hiring and training) we were able to hire two full-time teachers who teach the bigger boys Monday through Friday.  That need is also being answered by an increase in the amount of time our team spends with the boys each week.  Since last spring there have been teams going to visit the boys 3 days a week.  The team has grown in number and in love.  It is a truly beautiful thing.

Now I am so very happy to report that the need is being answered in yet another way.  INTERNS!

Tanya, Mira, and Maxim

Our family attends a wonderful church in Zhytomyr: Христианской Молодежной Церкви (Christian Youth Church).  Youth Church is our family in Ukraine.  God has done a wonderful thing in partnering us together.  Almost all of our team comes from Youth Church, and Wide Awake gave Youth Church a grant to carry on the work of bringing teams to the boys while our family is here in the US.  Youth Church has done a FANTASTIC job of growing the team, and now the work in Romaniv has become an official ministry of our church!  Vika, the team leader for Romaniv, has just rocked it.  We are so proud of her and the whole team and are honored to call Youth Church our Ukrainian home. 🙂

Youth Church, in partnership with Wide Awake, is now sending three interns to Romaniv three days a week!  The interns were picked from our team.  Maxim, Tanya, and Mira have been volunteering at Romaniv since October 2014.  They have been faithful, loving, extremely dedicated, and committed to the boys.  This is not a project for them.  This is their love.  The three interns are university students who are doing this paid internship in addition to their schooling.  They will be with the boys for six hours, three days a week, and are an answer to prayer.  Jed began their training when he was in Ukraine in October, and then our dear friend Olya, an OT, continued their training when Jed came back to the US.  Thank you to Salem Vineyard, our sending church in Oregon, whose child-sponsorship helps to pay for this exciting new venture!

Yesterday was their first day on the job and we are all so excited!  Maxim, Tanya, and Mira’s focus is on the boys in the Isolation Hall, since the teachers are not working with those boys.  They have divided the Isolation boys up between themselves and will each work with the same boys every day they are there.  They are beginning with performing functional assessments on each boy and then setting individual goals for the development of each boy.  Their work is more focused and therapeutic because they have the ability to give their time and attention to the same boys each day.



We are looking forward to awesome results!  Even just their consistent, positive presence is life-changing for our friends.

Do you know what that means?  That means that between our teams and the interns, we have loving, energetic, amazing youth spending time with the boys SIX DAYS A WEEK!!!!!!  Freaking out excited!!!!!  That’s not even counting the teachers who are there Monday through Friday and teams who visit from other churches.  PRAISE GOD!

I remember back to the spring of 2014 when Jed and I decided to start going to Romaniv on a second day each week. It was just the two of us going to Romaniv alone, asking God to bring more help…and now this.  God is so amazingly faithful.

We believe that all of this loving presence is preparing the boys for the lives of freedom that await them.

Soon my Friends, soon you will be free. But in the meantime, I hope you can see how many people love you so dearly.

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Fighting for The Little Ones

I remember the day we met.

Jed and I heard the news that there were a couple of new arrivals at the orphanage and we rushed there to meet them.  The faces we saw that day changed us forever.

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Isaiah

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Ben

Sweet Ben and Isaiah, six-year old boys in baby bodies, lying in their cribs, unaware of all the concern swirling around them.

The nannies were afraid.  Isaiah wouldn’t eat from a spoon and they had no bottles available for them.  After all, we’re talking about an institution for men and boys, not for fragile babies.

They tried to take their time to feed the little ones properly, but time is just not something the nannies have much of to spare.  Twenty other boys/men with severe needs were yelling and moaning from behind the shut doors of our little baby hideaway, so even though they cared, the nannies simply had to move on, shutting and locking the door behind them for the safety of the wee ones.

Our family left for a week to go work at a camp, and when we rushed back at the end of the month to see our babies, we were devastated.  They were withering away right before our eyes.  Of course they were.  Babies, children, teenagers, adults, no one is meant to be locked behind a door, in a crib 24 hours a day.  Our hearts sunk.  Something had to be done.

As fast as we could we hired a special nanny to take care of just those two babies.  She would give them her full attention 12 hours a day: feeding them, changing them, holding them, loving them.  She would save them.  Then another partner, Bible Orphan Ministry, hired a second nanny to care for them so that every day of the week, for 12 hours they would not be alone.  They would be treasured.

And boy oh boy are they treasured!  Those two nannies love, love, love Ben and Isaiah.  Last spring when Ben was on the verge of life and death they cried and rocked him and cried some more, knowing they could not save him.  And then praise God, he sent the team from Humedica to literally save Ben’s life with a specially prescribed diet.  He is not thriving, but he is not dying.  I know it is not enough, but until he is adopted it is the very best we can do for him.  So we still pray for God to send a family to his rescue.

