Category: The Team

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Changes for Good

January ended up being a pretty great month. To start with, Jed’s mom brought Vladik home to us. Yay! Then she stayed for a month to spend time with us and help with the kids so Jed and I could go to the Vineyard UK National Conference in Nottingham. One of our partner churches flew us out there for the conference and a few days of rest and man oh man, we didn’t even know how much we needed it until we were in it.

When you’re knee deep in a project or work it’s helpful to get away and regain some perspective. We’ve been neck deep for the past year and a half, so our perspective in some areas was severely lacking. Time away spent with friends who love us and speak into our lives was a precious treasure that came just at the right time. I’m so thankful we had that opportunity.

While we were away we had good news and not so good news. The good news was, our precious “Preston” flew home to Indiana with his new family to begin his new life! The bad news was, our “Aaron” who was just adopted from Romaniv (the last child who was available for adoption!) failed his medical exam and therefore wasn’t issued a visa to the travel to his new home in the US. Noooooooo!!! Failing that exam is every adoptive parent’s fear. Additional testing had to be done, and now there is an 8 week waiting period for those results to come back. Obviously, Aaron’s family couldn’t wait 8 additional weeks in Ukraine, so a different plan had to be formed.

Part of our team with Preston before he flew to his new home

I shared that story on our social media and invited people to help cover the expenses of caring for Aaron for the next 2 months, as he requires full-time care, and the Wide Awake community rallied! In less than 24 hours all of the expenses were covered, plus additional funds that the family can use for airplane tickets when they travel back at the end of the waiting period. Thank you so much to all who gave so quickly and so generously! The family was blown away by your love.

The plan we came up with was that Max, one of our team members who is currently on a break from university, would live in an apartment with Aaron for the 2-month waiting period. When Jed and I arrived back in Ukraine after our England trip we picked up Aaron in Kyiv and brought him to our house for the weekend because Max wasn’t available to start caring for him till Monday. Aaron did SO WELL in our home. He obviously loved the stimulation of all the people, the space to move around, the toys and balls. It seemed like a no-brainer to all concerned that he would be better off in a family environment instead of one-on-one in an apartment.

Aaron knows he’s not allowed in the kitchen so he sited riiiiiiight at the edge 😆

That left the question of how to make it all happen. Aaron on his best day still requires full-time supervision and assistance. There was no way we could simply add him to our family and not change things up. The money had been donated to care for him, we just had to find the best way to use it. Then we had an “Aha!” moment and we made a decision that was better for all involved. Andriy stayed with us in our home, and Ruslan moved into the apartment with Max. Not what you were expecting to hear? Yeah, it took us a bit by surprise too, but sometimes the most obvious answers are the hardest to come by. 🙂

For several months we had been mulling over the idea of moving Ruslan to an apartment, even before Anton moved. There are several reasons that made this the right choice for this moment. First, Ruslan has a great potential for independence. He will never live alone, but he has great potential to learn to care for himself in many ways. He wants independence. He sees all his friends (our team) live in apartments with friends so the concept was interesting to him. In an apartment setting there will be more time and space for him to learn skills necessary for independence.

Second, Ruslan is highly anxious and quite obsessive. Anton did not thrive in the large family environment, and Ruslan, although he managed it better than Anton, also had big struggles. Ruslan wants to control everything and everyone in his environment. He’s been learning that when you live in a family it’s not possible or necessary to control everyone and everything, but in the large family context it was causing him a lot of angst.

My fave pic of Ruslan ❤️

Third, there were some personal matters that made it necessary for the health of our family that Ruslan moved to a different space. To protect the dignity of all of us I don’t want to really expand on that. Everyone is safe, and no one has been physically harmed, but you just can’t predict how interpersonal relationships will develop when you bring new people into your home, specifically people who have endured 30+ years of trauma and abuse. We have learned much from having Ruslan in our home, and we love him dearly. It is just healthier for everyone if he lives separate from us. I know it might seem like I’m glossing over this, but I hope you can trust that this is not a decision we came to lightly. We have been agonizing over how to make it work, interpersonally, with Ruslan in our home, and the reality is, it just can’t work for the long term. If you have more questions about this, please shoot me an email. I’m happy to talk.

This move, even though we had considered doing it for a long time, was unexpected, but it feels 100% right. When Anton moved out it was traumatic and sad and felt like a loss (at the time). This does not feel like that. Ruslan was excited for the new adventure of living with Max, and Max is the perfect person to lead Ruslan into a more independent life. Anton’s leaving felt like failure, at the time, because Anton is developmentally much younger. He was confused and it felt like getting him out of the house ASAP was the only option in that stressful situation. This move feels like a next step. Aaron’s coming into our home for this time caused everyone to rethink how we are doing what we are doing and shook us up a bit. But we feel confident God used that situation for all of our good.