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Now the nannies cry again, hearts broken.  The doctor has told them that our sweet Isaiah is losing his sight.  No no no.  How can this be?  There is no answer as to why, no timeline for how fast.  We do see that he is tracking less and less, and we cry.

Isaiah is light and joy and pure sweetness.  He knows his name and when you enter his room and call out to him his whole body responds with joy. He laughs and is ticklish and loves to be held.  He is a boy, but he is a baby.  If I could, I would take him home in a minute, so confident am I that he will bring unspeakable joy to a family.

He has cerebral palsy and has never had any kind of therapy, unless you count visiting physical therapists who have come to lend their expertise.  (THANK YOU!!) He has the beginning of contractures in one leg and the nannies worry.  And now it seems he is losing his sight.  We are heartbroken.

Can you imagine laying in bed 12 hours a day, unable to get up, and then falling into darkness?  I know all the sounds he hears and I know he must be so frightened.  Ben too.  They are completely helpless, completely reliant on others to feed them, clothe them, protect them.  How will he keep that beautiful smile if the whole world turns black?  I can’t even fathom.  My mommy heart is devastated and it takes everything in me not to jump on a plane today and go to him.
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I’ll be honest.  Isaiah’s only hope is adoption.  Ben’s only hope is adoption.  The special nannies, the special food, all of it is a temporary solution.  It is the best we can do under the circumstances, but it is not nearly enough.  We know this.  Their quality of life is poor.  Okay, they aren’t dying at this moment, but they aren’t living either.  We absolutely love these boys like we love the 5 children under our roof.  And I say that this life they have right now is not good enough.  Our Havalah is 6.  Would I be satisfied with her having attention and love 12 hours a day and then being bound to a crib surrounded by moans and screams and cries the other 12, the door locked for her protection?  Would I be okay if I learned she was going blind?  Would I be content to let her fall into darkness?

No.  I would fight for her.

I would scream for her.  

I would cry out and fight and petition until I found someone to help her.  Someone to rescue her.

And so I do for the little ones across the sea.

I can’t be with them.  I can’t hold them.  I can’t rescue them.

But I can fight for them.  I can petition for them until I find someone to rescue them.
Please, please share my babies.  Isaiah is falling into darkness.  He needs a family now.  Please see him.

Ben is a 6 year old in a 12 pound body.  He needs a family now.  Please see him. 

If you have considered adoption, please do not wait.  Sometimes it is a matter of life and death.  This is one of those times.

Havalah and Isaiah

Havalah and Ben

Defend the weak and the fatherless; uphold the cause of the poor and the oppressed. Psalm 82:3

Yes, adoption is a huge decision and a hard road.  But right now I’m looking across the table at my Vladik and can tell you with all confidence that it is worth it.  Would our lives be easier if we didn’t have Vladik?  Of course!!!  But I know where he would be right now if he wasn’t at my kitchen table.  My heart can’t even handle that truth.  In the light of that, the “ease” of my life seems pretty insignificant.  These babies are worth our discomfort.  Just as Jesus came to us, we are to go near the broken on his behalf.

Please pray and ask God how you should respond to Isaiah and Ben.  Please don’t just move on.  They are worth fighting for.

If you have any questions about either boy or the adoption process itself, please don’t hestitate to ask. You can leave a comment here or email me at kjohnson@wideawakeinternational.org.  

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And We Have Hope. 

It’s December, folks.  I can now officially listen to Christmas music without incurring the judgement of Jed. Our Christmas tree is up.  The lights are on. The cupboard is stocked with staples of the season.  Our hearts are full.

And we have hope.

  

This past Sunday was the beginning of Advent: the season of expectation, the season of longing for Jesus to come and make wrong things right; the season of searching for glimpses of God’s Kingdom come to earth. 

On Sunday at our home, and across the world, millions of candles were lit.  Millions of prayers were whispered.  Millions of hearts were filled with hope. 

We look back at all God has done thus far and our minds are blown.  In two short (yet sometimes unbelievably long) years He has made so much wrong right.  

-Hearts of directors have been opened and softened.

-Youth from our city have risen up and claimed this cause as their own.  They have chosen time and time again, to spend time with their  beloved boys instead of pursuing other things.  This is not a project to them- this is their life together.

-Doctors and nurses and physical therapists and speech pathologists and many loved ones have traveled across the world to give of their time and talent to our beloved babies. 

-Hearts of nannies have been won over.  They may not understand why we do what we do, but they love us and they appreciate us.  They are our friends.

-Two teachers from the town of Romaniv have been hired to devote their lives to the boys.  They are opening the eyes of their neighbors.

-God laid our boys on the heart of a generous church in Switzerland- and a van was provided.

-One amazing boy now runs free.  Cherished son and brother. 

-Thousands of people ALL OVER the world have given and given and given.  Provision abounds.

-Countless prayers have been prayed, day after day after day by so many believers in so many countries.  “God come.  Have your way.  Set the captive free.  Be near to the boys we love so much.  Bring healing and hope.  Your Kingdom come, your will be done, on earth as it is in heaven.”

And we have hope.

  

Of course, there is so much yet to be done.  There is so much wrong that has not been made right.  There are injustices and there is so, so much pain.  There are nannies who are cruel.  There are people in high positions who do not understand.  There is unbelievable suffering every minute of every day.

But we have hope.

God keeps his promises.  God sees and He knows.  God has not forgotten our boys, tucked away from the world for so long.  They are tucked up right next to His heart.  

And we are so full-to-bursting with thanks.  Thank you for traveling this journey with us.  Thank you for praying.  Thank you for loving.  Thank you for giving so incredibly generously.  Thank you for carrying the torch of hope with us.  Thank you for believing that these boys are worth fighting for.  

“The people walking in darkness have seen a great light; on those living in the land of deep darkness a light has dawned.” Isaiah 9:2

AND WE HAVE HOPE! 

  


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Indiana Adventures

I gotta tell ya, we just had the most encouraging week!  

I’ve written before about Hands of Hope, our fabulous partners in Indiana.  Hands of Hope provides awesome support to adoptive and foster families in Indiana, and they also do great orphan care through child sponsorship.  Through the Hands of Hope Romaniv sponsorship we are able to bring fresh fruit to the boys three days a week, pay the salary of two teachers who are working full-time to teach the boys, and more.  Hands of Hope is an immense help in bringing greater quality of life to our boys.  Because Hands of Hope pays for much of the work that is done at Romaniv now, Wide Awake is able to put funds away to prepare for the future: group homes instead of institutionalization.  

Their partnership and investment into our boys is priceless. 

This past Tuesday Jed, Vladik, and I were able to fly to Indiana to spend some time with the Hands of Hope peeps and talk a whole lot about the boys we adore so much.  It was a fast and fabulous trip!  Jed flew in from Ukraine on Monday and we flew out to Indiana on Tuesday morning.  At this point I’m pretty sure Jed could go 10 years without stepping foot on another airplane and be pretty happy with that. 

   

 

On Tuesday night we got to spend the evening with some lovely people who sponsor sweet Boris and Zhenya.  And then on Wednesday night there was an open house for “Friends of Romaniv”.  Basically sponsors and any and everyone who loves our boys could come and just hear about what’s happening at Romaniv and how they can pray.  It was beautiful.  Many of the people who came Wednesday evening have visited Romaniv before and dearly love the boys.  We always love talking about our sweeties, but talking about them to a room full of people who have loved them for years (in many cases before we even knew they existed!) takes it to a whole new level.  Love-fest level!  🙂 

The highlight of our Wednesday was a lovely young lady named Renee.  Renee visited Romaniv on a mission trip when she was 16 years old.  She fell in love with Vladik on that trip, came home and became his sponsor through Hands of Hope.  Renee prayed and prayed over the years that Vladik would find a family.  She LOVED our son before we did.  Well, now Renee goes to college in Kentucky.  She found out Vladik was going to be in Indiana and drove over 3 hours to come and see him in person.  

  
 

What a special reunion.  Vladik was clueless of the importance of that night, but someday he’ll understand.  

Thursday night was just beautiful.  Hands of Hope had an event called “Sip and Savor”.  It was so classy!  Free lattes and people walking around with trays of cheesecake?  Yes, please.  🙂  

The three main focuses of Hands of Hope were presented at the event: Orphan Care (child sponsorship), Foster Care support, and Adoption.  Jed and I did the presentation about adoption because we received a matching grant for our adoption through Hands of Hope.  THANK YOU!!!!!  It was doubly special because Vladik was the first Hands of Hope sponsor child to be adopted.  Cool, eh?  I say hopefully the first of many! 

Man, it was just wonderful to be in a room full of people passionate about caring for the orphan.  There are so many different ways to say YES and hearing about all the ways people can say YES by partnering with Hands of Hope is just rad.  It’s the real deal.  

  
 
  

Besides those official meetings, we just had plenty of time to drink coffee and eat yummy food with our friends.  All of these friends we met in Ukraine at one time or another through Hands of Hope, World Next Door, or Mission to Ukraine.  They were all so happy to see Vladik in a family and we were so blessed to spend time with people who know our boys and our friends in Ukraine and love them.  Common hearts + coffee + cozy couches = a whole lotta good times.  We got to stay with our friends Christopher and Lois and it was seriously like a vacation.  They spoiled the heck out of us.  SO FUN!   