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At church on Sunday Ruslan was happy, loved and well-cared for; Anton was happy and loved and content. They arrived at church with different people, but were still surrounded by so many who love them. God is so faithful to provide the people to love our boys. Every one of them is in a good spot right now and we couldn’t be more thankful.

I don’t know what the future will hold for Ruslan and Anton. Possibly they will stay in apartments, possibly they will live in the duplex, we’re tossing around the idea of tiny houses on our property. We want to do what is best for them and we are committed to them, so we know God will show us in his timing.

I wanted to share with you so you would know how to pray and also so that those who gave toward Aaron’s care would be fully informed on how the money is being used. Max is being paid to care for Ruslan, so that we have the ability to care for Aaron in our home. Same use of funds, just a “change in seating”, if you will. If you have any questions, please don’t hesitate to ask. We always want to be open and honest. Thank you for your love and encouragement, as always!

“Aaron” living large in the village

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An Anton Update

We can’t thank you enough. All of you who have been praying, all who sent messages, all who emailed and called. Thank you for loving us, for trusting us, and for loving Anton.

It has been quite the two weeks. To be honest, it’s been quite the year. No, let’s be real honest- it’s been quite the 6 years. 😂 But these past two weeks have been a DOOZY.

Thank God, He heard our prayers and He made a way for everyone to be safe and loved. We found an apartment for Anton and it’s about a 10 minute walk from a park by the river. Every morning he gets to go for a walk in his most favorite place ever. Huge blessing.

The big question of the hour was: who would live with Anton? Thankfully, God heard our prayers and provided there too! Two friends from church, guys in their early twenties are living with Anton in the apartment. He spends his weekdays with our team, like always, then in the evenings and night he is home in the apartment with his two new housemates. They get a free apartment and Anton gets two new friends. Win win. 😊 They are kind, peaceful, and gracious men. A wonderful woman from church is helping to care for him on the weekends. She just returned to Zhytomyr and needed work and we needed weekend help. Win win. 😊 We are so thankful!!! We are giving it a month and then we’ll reevaluate further.

Anton is doing okay. He is confused, but we just keep reiterating to him that this is a better place for him, a quieter place. The first several days were not pretty. So bad. So so bad. He wanted to come home really badly. We were all in tears, but we know that we know that this is the best plan for right now. We aren’t bringing him home to our house at all right now, even for visits, just because it would definitely be confusing and we feel a significant time away is best. Of course we still see him plenty, just not at the house. He likes the new guys he is living with and is mellowing out a bit. It’s been a huge adjustment for all, but things are definitely not getting worse. Yay!

We started Anton on an anti anxiety medication to hopefully take the edge off during this time. We are also working with a GI doc to get some other answers, but right now we’re waiting on test results before we know more. She wanted us to put him on a gluten-free, lactose-free diet, so that’s super fun to try to do in the Breadbasket of Europe. Ugh. Good thing Anton’s not obsessed with food or it would be really hard. <— (Insert my most sarcastic voice)

Overall it’s been super hard, but God has been faithful. Our team is the best best best. Jed and I are coming down from living in a state of constant vigilance and we are wow, so exhausted. We are also so thankful for our community here and for God’s provision.

Please keep praying. Pray that this living situation would work well and that we would get more answers about Anton’s health. Thank you!!!!

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Eight Months In

We’re coming up on 8 months with Anton and Ruslan and I feel like we’re slowly starting to come up for air. Caring for our guys is still pretty much all-consuming, but we have gotten in to a bit of a rhythm, and things are looking up!

Sometimes it feels like their progress is so minuscule, but then we look back and remember things we had to do a few months ago just to keep the peace around here and we see how far the guys have come. Very far!

Anton. Six months ago we were barely sleeping because Anton was up all hours of the night wandering the halls. I remember we used to have to turn off all the water to the house and unscrew all the downstairs lightbulbs before we went to bed every night because Anton would get up and try to take a bath at 3 in the morning, or shriek and hoot and holler at 2am so that we would get him up and feed him. We had to remove all options in order for him to be able to turn his brain off enough to rest and fall asleep. At one point Jed was sleeping on a couch in front of his door to remove the option of nighttime wanderings. Those were the days…yikes.

Now I can happily report that Anton goes to bed easily and doesn’t get up until at least 6:30 every morning. (knock on a biiiiiiig ol’ piece of wood 🙂 ) His sleep success is thanks to a strict evening routine that we dare not stray from, and blessed medication. The combo of the two saved our lives.

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He’s saying a lot of words, and more and more often he says them at the appropriate times! He used to only really speak when he was angry, but now that’s not always the case. There are so many words in there and sometimes he’ll shock us with a “See you tomorrow!” (in Ukrainian of course) or something like that.