  

God has blessed us so much with this partnership with Hands of Hope.  Again, we are just amazed at God’s love for the boys.  How is it, why is it that He has drawn so many hearts to this one institution in the middle of nowhere Ukraine?  We believe it’s because God has something very special for our boys.  He has been drawing them out of darkness into light for such a time as this.  I’m just thankful we get to be a part of His unfolding plan.  

To God be ALL the glory for the GREAT things He has done!

  

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Offended by the Goodness of God

Here are some reflections from Jed. Warning: extreme passion ahead.  I hope you can read this with an an open heart to what the Father wants to say to you.

Church songs are great, right?

The lyrics pick us up in hard times, they carry us through the week and we are so glad to have the simple melody and words to express an emotion to God.
Or, they comfort our broken heart: songs of His goodness, faithfulness, love and on and on.
We’re walking through Gap whistling the tune, “You make all things work together for my good,” as you find your favorite pair of jeans on sale. The person in front of you buys your drink at Starbucks, “Hallelu,Hallelu, Hallelu.u.Yah.” Ok, that might be a bit off topic. 🙂

Good stuff.
Have you ever had a moment when a dear friend shares the depths of pain as a relationship crumbles, or the newsfeed reads of another child dying while escaping a war torn country, and all of the sudden those worship lyrics start to fall flat?
For us there is the oh-so-often overwhelming sense that there is not enough time or hands to give each of our boys the time they need. And even when we do get time and have plenty of hands, we still have to return them to their extremely traumatic lives.

The religious prose no longer feels robust enough to contain the suffering caused by human injustice.
You might find yourself saying, as we find ourselves saying “These lyrics don’t ring true. God, you certainly don’t seem like a good, good father. Where are you????”
Or, maybe you’ve been on a missions trip and when you came home you could barely stand under the weight of western excess in light of the severe poverty witnessed afar. Perhaps you found yourself slamming your fist down, “God, how can you allow this injustice?! This inequality! Why have you forgotten those lovely people?”
“I can’t sing these songs to you God.” You may have even felt some bitterness swelling up in your chest. Dare I say, Doubt…?

Well, if you are brave enough to sit with these feelings for a spell and not ‘numb out’, not head back to the mall or app store to ‘buy out’, you may hear God speak his answer to these questions that haunt our faith.

Think of the story of worship leader Kevin Prosch, who met God in the closet his dad locked him in and learned to play the guitar and worship in the midst of the abuse.
Or, think of the miracle tree growing in the midst of a shanty in the garbage dumps of Nicaragua that provides medicine for the family living there.
Or think of our boys and their amazing capacity to love, despite their circumstances.
God speaks. Are we brave enough to listen?

But, maybe you need more than testimony. Perhaps you still can’t reconcile the goodness of God.

This is me, by the way.

But are you still brave enough to sit with these questions, these accusations…?
Most aren’t.

Many have quietly walked away from God, shaking their heads.
“I’ve just got too many unanswered questions,” is the statement as they make their curtain call from the church community. In that case, there is a world waiting with open arms to receive your weary soul, clinking glasses, “Three cheers for one less fool, duped by faith.”

My dear cousin Brett sat outside of the garbage dump in Nicaragua, having seen the immensity of inequality and suffering caused by poverty. But then he noticed the healing tree I mentioned earlier, and he saw the comfort siblings were able to provide for their dying baby brother.
As he held these accusations out to God, “How are you working all things together for their good…? How are you perfect in all of your ways?” God met him and said, “You equate my goodness with material wealth and well-being. But goodness looks far greater than what you deem as good. You don’t get to define me and my goodness. You won’t see all that I do for my people and don’t assume that my “lack of material provision” means that I am unmoved by their suffering.”

As Kim and I sit in the midst of suffering with our boys, we hear God say, “I am so near to these precious ones. Their capacity to love comes from my nearness to them, despite all that this world has done to their bodies. I am holding them close.”

Yesterday, I was reflecting on this while watching Cousin Brett sing songs with my boys, who were rocking, singing, clapping, crying, screaming, self-harming or off in their own world.
A thought came to me, maybe a revelation. When time wraps up and we stand before God we will see the truth. We will see how He has been with each of us in our highest joys and our deepest suffering. We will see His goodness, the way He defines it, for everyone, and we will say “God, you are righteous and just in all of Your ways.”
And at that point, some real worship is gonna go down.

Until that day comes, we have some great words in the book of Psalms to help us process, petition, and bring our accusations to God. Psalms is a book in the Bible where the writer rages at the sight of injustice, pours his heart out in places of pain and loss, and at the end of the day, he still has a price on his head and a heart full of love.
Maybe Psalms and all its honesty and sometimes offensive accusations might be a little more helpful than quoting pop church songs when we’re struggling through life’s deep questions. God is not surprised by our questions, nor is He offended by them.
Maybe that big book in the corner needs a little dusting off.

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