Anton gets stressed pretty easily, and when he doesn’t feel good, physically, he gets really worked up. In times of stress he is aggressive toward others, so that is a big bummer. I hate those times because I know he is just repeating what he’s seen his whole life and it’s not the real Anton. When he is in an aggressive mood it just becomes a matter of keeping him separate from everyone else and that is exhausting. I hope and pray that someday Anton will be able to express his emotions in ways that are less painful to others. We are doing all we can to help him learn a new way.

When Anton feels good and is at ease he is so joyful, sweet and fun-loving. He loves big bear hugs, dancing, toy cars and fidget-spinners. He enjoys stirring things in the kitchen and will gladly eat anything and everything you put in front of him. He has started to say “I love you” on occasion and this week he said “Mama” for the first time. Melt my heart.

Ruslan. To be honest, it’s hard for me to write about Ruslan because I’m unsure how much to share. Whenever I share about our boys I want to respect their dignity and respect their privacy. It’s so important for me not to overshare their personal struggles. At the same time, I always want to be honest about this process. It does none of us any good for me to pretend all is unicorns and rainbows when they so clearly are not. This is stinkin’ hard work for us, our team, and our boys every.single.day. Most of all for our boys. Learning to become a human after 20+ years of living like an animal is not an easy process to go through. They need our empathy and our compassion, but they also need our strength. They need to have a standard to rise to, expectations to meet. They need to know we believe in them and we want more for them because we love them!

Ruslan’s trauma presents itself as high anxiety and a need to be in control of everything. At Romaniv his world was small. The stressors were crazy HUGE, but there were few of them. His main priority there was keeping himself safe and keeping himself fed. Here in the real world, the wider world, there are many, many things outside of his control. There are so many more things for him to obsess about and be anxious about. If it’s not one thing it’s another.  He wants desperately to control his environment, but when you live in a house with 10 other people you just can’t control every single detail. That is outrageously hard for Ruslan. Sometimes it seems like it’s only getting harder, only getting worse, but he has actually made some great strides in the past few months. A few months ago he was was having daily meltdowns and those really only happen on rare occasions now. You can see him ramping up for a meltdown, and then most of the time he can wind himself down. Not always, but most of the time. I’m so thankful for that!

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When Ruslan is relaxed and at peace he is hilarious. He has a great sense of humor and a compassionate heart. He really loves Evie and is mostly gentle with her. He loves to sing, and worship time at church is his most favorite thing EVER. The anxiety ridden Ruslan who acts out in fear holds back the real Ruslan. The anxious Ruslan is also extremely hard to live with. It breaks my heart because I want things to be different. So, we will continue to fight for him. We will fight to get him all the help we can so that he can live his life to the fullest.

We have waited a bit to see how things would play out with a highly structured day and several months of safety and now we have an accurate baseline for Ruslan. We are ready to seek out psychiatric care for our guy and see how we can best help him move forward. If you would pray with us for wisdom in this we would really appreciate it.

Health. As far as medical stuff goes for both guys, we’ve been slowly but surely getting things taken care of. Fridays have become our “medical day”, so Kenny and I try to tackle the different medical appointments on Fridays. We’re focused on dental stuff right now and that’s super fun since Kenny and I both HATE going to the dentist. I’m not sure how much moral support we provide, but we do our best. Hehe. Anton has one problematic tooth that should be fixed next week and Ruslan has a whole mouthful of problems. I’m not sure he’ll have any teeth left when we get finished. Poor guy. 🙁 I’m guessing we’ll be exploring the world of dentures or implants in the near future. Anton has some physical symptoms that I don’t have answers for yet, but all in all I think they are both in pretty good health at the moment. Step by step we’re getting there!

I have to say that there is no way we could do any of this without our amazing team. Kenny and Oleg are with us Monday through Friday, bathing our guys, shaving them, taking them on bike rides, teaching them how to make tea, keeping them safe, talking them off the ledge, teaching them how to be men, loving them, comforting them, supporting us and all in all just being awesome. This really would be impossible without their help. We would have burned out months ago.

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Masha, Masha, and Lesya are also absolutely essential to the success of this home. “Harry Potter Masha” 😉 comes to our home three times a week. She plans and organizes the guys’ schedule for the week and is learning to implement the plans that Olya, our wonderful OT, recommends. Masha’s work makes it so that we aren’t just spinning our wheels with the guys, but we are hopefully moving toward specific developmental goals. “Second Masha” and Lesya each come once a week and provide great additional support to our guys and the rest of the team. I love our team and can’t express how thankful I am that God brought each of them to our family.

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So, there’s a bit of an update on our two newest family members. If you have any questions about Anton or Ruslan, or the process of deinstitutionalization don’t hesitate to ask! My hope and dream for writing this out is that someone reading it will also feel called to this deep, difficult, and beautiful work. We need help and I know God will call the right people to join us. I also write this so that those of you who pray will know better how to pray for our family and our team.

To all of you who pray, support, encourage and love us from afar, thank you! We can’t tell you how much we need it and appreciate it. Thank you for partnering with us on this journey. We couldn’t do it without you!

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